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GlobalSkin @IADPO

The International Alliance of Dermatology Patient Organizations is a global voice for skin patient-centred research, advocacy & support.

Joined October 2015
  • Tweets 2,795
  • Following 681
  • Followers 2,797
1,629 Photos and videos
🌍 #IAAD2026 | Proudly in My Skin: Celebrating All Skin Tones June 13 is International Albinism Awareness Day! Join us in challenging myths, discrimination, and exclusion while promoting inclusion, equality, and human rights. 🔗 facebook.com/GlobalAlbinism 🤍 #Albinism
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☕ Join the GlobalSkin-Europe Summer Coffee Chat! On June 19 at 13:00 CET, we'll come together for an informal conversation to connect, exchange ideas, and strengthen our community across Europe. We look forward to seeing you there! #GlobalSkinEurope #PatientAdvocacy
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🌟 #FollowFriday Spotlight: My Skin Global! Promoting skin positivity, self-love, and ending harmful skin bleaching practices in the #US and #Kenya. ➡️ Challenges colorism ➡️ Educates communities ➡️ Builds partnerships for change 🔗 myskinglobal.com #GlobalSkinMembers
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On June 18, we're hosting the #GlobalSkin #AtopicEczema Community #CoffeeChat with Špela Novak of Slovenian Atopic Dermatitis Association. We'll discuss confidence in #advocacy, imposter syndrome, #networking and #leadership. Members: check your email for the registration link.
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🎓 Applications are open for the 2027 GlobalSkin Patient Expert Scholarship! Supporting 15 patient leaders to join the EUPATI Patient Expert Training Program. Funding includes course fees, graduation costs, and travel support. Apply by June 22, 2027. 🔗 Check your inbox!
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☕ Upcoming GlobalSkin YPL Coffee Chat! 📅 24 June 2026 | 🕛 12 PM EDT Join young patient leaders to explore how awareness days can drive advocacy and community engagement. Featuring Loise Bonyo. Check your inbox for details and links! #YoungPatientLeaders
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Voting is officially open for the 2026 GlobalSkin Board of Directors Election! Full Members: check your inbox for your voting link and relevant guidelines. Cast your vote by June 19, 2026. #GlobalSkin #BoardElection #Governance #BoardofDirectors
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☕ Join the next GlobalSkin RareDERM Community Coffee Chat on June 12 at 3:00 PM CET! Connect with peers, share ideas, and explore practical approaches to stakeholder engagement, community-building, and patient support. 🔗 Details are in your inbox! #RareDERM #RareDisease
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🌟 #FollowFriday Spotlight 🌟 This week, we’re highlighting Corporación Albinos Chile - an organization dedicated to supporting people with albinism, raising awareness, and promoting inclusion and understanding in #Chile. ✨ Why Follow This Organization? ➡️ They provide inform
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#GlobalSkin’s #PRIDD Measure was honored to receive the Systematic Meaningful Patient Engagement Award at the 2026 #MadeWithPatients Awards in Seville, Spain yesterday. Congratulations also to Board Director Ritu Jain on receiving the Jury Special Award!
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☕ Join the GlobalSkin-Europe Summer Coffee Chat on June 19 (13:00 CET) and connect with fellow members across Europe. 📣 Member Event in Vienna: Sept 29 💶 14 travel bursaries available 🗓️ Apply by June 26 🔗 Details are in your inbox!
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📣 Save the Date: UNITE 2027! In one year, GlobalSkin Members will gather in Montreal, June 3–5, 2027, for connection, collaboration, and action. Join peers from around the world to learn, share, and help shape the future of skin patient advocacy. #GSUNITE2027 #GlobalSkin
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June 1-7 is Hidradenitis Suppurativa (HS) Awareness Week. HS is a chronic inflammatory skin disease that can significantly impact physical health, mental wellbeing, employment, and quality of life. Learn more: bit.ly/3QiyyRf
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The 2026 #GlobalSkin AGM is taking place June 23 and all relevant documents can be found in Members-only area. Also, profiles of eight candidates running for Board of Directors this year are now available. Details in your inbox. #AGM #BoardElection #Governance
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#GlobalSkin is at #PEOF2026 in Sevilla this week. CEO Jennifer Austin joins the panel “Elevating the Value of Patient Experience Data,” while Allison FitzGerald serves on the Organizing Committee. Together, we're advancing patient-centred healthcare. #PatientEngagement
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🌟 #FollowFriday 🌟 Spotlight: Psoriasis Canada @PsoriasisCan1 an org that Supports Canadians impacted by #psoriaticdisease through education, advocacy, resources & community connection. Learn more: psoriasiscanada.ca #GlobalSkinMembers #SkinAdvocacy #PatientAdvocacy #Der
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The May edition of the Members Matter Bulletin is here! Members, check out your inbox for the bulletin. Not yet a member? Join the #GlobalSkin community and connect with dermatology patient leaders from around the world. Learn more at globalskin.org/member-commun…. #Dermatology
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GlobalSkin is excited to attend #WCRSD2026 in Versailles, France, July 1–3, 2026! We look forward to seeing you there. Register for the congress here: bit.ly/4tYDJno #GlobalSkin #RareDisease #Dermatology #WCRSD
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🌟 #FollowFriday Spotlight: @TheEDSociety, an org that supports people affected by #EDS & #HSD through advocacy, education, research & community connection in the #UK and beyond. Learn more: ehlers-danlos.com/ #PatientAdvocacy
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Today in Geneva, #GlobalSkin joined the @ILDSDerm , @Anesvad, @ILEPAntiLeprosy, and representatives from Côte d’Ivoire and Togo to co-host an official side event titled “From Resolution to Action: Implementing the Skin Diseases Resolution WHA78.15” at #WHA79
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