ISMRD is the leading advocate for families worldwide affected by a Glycoprotein & Related Storage Disease. #RareDisease facebook.com/ismrdcharity
Joined October 2011
- Tweets 18,412
- Following 1,348
- Followers 1,800
- Likes 2,822
172 Photos and videos
19 Nov 2024
Even when we are down, struggling, hurting...we can be kind and loving and caring. #ISMRD
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14 Nov 2024
As a kindness to me, would just one person Like this Tweet. It would make me smile. Pretty please with sugar!
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31 May 2023
When someone is hurting and you don’t know what to say, the words I love you are a beautiful, compassionate response.
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18 May 2023
Goodnight. Sending out BIG HUGS for anyone who needs them. ❤️
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ISMRD-Join Our Fight retweeted
9 Mar 2023
If you are struggling and having thoughts of suicide, remember that there is hope. There is help. Make it through the darkness. Call 988 or text TALK to 741741.
@afspnational #NeverGiveUp @988Lifeline
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ISMRD-Join Our Fight retweeted
22 Mar 2022
I just received word from my cardiologist that I did suffer a major heart attack with 90-95% blockage. I’ll receive an additional stent in 2 weeks called the “widow maker.” I’ll be honest I’m a little scared. Please keep me in your prayers. Thank you🙏🏼
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20 Mar 2022
Took my family to our first Comic Con. What a wonderful, fun time! Have you ever been to one?
20 Mar 2022
ISMRD is the leading advocate for families worldwide affected by a Glycoprotein & Related Storage Disease. #RareDisease
3 Dec 2021
Hey @AHS_Warranty We were wondering if you could help out our good friend @Kburr00a They have had multiple people come and work on fridge. Been without a working fridge for over 6 weeks. They have a mini fridge for the babies milk. Can you help rectify this quickly? Thanks ❤️
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2 Oct 2021
If you are reading this, I hope you are able to relax some this weekend. Take care.
ISMRD-Join Our Fight retweeted
5 Feb 2021
We’re proud to be partnering with @ISMRD on our Alpha-mannosidosis program! We’re looking for patients and families impacted by AM to contribute their de-identified medical records to help drive forward research. allstripes.com/am #AlphaMannosidosis
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