Our mission is to find a cure for #hydrocephalus & improve the lives of those impacted by the condition.
Joined May 2009
- Tweets 11,855
- Following 1,544
- Followers 6,164
- Likes 2,792
3,782 Photos and videos
Have you hit 50 completed surveys? If not, you still have a few days to be fundraise $80 and be entered to win an HA Solar Power Bank!
Keep the momentum going! bit.ly/HXC-HYDRO-26
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Jun 13
You don't want to miss our new session at #HACONNECT26: You're Not Just a Patient, You're a Partner in Research.
This session will show the different types of research studies & most importantly, you'll learn about studies you can join right now! 115.events.synergylive.io/ag…
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Jun 12
Meet Barkley 👋 Her journey with NPH started with a routine visit & figuring out “what condition shared the initials w/ Neil Patrick Harris”. After her shunt, the impact was immediate—her walking improved & the incontinence was gone. Read her story: hydroassoc.org/people-view/b…
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Jun 10
If you’ve been putting off singing up because you aren't sure how it works, here’s your sign to give it a try!
Here's FAQs, tips & info to show just how easy it is. No purchases. Just quick, anonymous feedback that supports HA.
bit.ly/HXC-HYDRO-26 or text "Hydro" to 90412
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Want to deep dive into Congressional and legislative issues that impact the hydrocephalus community? Join us for our quarterly Advocacy Update this Wednesday, March 11, 7:00 pm ET!
us02web.zoom.us/meeting/regi…
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Bonus incentive alert! 🚨
Complete 25 HundredX surveys by June 7 for a chance to win an HA Crossbody Bag! 🎉 We'll randomly choose 3 winners from everyone who reaches the goal.
Get started: bit.ly/HXC-HYDRO-26
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Hydrocephalus Assoc. retweeted
Jun 4
I was humbled to be invited to give a lecture for and start building together with you.
if we commit to unlocking data to serve our patients and global community, the next twenty years of our field will be more powerful than we can imagine.
This is an intense work of partnership - with industry, with hospitals, with patients and advocates like @HydroAssoc , and with our global surgical community.
As we reflect on an incredible month following the AANS Annual Scientific Meeting 2026, we simply want to say thank you. 🧠✨ Thank you to every member, student, resident, physician, speaker, sponsor, volunteer, partner, and supporter who helped make this year’s events hosted by the American Society of Black Neurosurgeons so impactful.
The momentum from AANS 2026 continues — and we’re just getting started. 💫
#ASBNOrg #ASBNEvents #ASBNConnect #AANS2026 #Neurosurgery
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Puberty is a normal part of growing up. But for some children wi/ hydrocephalus, it can begin earlier. This is known as precocious puberty. Our latest article explores the connection between hydrocephalus & precocious puberty. Read the article here: hydroassoc.org/precocious-pu…
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Thank you, Codman Specialty Surgical, a division of @integra_life, for your support of #HACONNECT 🥳 With your help, we can change the future of hydrocephalus!
Register for our National Conference on Hydrocephalus today: hydrocephalusconference.org/…
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June is Migraine & Headache Awareness Month, a time to raise awareness & share experiences! 💜🧠💙
Repost to help educate others about hydrocephalus & headache disorders. hydroassoc.org/headaches-cau…
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Starting TODAY through June 30, every quality opinion you share with HundredX™ can generate up to $1.60. By completing 75 pieces of feedback, you can personally earn $120 for HA!
Grab your phone, start tapping through surveys, and help make an impact: bit.ly/HXC-HYDRO-26
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May 30
Read the May edition of The Scoop on Capitol Hill for updates on the latest conversations happening around health care affordability, prescription costs, telehealth access & medical research funding. hydroassoc.org/the-hydroceph…
Don't miss our Advocacy Meeting on June 10 @ 7 pm ET
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May 29
Join us in Indy for #HACONNECT26 💙
Learn from experts, build lifelong friendships & connect w/ people who truly understand. Early access pricing ends tomorrow & Kids Camp is nearly sold out. Register now! hydrocephalusconference.org/…
youtu.be/w77ACZlZtWc?si=1h7p…
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May 28
Because of you, families living w/ hydrocephalus can find care, connection & resources when they need them 💙
As our Spring Appeal comes to an end, there’s still time to make an impact & help build a brighter future for families everywhere.
Donate: bit.ly/4tXAfl3
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May 26
Meet Ethan 👋 At just 1 week old, he received a VP shunt that lasted 14 yrs. Through delays, therapies & milestones on his own timeline, Ethan has met every challenge with humor & heart! Read his story here: hydroassoc.org/people-view/e…
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May 25
Our HundredX Kick-off Party is THIS Wednesday at 7 PM ET 🥳
Join us for giveaways, early access to surveys, music, community & a fun night with your favorite HA staff 🎉
Best part? We’ll wrap in under an hour — so don’t miss it! 🤑
hydroassoc.org/event/hundred…
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May 24
Only 1 week left to save with Early Access Pricing for HA CONNECT26! Register today to lock in discounted rates before prices increase: hydrocephalusconference.org/…
We’re thankful for Indiana University & their support of our National Conference on hydrocephalus!
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May 23
You asked for more local hydrocephalus events, and we’re bringing them to you!
If you’re within driving distance, join us for one of our FREE Education Days:
📍 Chicago: May 30
📍 Durham: June 6
📍 Cincinnati: June 27
Registration is open: hydroassoc.org/local-educati…
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May 21
Meet #HACONNECT26 Speaker Sarah Curci, PhD 👋 You won’t want to miss her session on handling anxiety & depression.
May is Mental Health Awareness Month & HACONNECT is bringing multiple sessions focused on mental well-being. Register today! bit.ly/4n21klg
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May 20
What happens before, during, & after shunt revision surgery? Our latest article explains why revisions are needed, what recovery looks like, & more to help patients, caregivers, & supporters feel informed & prepared. Read more: hydroassoc.org/shunt-revisio…
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