3 years ago our son went to hell and back and won! We nearly lost him but thanks to his medicinal cannabis his life is transformed. There is a charity that helps kids like Ben fund their medicine. If you can spare anything please use the link in the comments and donate ❤️❤️❤️❤️
Purple Day for Epilepsy Awareness! 💜 Meet Murray, a brave boy with Doose Syndrome, now seizure-free and thriving in school after fighting for vital cannabis oil treatment. Let’s advocate for access to care for all! #PurpleDay#Epilepsy#HopeForChangeintractable.org.uk/epilepsy-…
The aftermath of having a seizure is sometimes described as experiencing post-workout pains and can cause sufferers to feel muscle aches. So, to replicate that feeling, we are challenging you to participate in our “100 miles to stop 100 seizures” campaign
justgiving.com/campaign/100m…
Alf, diagnosed with epilepsy 8 years ago, faces severe seizures and hasn't been to school since March 2023. We're fighting for access to medicinal cannabis, which could transform his life. Read the full story below.
#PurpleDay2025#EpilepsyAwarenessintractable.org.uk/donate-1
Whether you're a seasoned runner or a beginner, this is your chance to get active, challenge yourself, and make a difference. Sign up to raise funds for charity while improving fitness and spreading awareness about epilepsy. Every step can change a life!
justgiving.com/campaign/intr…
💜 Today, we celebrate Purple Day for Epilepsy! Ben's seizures dropped 98% thanks to medical cannabis. He’s thriving, but access in the UK is limited. We fight for change with other End Our Pain parents! #PurpleDay#EpilepsyAwarenessintractable.org.uk/epilepsy-…
Look at how many times the UK government and independent health professionals said cannabis medicine was beneficial for our children. Yet they refuse to fund it.
Now @UKLabour are doing the same after pretending to be supportive for years.
#TikTokvm.tiktok.com/ZNdJE772T/
Ben's hospital stay cost the NHS over £21,000 in two weeks, while his medicinal cannabis, which keeps him out of the hospital, is only £1,000. Why are families still paying for life-saving treatments that the NHS should fund?
Parents expose six-year failure to implement life-saving medicinal cannabis law
@JoanneGriffith5, mother of a child with severe epilepsy, is spearheading a campaign to expose government failures to provide medicinal cannabis @End_Our_Pain#EndOurPain 👇
thecanary.co/uk/news/2025/02…
This International Epilepsy Day, we invite families affected by intractable epilepsy to share your experiences with medicinal cannabis. Your stories can help others facing similar challenges. Join us in raising awareness! #InternationalEpilepsyDayintractable.org.uk/
End Our Pain parents have been highlighted in the BBC Sounds documentary, revealing the desperate measures they take—paying for dual prescriptions to access cheaper medication abroad. Listen here: [BBC Sounds Documentary](bbc.co.uk/sounds/play/m0026v…). We're eager to meet and discuss these critical issues to move this situation forward. #EndOurPain#HealthEquity#VoiceForChange
🚨 Urgent call to action! @wesstreeting and @LaylaMoran "End Our Pain" campaign has repeatedly urged for the reinstatement and review of observational trials shelved in 2021. As a campaign group, we feel ignored and unheard. Our recent push in December 2024 is met with silence.