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Idiopathic Hypersomnia Day – 13 June 2026.
More information visit:
hypersomnolenceaustralia.org…
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Modafinil/Armodafinil, birth control and pregnancy.
Our article explains what is currently known, why these warnings exist, and why awareness matters.
Read more here:
hypersomnolenceaustralia.org…
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“Why is my Dex not working?”
One day your medication seems to work — and the next it feels like it’s doing nothing at all.
Our article explores some of the reasons this may be the case:
hypersomnolenceaustralia.org…
#IdiopathicHypersomnia #Narcolepsy #Dexamphetamine #Vyvanse
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Hypersomnolence Australia retweeted
CHF welcomes @Hyper_Sleep as a new Associate Member. Working to improve the lives of those living with complex neurological sleep-wake disorders including idiopathic hypersomnia and narcolepsy.
To know more about becoming a CHF Member, visit our webpage: chf.org.au/get-involved/memb…
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Top Tips for Living with Hypersomnia #narcolepsy #IdiopathicHypersomnia
hypersomnolenceaustralia.org…
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Idiopathic Hypersomnia is more than just sleepiness. Many people living with IH experience significant cognitive dysfunction (“brain fog”), problems with memory/concentration, slowed thinking, confusion and much more >
hypersomnolenceaustralia.org…
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Diagnosis to Aftercare.
A practical resource for treating doctors of individuals with #IdiopathicHypersomnia and #Narcolepsy, with a strong focus on patient support, communication, and medication management.
hypersomnolenceaustralia.org…
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The next Living with Idiopathic Hypersomnia Catch-Up
📅 Wednesday 20 May - TOMORROW!
⏰ 6:30pm AEST
Our community groups offer a friendly, safe and supportive space to share your experiences and challenges with others who understand.
More info:
🔗 hypersomnolenceaustralia.org…
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Narcolepsy Type 1 - Treatment Update
The TGA has now granted both Orphan Drug designation & Priority Review status for Takeda’s oveporexton for NT1 in Australia.
It is exciting to see movement within the Aust regulatory system.
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Idiopathic Hypersomnia Day (IH Day) – 13 June 2026
This year’s theme: Where in the World is Idiopathic Hypersomnia?
Join the campaign: shorturl.at/MByHP
For more information about IH Day, and graphics to share, visit:
hypersomnolenceaustralia.org…
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🔔 New research: Sleep regulation is disrupted in Idiopathic Hypersomnia
A new study in SLEEP provides evidence to support bringing back the distinction between IH with and without long sleep rather than treating IH as one single condition.
academic.oup.com/sleep/advan…
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Researchers from The University of Queensland are currently recruiting people with narcolepsy and idiopathic hypersomnia to take part in co-design workshops. If you’re interested, you can read more and complete an expression of interest form here: uniofqueensland.syd1.qualtri…
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Announcing the Illuminate Brain Fog initiative!
Share your experiences with brain fog through a series of short, personalized surveys. Your input will help improve research & clinical care for those living with narcolepsy & idiopathic hypersomnia - sleepconsortium.org/illumina…
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Idiopathic Hypersomnia & Narcolepsy Resources.
Our resources bring together reliable information, practical guidance, and lived-experience perspectives for people living with idiopathic hypersomnia and narcolepsy, & those who support them.
Resource hub:
hypersomnolenceaustralia.org…
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Building a Global IH Community: Michelle Chadwick on Advocacy, Awareness & Australia’s challenges youtu.be/GruDD-9oI44?si=QHep…
#IdiopathicHypersomnia
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If you’ve noticed any changes, including reduced effectiveness or new side effects - please share your experience.
forms.gle/znS8oEP4pwgef8rx8
This information is critical to understanding what’s happening in the real world and strengthening advocacy for safe and effective access.
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We are also interested in hearing from anyone in Australia who has been prescribed sodium oxybate (any brand) but is having difficulty accessing it. If you feel comfortable you can share your access experience in the comments or via email at info@hypersomnolenceaustralia.org.au
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After 13 years, Idiopathic Hypersomnia Awareness Week (2013–2025) is concluding.
What began as a small community-led initiative became a global awareness effort.
Thank you to everyone who helped grow this movement. Michelle Chadwick
Advocacy & Awareness continues!
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The next Living with Narcolepsy Catch-Up
📅 Wednesday 4 March
⏰ 6:30pm AEST
👉 Register here (one-time only):
forms.gle/wzhsYSqE92LxVXEd6
Questions? Email us:
info@hypersomnolenceaustralia.org.au
More info about our Living with Narcolepsy community group
hypersomnolenceaustralia.org…
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This isn’t breaking news for those living with Idiopathic Hypersomnia.
But it is encouraging to see researchers acknowledge that awareness and appreciation of the full 24-hour nature of IH is lacking within the medical community.
link.springer.com/article/10…
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