Help4HD-International, is a non profit organization serving the #Huntingtonsdisease and #JuvenileHuntingtonsdisease community.
Joined June 2013
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Inspired by the advocates, families, and community members, five Huntington’s disease organizations came together today to champion the future of rare disease innovation at the FDA.
Together, we look forward to strengthening our partnership with the FDA to bring renewed hope, urgency, and patient-centered progress to Huntington’s disease.
Every day matters for HD families — and we will continue advocating together for a brighter future. 💙
#HuntingtonsDisease #RareDisease #PatientAdvocacy #HDCommunity @POTUS @realDonaldTrump @WhiteHouse @US_FDA @FDACBER @FDACDERDirector @RFKJr_Official
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Find out about AMT-130 at #Help4HDHIPE2026 in #LosAngelesCA! Sr. Medical Science Liaison, Dr. Julia Overman, will represent uniQure at upcoming #HD #education day event to discuss this #GeneTherapy!
Registration & hotel scholarships help4hd.org/events
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We are so excited to get together with everyone TOMORROW! Join us on Zoom at our #MondayMixer to enjoy the company of other #HD community members. Reach out to jamie@help4hd.org for more details. See you there!
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Heard about REGEN4HD? Dr. Leslie Thompson, Sue & Bill Gross #StemCellResearch Center Director, recently launched this first-in-human neural stem cell based #ClinicalTrial for #HD. Listen at #Help4HDHIPE2026 to learn more!
Register: help4hd.org/events
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Comment below & share your experiences with #LongTermCare facilities, #InHomeCare services, hospice, etc. We need to know who cares about #HD patients as we share resources with other #HDFamilies around the world. 💙💜💙
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8-year old twins with #JHD 💜💜Kia David explains the financial strain, overwhelming emotion, & where she finds strength as a #caregiver for the people in her household on #Help4HDTV. Listen NOW! #JuvenileHuntingtonsDisease
facebook.com/help4hd/reels/
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This week's interview features Kia David as she shares about #caregiving for twins with #JHD. Tune in on #Help4HDTV TOMORROW at 9am PST!
facebook.com/help4hd/reels/
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We'll be educating #LawEnforcement this fall at #IACP 2026! #LEEP volunteers are dedicated to giving officers insights into the #HD community & provide strategies for approaching individuals who may be cognitively impaired. #Help4HD #education #advocacy
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We want to thank our #sponsors for investing in our #HD community by supporting The Huntington's Post which features personal narratives, #HDResearch updates, advocacy opportunities, & other HD news. Thank you so much! #Help4HD #blog
help4hd.org/huntingtonspost
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Check out this new data regarding #Chorea from @TevaUSA based on #HD community surveys on the Huntington's Post! #Help4HD #HuntingtonsDisease #Blog
Read more: help4hd.org/post/teva-presen…
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#HD & #JHD Caregiver, Bereavement, Spanish, Gene Positive/ At-Risk, Men's Meet Up, & Monday Mixer. You are not alone! Reach out to join us at virtual support group! #Help4HD #HuntingtonsDisease #SupportGroup
Support Group Details: help4hd.org/support-groups
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A useful #resource for all #HDFamilies! Listen at HIPE on July 18th as #Help4HDSocial Worker, Jamie Holloway, shares details about the #EndofLife Planning Kit! Register NOW!#Help4HDHIPE2026 #LosAngelesCA #HuntingtonsDisease
Register: help4hd.org/events
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Monday Mixer! Check your time zone & see if you can make this casual social with #HD community members on Zoom! Reach out to jamie@help4hd.org for more details. #Help4HD #MondayMixer #HuntingtonsDisease
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Research Update at HIPE! Hear a summary of current #HDResearch as Dr. Erin Furr-Stimming presents on July 18th at this FREE event in Los Angeles! Register NOW!#Help4HDHIPE2026 #LosAngelesCA #HuntingtonsDisease
Register: help4hd.org/events
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"Do it sooner, rather than later" When job involves keeping others safe on a daily based, consulting medical professionals about #HD #symptoms can't wait. Listen as Jody Vaughn & Leah consider this topic on #Help4HDTV! #Genepositive
facebook.com/help4hd/reels/
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Jody Vaughn joins Leah discussing assessing #HD symptoms when you have a job that involves driving. Listen TOMORROW at 9am PST on #Help4HDTV! #HuntingtonsDisease #Driving #genepositive
facebook.com/help4hd/reels/
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Today on #Help4HDLive listen at 1pm PST as Lauren shares thoughts about the public hearing linked below that's currently happening, #HDResearch updates, & more. #HuntingtonsDisease
Click to hear podcast: spreaker.com/podcast/help-4-…
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Follow our social media to stay informed on upcoming events, resources, research, & more! linktr.ee/help4hdi
Also check out our YouTube - #Help4HDTV, & podcast - #Help4HDLive on Spreaker, iHeartRadio, Spotify, & iTunes. #HD #JHD #TogetherWeAreStronger
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As #HDAwarenessMonth closes, we thank our generous #sponsors! We appreciate all who participated in #RaisingAwareness by videos, sharing, t-shirts, or engaging in conversation. "No One Fights Alone" & we continue to advocate for our #HD/ #JHD community!
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Letter to the President 🇺🇸 Our #HD community is seeking collaboration with the #FDA to fight for a treatment/cure for #HuntingtonsDisease, fatal #GeneticDisease that with passing seconds steals the #hope of each generation ~#Help4HD #HDAwarenessMonth #day31
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