Updates and news from the Huntington's Disease Society of America San Francisco Bay Area Chapter. #LetsTalkAboutHD. Recommendations? email cgreve@hdsa.org
Joined December 2020
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In a recent paper, scientists targeted a small, harmful piece of the huntingtin message (HTT1a) in HD mice. This reduced toxic protein clumps and delayed genetic changes, more than targeting full-length HTT. buff.ly/xh2EwZT
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Come enjoy an exciting day of baseball while raising awareness and supporting a cause that matters. Together, we can celebrate community, honor Abbygail’s legacy, and make a meaningful impact in the fight against Huntington’s disease. buff.ly/kG1nvRj
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Join us for a day of hope, community, and purpose! Register to walk, start a team, or donate — every step brings us closer to a world free of Huntington’s disease. Raise $100 get a complimentary participant shirt! Registration is free! buff.ly/GLmoUSJ
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One year into treatment, SKY-0515 continues to lower huntingtin and shows encouraging trends with signs and symptoms of HD. A larger trial is enrolling to determine whether the drug truly slows HD progression ift.tt/rendJCp
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HDBuzz 2025 Annual Report: Here’s what you made possible. Read details here: buff.ly/sbi6WI1
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Explore the Voice of the Patient Report to hear directly from people and families living with Huntington’s disease — their stories, struggles, and hopes that will help shape the future of care and advocacy. buff.ly/6euYap8
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Check out this volunteer opportunity on Idealist ideali.st/tHMhX7
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This year’s convention promises to be an inspiring gathering of patients, families, caregivers, researchers, and advocates all coming together to learn, share, and build hope for the future. Register here: buff.ly/xe70cR5
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2 year data from the votoplam trial suggests disease progression may slow; AMT-130 heads to the UK for regulatory review; pigs reveal immune cells invading the HD brain; and new science zooms in on toxic huntingtin fragments. ift.tt/xIgKGi8
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Gene therapy startup Latus Bio has raised another $42 million to start its first clinical trials, where it will try to sidestep issues that have set back a more advanced competitor. Read the article here: buff.ly/64oQJQr
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MAY IS HD AWARENESS MONTH. Here are three simple ways to support HD Awareness Month: Share on Social Media, post using #LetsTalk AboutHD, Share Your Voice, and Promote the $50k Match. Donations can be made at: buff.ly/A4p3ov7
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A recent study suggests that strengthening the brain's own clean-up system could slow Huntington’s disease. buff.ly/MdCMvYE
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Thank you to every walker, runner, volunteer, donor, supporter, and team who helped make this year’s event such a success. A special thank- you to Ernesto for capturing the day so beautifully through his photos. Click here to view the walk photos: buff.ly/zIGvFcG
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May is Huntington's Disease awareness month. We come together to raise awareness, honor the strength of families impacted by HD, and remind them they are not alone. Every dollar donated will go even further thanks to a generous 2x1 Match buff.ly/aRF9Kcz
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Prilenia's application for European approval of pridopidine was quietly withdrawn 6 months ago, in November 2025, after the EMA had already recommended refusing the drug. Here's what happened, and why you're only hearing about it now. ift.tt/xcZXmPe
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May is Huntington's disease awareness month. We will beat HD in a few years! #letstalkabouthd #hdawareness
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May is HD Awareness Month. Help raise awareness, support families impacted by HD, and remind them they are not alone. Thanks to a generous 2-to-1 match, every dollar donated will have triple the impact for HD families across the country. buff.ly/dHuDzSc
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The pictures taken at the event will be uploaded to the Chapter website soon!
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