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Imagining Futures @ImaginingFuture

ESRC/Wellcome Trust research programme exploring the social and ethical implications of genomic screening in the UK. Prof Felicity Boardman, Dr Corinna Clark

Joined June 2013
  • Tweets 1,044
  • Following 1,120
  • Followers 588
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Pinned Tweet
Imagining Futures@ImaginingFuture
9 Dec 2025
So excited to be joining Nuffield Council on Bioethics as a new council member nuffieldbioethics.org/news-b…

Nuffield Council on Bioethics appoints new members to join its mission to make ethics matter   -...

Five new members will bring a range of expertise across bioethics, medical and social science, politics, law and communications.

nuffieldbioethics.org
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Come and join us :D
SERGNetwork@SergNetwork
May 11
📣Save the Date📣our next SERG meeting will be on June 22nd at University of Oxford. Speakers include Dr Susie Weller and Dr Michelle Peter. Hybrid options available. Register here: warwick.ac.uk/serg/registerj…
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New paper: Psychosocial implications, acceptability and ethics of screening for paediatric type 1 diabetes: a systematic review and mixed methods evidence synthesis link.springer.com/article/10…

Psychosocial implications, acceptability and ethics of screening for paediatric type 1 diabetes: a...

Diabetologia - Paediatric population screening for type 1 diabetes is emerging internationally. It is critically important to understand the acceptability of screening to inform these initiatives....

link.springer.com
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Wonderfully thoughtful piece on the social and ethical implications of screening for type 1 diabetes by @mj_randell jmepb.bmj.com/content/2/2/e0…
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New paper from our team: views of the UK public, families and adults living with SMA, health professionals and families offered screening towards newborn screening for SMA @SMA_NBSalliance @SMA_UK_ @Corinna_Clark_ nature.com/articles/s41431-0…

Acceptability of newborn screening for spinal muscular atrophy: views of the UK public, screened...

European Journal of Human Genetics - Acceptability of newborn screening for spinal muscular atrophy: views of the UK public, screened families, health professionals and the SMA community

nature.com
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📢New paper 📢Mapping the benefits and harms of antenatal and newborn screening prog... sciencedirect.com/science/ar…
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Felicity Boardman talking about ethical considerations in newborn screening programmes @ Adelphi Genetics Forum Oct 25 youtu.be/GxPzKcZr9ww?si=Ph-m… via @YouTube

Ethical considerations in screening programmes

From the Adelphi Genetics Forum 2025 conference

youtube.com
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📢new paper involving the If team 📢bmjmedicine.bmj.com/content/…

Challenges in evaluating whole genome sequencing for newborn screening: series of systematic...

Objective To evaluate systematic review approaches to synthesising evidence for policy advisers who are considering whether to screen newborns for hundreds of rare diseases using whole genome...

bmjmedicine.bmj.com
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📢new paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet‐specific autoantibodies - Faustini - 2025 - Diabetic Medicine - Wiley Online Library onlinelibrary.wiley.com/doi/…

Diabetic Medicine | Diabetes UK Journal | Wiley Online Library

This comprehensive validation and acceptability study shows dried blood spot sampling can be used as an alternative to serum for use with the 3-screen assay for population type 1 diabetes autoantib...

onlinelibrary.wiley.com
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📢New Paper Involving IF Team: a systematic review on the attitudes of individuals with/at risk of adult-onset genetic conditions on reproductive genetic testing📢 onlinelibrary.wiley.com/doi/…

The attitudes of individuals with or at risk of adult‐onset genetic conditions on reproductive...

Individuals who carry a genetic variant for a genetic disease can access reproductive genetic testing in order to prevent the transmission of the gene variant to their children. This systematic...

onlinelibrary.wiley.com
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Great time presenting IF study findings at #ESHG2025 today :)
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📢 New paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet-specific autoantibodies onlinelibrary.wiley.com/doi/…

Diabetic Medicine | Diabetes UK Journal | Wiley Online Library

This comprehensive validation and acceptability study shows dried blood spot sampling can be used as an alternative to serum for use with the 3-screen assay for population type 1 diabetes autoantib...

onlinelibrary.wiley.com
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So great to see this collection come together! After a fascinating few days at @Fond_Brocher in the summer of 2023, we now have an edited collection of papers addressing the question of severity and its uses in genomics nature.com/collections/jiagg…
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How to use the QRDC guidance for remote qualitative studies 👇
QRDC Study@QRDC_Study
14 Mar 2025
What is the QRDC guidance and how could it help you design your remote qualitative study? See here: warwick.ac.uk/fac/sci/med/re…
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New Paper: Special Issue in EJHG on Severity. What started as a @Fond_Brocher workshop in the summer of 2023 is now a wonderfully rich and diverse collection of papers spanning policy, practice and lived experiences: doi.org/10.1038/s41431-024-0…

Editorial: severity in a genomic age

European Journal of Human Genetics - Editorial: severity in a genomic age

nature.com
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New paper: comparing in-person and remote qualitative data collection @JulieRoberts12 @sophie_stan2 @Corinna_Clark_ @fegriffiths
QRDC Study@QRDC_Study
24 Jan 2025
📣New paper from QRDC project 📣“Comparing In-Person and Remote Qualitative Data Collection Methods for Data Quality and Inclusion: A Scoping Review” is now published and is available at doi.org/10.1177/160940692513…
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New Paper: #JMIR #Preprint: Advances in newborn screening: development of an online scenario-based tool to enable research participation and public engagement. preprints.jmir.org/preprint/… #digitalhealth via @jmirpub
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Imagining Futures retweeted
QRDC Study@QRDC_Study
21 Nov 2024
New article on the QRDC guidance: ncrm.ac.uk/news/show.php?art… @NCRMUK @JulieRoberts12 @ImaginingFuture @sophie_stan2 @chinwe_onuegbu

NCRM News | How our new guidance tool can help with remote qualitative research

In recent years, the use of remote methods by qualitative researchers has become commonplace. The COVID-19 pandemic forced researchers across the globe to rapidly convert their face-to-face methods t

ncrm.ac.uk
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Imagining Futures retweeted
Corinna Clark@Corinna_Clark_
13 Nov 2024
SERG meeting registration now open for our London meeting (25th Nov) warwick.ac.uk/fac/sci/med/re… @SergNetwork @ImaginingFuture @JaneChudleigh
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Imagining Futures retweeted
SERGNetwork@SergNetwork
12 Nov 2024
📣Save the date! Next SERG meeting Mon 25th Nov 10:00am, Friend's House, Euston Rd, London. Hybrid available. Focus: Newborn screening for rare diseases. Speakers @CelineLewis23 (generation study) @JaneChudleigh (SCID pilot) sign up details to follow📣
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