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Haemochromatosis Aus @HaemAus

Our vision: No Australian will experience harm from haemochromatosis facebook.com/Haemochromatos… Most tweets are haemochromatosis-related....

Joined August 2013
  • Tweets 3,184
  • Following 418
  • Followers 1,005
1,271 Photos and videos
Ryan was diagnosed with haemochromatosis at 25 following family testing. His story is a reminder that family conversations matter. If haemochromatosis is in your family, speak with your GP and use HA’s resources to help start the conversation. haemochromatosis.org.au/what…
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World Haemochromatosis Week may be over, but June Action Month continues. This week, choose one action: Find support and trusted resources at ow.ly/q6wH50ZbtHX #JuneActionMonth #Haemochromatosis #FromAwarenessToAction #HaemochromatosisAustralia
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This June Action Month, we are sharing real stories from people affected by haemochromatosis like Ash to help more Australians understand what to look for and what action to take. Find out more at: ow.ly/u0vu50Zak0H #ironoverload #WHW2026 #WHW2026
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Three glasses of water and a pie review? This is the kind of field research we support. Thanks for the shout-out, Tony. A timely reminder to stay on top of treatment, follow medical advice, and hydrate like a professional. 🥤🥤🥤🥧 #beatoverload #WHW2026
Tony Martin@mrtonymartin
Jun 8
Hey there, fellow Haemochromatoids. Don't forget to venesect. Good pies at the blood bank. Yes, I've had three glasses of water. @HaemAus
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Our co-patron and long-serving medical advisor, Professor John Olynyk, has been awarded a Member of the Order of Australia, AM, in the King’s Birthday Honours List. We also acknowledge the late Professor Katie Allen AO, also recognised in today’s King’s Birthday Honours.
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National Blood Donor Week starts today. This June Action Month, we are encouraging our community to take practical action. Already a donor? Join the Haemochromatosis Australia Lifeblood Team. If not sure whether you can donate, talk to your GP. ow.ly/VmEQ50Z8tNL
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Donate if you can. Share if you can’t. This June, take action in the way that is right for you. Join the HA Lifeblood Team, share the message, or encourage one person to learn more about haemochromatosis. ha.org.au #WHW2026 #beatoverload
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Help Haemochromatosis Australia reach 2,000 Registry participants! If you are 18 with a confirmed diagnosis, your experience can help improve understanding of diagnosis, treatment access, health outcomes and lived experience. registry.ha.org.au #WHW2026
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When Sam was diagnosed with haemochromatosis, he wanted clear information and support. His GP suggested Haemochromatosis Australia. Within 48 hours, Sam received a response that helped him feel reassured and better informed. ha.org.au #WHW2026 #beatoverload
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Are you the first in your family to be diagnosed? Haemochromatosis runs in families. Your diagnosis may be important information for close biological relatives. Use HA’s Family Letter to help start the conversation. ha.org.au #WHW2026 #beatoverload
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Are you the first in your family to be diagnosed? Haemochromatosis runs in families. Your diagnosis may be important information for close biological relatives. Use HA’s Family Letter to help start the conversation. haemochromatosis.org.au/what… #WHW2026 #beatoverload
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World Haemochromatosis Week starts today. This June, move from awareness to action: Talk to your family. Speak with your GP. Use HA’s resources. Join the Registry if eligible. Donate blood if you can. Share the message. ha.org.au #WHW2026 #beatoverload
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World Haemochromatosis Week starts tomorrow. This June, take action in the way that is right for you: 1. Talk to your family 2. Speak to your GP 3. Join the Registry if eligible 4. Donate blood if you can 5. Share your story 6. Share the message ha.org.au/whw
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You are not alone. If you or someone in your family is affected by haemochromatosis, Haemochromatosis Australia provides information, resources and support. Call the HA Info Line on 1300 019 028 or visit registry.ha.org.au #WHW2026 #beatoverload
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Help us reach 2,000 Registry participants! If 18 with a confirmed diagnosis of haemochromatosis, you can help improve understanding of diagnosis, treatment access, health outcomes and patient experience. Join the Australian Haemochromatosis Registry: registry.ha.org.au
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If haemochromatosis is in your family, our Family Letter can help you start an informed conversation with your GP. It is part of our From Awareness to Action Toolkit we will highlight during World Haemochromatosis Week from 1 June. ha.org.au/whw #WHW2026 #beatoverload
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Haemochromatosis runs in families. If diagnosed one of the most useful things to do is encourage close biological relatives to speak with their GP. Our Family Letter can help start the conversation. Find the letter: ha.org.au/whw #WHW2026 #beatoverload
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Haemochromatosis causes the body to absorb and store too much iron, and can lead to serious health problems if not diagnosed and managed. In June, we’re helping more Australians learn what to ask, where to get support and how to take the next step. ha.org.au/whw
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World Haemochromatosis Week is coming: 1–7 June 2026. This year, Haemochromatosis Australia wants to help more people move from awareness to action, with a month-long campaign planned for June. Visit the campaign page: haemochromatosis.org.au/what… #WHW2026 #beatoverload
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It's National Volunteer Week! Haemochromatosis Australia could not function without our volunteers. In fact, we are all volunteers. Thank you to all our wonderful volunteers. If you would like to help visit ha.org.au/get-involved/volun… #NVW2026 #haemochromatosis #ironoverload
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