We fight for patients' access to provider-administered therapies, so you can get back to enjoying your life. Learn more 👇
Joined September 2020
- Tweets 1,102
- Following 99
- Followers 687
- Likes 115
816 Photos and videos
Thyroid Eye Disease has a strict, active window before vision loss becomes permanent. Yet Julie's insurer forced a 7 month delay in treatment, risking her eyesight. 🚫👁️
Watch her video: zurl.co/4MMYb #TEDAwareness #iafchampion
1
3
Stasha waited 20 years for an RA diagnosis, losing her science career to insurance delays and forced "non-medical switching." 🚫💔
Watch her story on why we must give medical control back to doctors: zurl.co/h6bWE #ArthritisAwareness #iafchampion
1
26
TICKETS ARE 80% SOLD OUT! 🚨 Seats for our upcoming Toast event are disappearing fast, and you do not want to miss this celebration. Grab your tickets before they are completely gone! 🥂✨
zurl.co/cJVr3
1
12
Sheldon's insurer called her IVIG treatment "not medically necessary," forcing her family to pay $60k out-of-pocket to keep her limbs from feeling "on fire." 🚫🔥
Watch her powerful video and help us fight prior auth abuse: zurl.co/f97Ug #iafchampion #Neuropathy
3
44
The Infusion Access Foundation thanks @GovofCO for signing SB 167 into law, improving healthcare affordability for Coloradans by ensuring that out-of-pocket prescription drug costs count toward patients’ annual cost-sharing limits.
1
23
It’s #VisionRehabilitationWeek, June 8-14. Spread the word with zurl.co/CrVL6 about life-changing programs for those living with blindness & low vision. Learn more zurl.co/fi90T. #blindness #lowVision @visionservea
ALT Image of a child using specialized teaching tools. Text that reads ‘Vision Rehabilitation Week June 8-14, Vision Rehabilitation programs increase safety, confidence, & independence for people living with blindness and low vision!’ VisionServeAlliance.org/VRW
1
2
16
As the #TXLege examines health care affordability, remember: keep your focus on Texas patients. True reform includes tackling tactics by insurers and PBMs that drive up patient costs, reduce access to care and treatments, and ultimately hurts patient outcomes. #TX4HealthAccess
1
97
The heat is rising for Toast 2026! Are your sequins ready for Vegas? 🪩
Watch the promo video to catch the fever and get pumped for the ultimate NICA kickoff at the Fontainebleau!
Register here 📺👇
zurl.co/laBbX
#TOAST2026 #NICA2026 #NICA
2
41
We are beaming with pride to share our 2026 Champion videos! Hear the incredible, resilient stories of patient advocates fighting for access.
Watch here:
🌐 On our website: zurl.co/pBAV7
🎥 On our YouTube Channel: zurl.co/8dpwf
#PatientVoice #iafchampion
1
15
After 9 years of misdiagnosis, D'Andre was diagnosed with HS alongside Crohn's. For #HSAwarenessWeek (June 1-7), she’s sharing her fight.
No one should choose between health & financial survival. #InfusionAccessFoundation #iafchampion
zurl.co/EHPdd
2
38
HS is a painful, heavily stigmatized condition. For #HSAwarenessWeek (June 1-7), watch Jawan’s video on his battle to get his biologic infusions approved.
No one should have to fight their insurer for the care their doctor prescribed.
zurl.co/RTcpc
2
64
Sarah was a ballet dancer whose world stopped when #MS took her ability to walk. 🧡 Now she’s an author & advocate fighting the step therapy delays that cause relapses. 🏛️💪
Wellness isn't perfection; it’s presence. #WorldMSDay #InfusionAccessFoundation #iafchampion
1
160
"Gout saved my life." Amy’s diagnosis led to catching her cancer early, but misdiagnosis cost her decades of pain.
Now she’s an advocate fighting insurance hurdles like step therapy to keep patients in the chair. 🏛️💪
#GoutAwarenessDay #InfusionAccessFoundation #iafchampion
3
91
Today is #SafeStepAct Call-In Day! The Infusion Access Foundation urges advocates to contact Congress in support of the Safe Step Act.
Patients deserve timely access to treatment without harmful delays.
Take action today: zurl.co/heJw0
1
18
Stasha spent 20 years waiting for a diagnosis. By the time she got her Rheumatoid Arthritis answer, the insurance "fail-first" game had already cost her a career in science.
Medicine works—but only if you can access it.
#AiArthritisDay #iafchampion #ArthritisAwareness
1
33
D'Andre spent 25 years navigating Crohn’s & HS. 💜 From losing 50lbs at age 12 to fighting predatory Copay Accumulators as a mom, she’s a warrior for access. 🏛️💪
#iafchampion #WorldIBDDay #InfusionAccessFoundation
1
6
77
At recent congressional hearing, members highlighted several policies to lower hospital prices, including addressing the #340B program through #340BReform. zurl.co/19LLQ
1
1
68
“Big 3” #PBM announces replacement of its traditional rebate model with a transparent, fee‑based structure. More here on this growing #PBMReform trend. zurl.co/uBqAl
1
33
We are thrilled to see so many leaders sharing their "I’m Attending" graphics for Toast 2026! When you post yours, you aren’t just announcing your trip to Vegas—you’re showing your support for the IAF and the future of our programming. Register today! zurl.co/u9fls
1
31
Sheldon’s insurer called her IVIG treatment "not medically necessary." 🚫 Her parents have paid $60k out-of-pocket to prove them wrong & keep her walking. 🏛️🔥
#NeuropathyAwarenessmonth #InfusionAccessFoundation #iafchampion
2
23