ICUsteps is run by ex-patients, relatives and intensive care staff to support patients and families through the long road to recovery from critical illness.
Joined February 2011
- Tweets 47,347
- Following 1,117
- Followers 8,878
- Likes 167,893
92 Photos and videos
#MyRehabGoals for #ICURehabDay25 Recovery from critical illness can take up to 18 months. People need support and rehabilitation to enable them to thrive after critical illness, not just survive.
Goal setting is crucial in rehabilitation.
icusteps.org/rehabilitation
2
6
17
2,535
New ICU support pathway for family and friends - mailchi.mp/265c4481e626/fbe6…
202
Family involvement in ICU care activities - mailchi.mp/cecddb39d7c0/fbe6…
4
8
1,396
Help Shape the Future of Intensive Care Research - mailchi.mp/94dd8018096d/fbe6…
1
1
130
Using routine data to improve quality of care - mailchi.mp/ee7c683cd01f/fbe6…
1
3
340
ICUsteps retweeted
Jan 20
Effects of The Caregiver Pathway intervention on symptoms of post-intensive care syndrome among family caregivers to critically ill patients: long-term results from a randomized controlled trial tinyurl.com/2a2ubv54 #icurehab #A2Fbundle
7
9
698
ICUsteps retweeted
Planning a summer holiday this year?
More and more holiday providers are recognising the needs and preferences of disabled travellers - but a little forward planning can still make all the difference.
Have you travelled after a brain injury? We’d love to hear what worked for you (or what you wish you’d known). Share your experiences in the comments.
2
3
291
ICUsteps retweeted
Jan 19
How to cut your risk of dementia, from head to toe inews.co.uk/inews-lifestyle/…
#Alzheimers #dementia #health #wellness
16
25
573
ICUsteps retweeted
Our Family & Friends Drop-in is today @ 8pm
We're here to help you whenever you feel you need it most We're a friendly group who'll listen without judgement & share the benefit of our experiences with you - we sometimes even laugh too
Email info@cc-sn.org for more details
2
1
139
ICUsteps retweeted
Jan 21
Useful facts on Alzheimer's Disease. Note especially the huge contribution that carers make.
1
3
281
ICUsteps retweeted
🧸 What does child-centred care look like after PICU discharge?
When children leave PICU, care does not end at discharge. Parents’ experiences reveal what partnership truly means.
🔗 doi.org/10.1111/nicc.70300
#ChildCentredCare #PaediatricICU
4
6
378
ICUsteps retweeted
Jan 20
We are looking into provision of #braininjury services in #Coventry and #Warwick and would be grateful if you would share this post to help us gather information/opinions.
@leamobs @covobservernews @live_coventry
1
99
ICUsteps retweeted
Jan 20
Melatonin and delirium in the intensive care units: a systematic review and meta-analysis of randomized controlled trials tinyurl.com/mrj485k6 #icurehab #A2Fbundle
3
3
375
ICUsteps retweeted
💬 "We need more neurodivergent people taking part. That's not just as participants, but also involved in designing, developing and delivering the research."
Social media influencer @neuro_lou is a co-investigator on the NIHR-funded ORIGIN programme. The programme is designing an online arts and culture platform to support mental health in underrepresented 16- to 24-year-olds, including neurodivergent young people.
Now she is encouraging more neurodivergent people to get involved in research - as both participants and by helping to design, develop and deliver studies.
Read a Q&A with Lou about her experiences at bepartofresearch.nihr.ac.uk/…
ALT A person smiling slightly, wearing a colorful jacket with a floral pattern. The background is a gradient of purple with abstract shapes in green, orange, and purple. Text quotes Lou Chandler, an ORIGIN project co-investigator. She says: “With projects like ORIGIN, neurodivergent people aren’t just participants. We’re taking leadership roles. We’re designing the research.”
1
9
14
1,333
ICUsteps retweeted
Jan 21
As the government looks to crack down on phone use in schools, this may be worrying for students who rely on their phone to check that the person they care for is ok.
This video, made by a young carer, explains why having access to a phone to contact home if needed can be so important.
10
17
551
ICUsteps retweeted
Jan 21
If you're thinking of taking up a new sport but are looking for inspiration, why not check out our top tips! The series currently includes #Football #Swimming #RugbyLeague #Golf #Running and #Hiking and they can all be viewed via our A to Z page: colostomyuk.org/information/…
ALT If you're thinking of taking up a new sport but are looking for inspiration, why not check out our top tips! The series currently includes #Football #Swimming #RugbyLeague #Golf #Running and #Hiking and they can all be viewed via our A to Z page: https://www.colostomyuk.org/information/a-z-list/ #Stoma #StomaAware
3
3
149
ICUsteps retweeted
Jan 20
We all should be using tools to detect #delirium.
But not all tools perform well in practice - some show much lower rates of detection in the real-world than in practice.
-- check tool performance -- it's not enough to implement & achieve good completion rates.
7
9
802