#healthforlandon Update for 6/6/26
Although it feels like each month's update finds me a little more reluctant to do so, I know I need to for the many prayer partners who are wondering but feel hesitant-at this prolonged point-to ask...as well as for our own clarity that only comes through the untangling it requires to put our emotionally-frayed, bone-level fatigue into actual words first to the Lord and then to those with whom He has handpicked for us to do the ups and downs of life. So hear it goes again…
The beginning of June finds us in transition into the next phase of diagnosis and treatment of Landon’s ongoing symptoms that affect him physically, mentally, socially, and every other level. With what we know at this point, he is continue to navigate the previously-known issues of EDS trigged by Covid, including the venous congestion in his kneck/head that was addressed via surgery back in January.
Now that we have addressed this structural issue and await the surgery’s full impact over the next 6 moths, we are proactively addressing what appears to be a primary result of that issue called “mast cell activation.” (Mast Cell Activation Syndrome is an immune disorder where mast cells overreact and inappropriately release chemicals (such as histamine) into the body. This causes recurrent, severe, multi-system "spells" resembling anaphylaxis, including flushing, hives, gastrointestinal distress, rapid heart rate, brain fog, etc.)
Praises:
1) Landon is making progress in taking some new prescription medications to address the mast cell issue. (Not easy to re-up after what feels like so many false starts and dead ends with other medical strategies that have only ruled out versus helping.)
2) Landon continues to exhibit a sweet, steady spirit towards his family as he works his way through each day of pain, fatigue, and isolation. (As captured in this pictured thumbs up to a recent text of encouragement from me…yours truly who is really trying to not be a “Job’s friend” type of counselor to my precious son who has been through so much more than I can fully understand let alone fix.)
3) Several individuals and churches have especially loved on our family with thoughtful words/support in the last few weeks in ways that have literally felt like God leaned down, touched our very souls, and said, “I have NOT forgotten you.”
4) Our local church continues to be a consistent source of empathy and support when our family doesn’t have quite the usual bandwidth emotionally and relationally.
Prayer Requests:
1) Pray for Landon’s next virtual follow up with his main doctor (Dr. Hepworth in Denver, CO) on this Tuesday (6/9) to access a CT scan of chest and abdomen and MRV of brain taken a few weeks ago to see if there are any additional blood flow issues in these vital areas of his body.
2) Ask God to give us the mental and emotional fortitude required to keep believing that hope/healing are still worth believing in no matter what human opinions and vibes swirl around us. Objectively we know we need to, but that is much easier said than done at this point. [Practical for not just us but anyone in a similarly prolonged season—To God: “God, help the Snode’s to hang in there. To Us: “Praying for you to hang in there”/“Are you hangin in there?”]
3) And most of all…would you pray that God would completely free/heal our son from all that we are still in the thick of…so that all who know our little family would know His epically big “saving health” not just from temporal maladies but sickness of the very soul that is available to all the world!!! (This is God’s ultimate mission which means this prayer unlike our more temporally-oriented ones gets His full attention and energy.)
Ps 67:1-2 “God be merciful unto us, and bless us; and cause his face to shine upon us; Selah. That thy way may be known upon earth, thy saving health among all nations.” (Just read this psalm this morning and was struck by it in a powerful manner.)
Thank you for continue to stand and kneel with us no matter how fatigued and worn down your own knees. With your partnership and God's grace, we are determined to keep giving a thumbs up with Landon to God's power and promises at work in and through us.