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Kares Foundation @KaresFoundation

Improving the lives of those affected by KDM5C genetic variants through Advocacy, Research, Education & Support 🧬 linktr.ee/karesfoundation

Joined February 2022
  • Tweets 569
  • Following 471
  • Followers 156
455 Photos and videos
We just earned our Platinum Seal of Transparency from @CandidDotOrg! Keep up with our accomplishments on our #NonprofitProfile 🏆💜 app.candid.org/profile/14050…

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Give our Rare Disease Day fundraiser some support! Order by Feb 4 to represent with us on #RareDiseaseDay #Feb28 customink.com/fundraising/ka…
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Early Bird Registration is now open for the 2026 #KARES Family & Science Conference. Join us in Ann Arbor at @UMich @Iwase_Lab 💙 #KDM5C 🔗 For info, travel stipend app (due Jan 31), & registration visit: kares.foundation/conference

Family & Science Conference | Join the Conversation Today — KARES Foundation - KDM5C Advocacy,...

Join the 2026 KARES Family & Science Conference in Ann Arbor for community building, research sharing, and family support around KDM5C genetic variants.

kares.foundation
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Kares Foundation retweeted
Iwase Laboratory@Iwase_Lab
22 Sep 2025
In honor of the @KARESFoundation 5K race this weekend, we're highlighting #KDM5C all week. Over the next 5️⃣ days we'll share a 🧬 fun fact, 🥳 major milestone, or 🤓 research review about one of our favorite genes. Stay tuned! Follow #KARES5K & this thread for all the details ⬇️
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🌟Funding Opportunity!🌟 #chromatin #kdm5c #raredisease
National Organization for Rare Disorders (NORD)
@RareDiseases
9 Sep 2025
The @KaresFoundation is offering grants up to $40K to support research on #KDM5C genetic variants. Submit a 1–2 page Letter of Intent (LOI) to info@kares.foundation by Sept 30. LOI should include: - Scientific aims - Rough timeline - Rough budget - Direct impact on KDM5C community Select applicants will be invited to submit full proposals due Nov 2025. Questions? ➡️info@kares.foundation kares.foundation/grants #ResearchGrant #Genetics
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⏳ Only 1 week left to register for the 2025 KARES 5K: My Race, My Pace and receive your T-shirt! You’ve got until Sept 5 to be sure we have time to print and ship your swag! 🔗 runsignup.com/kares #KARES5K #MyRaceMyPace #KDM5C #RareDiseaseAwareness
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✨ Shout-out to our amazing teams making moves for KDM5C research: 💙 Team Jax 🌸 Endearing Ellie ⚡️ Bolt 4 Bryson 💜 Team J Walk, roll, skip, bike, or dance—however you move, it matters. 👉 Register today and show your support! Runsignup.com/kares
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🚨 2 weeks left to register for the 2025 #KARES 5K: #MyRaceMyPace! 🏁 and guarantee your complimentary T-shirt and swag. This is your chance to move at your own pace and make an impact for KDM5C research! 👉 Sign up today: runsignup.com/kares #KDM5C #RareDisease
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💜💚 TEAM SHOUT-OUT! 💚💜 A huge THANK YOU to our incredible #KARES5K teams – Jack’s Pack, Porter Proud, KDM5C Researchers, and Julian’s Journey – for showing up and making a powerful impact! 🏃‍♂️🏃‍♀️💥 See all our teams or sign up to join at: runsignup.com/kares 💪
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📌 5K funds help move #KDM5C research forward! In 2024, the Krawczyk Lab received a KARES grant to tackle a major challenge in the field: functionally characterizing KDM5C #VUS Every donation makes research like this possible Give today at: runsignup.com/kares #KARES5K
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📌 Our 5K funds help make real impact—both in the lab and in life. Your generosity helps provide: ✨ Travel stipends for families 🎉 A special community outing 🤝 Meaningful connections between families and scientists, and more! Give today: runsignup.com/kares
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🏃‍♀️ Why do we race? 🧬 Because research needs funding—especially with federal cuts looming. Your support of the KARES 5K helped fund a $30K grant to Dr. Weksberg’s lab @SickKidsNews to study a diagnostic biomarker for KDM5C. 📌 Every dollar helps: runsignup.com/kares
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📢 Families and caregivers! Join us tomorrow at 8PM EST for our July Book Club series!📖 We will be discussing Amanda Griffith-Atkin's new novel: "How to Handle More Than You Can Handle: Caring for Yourself While Raising a Disabled Child" Register here: us06web.zoom.us/meeting/regi…
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As the month of July comes to a close, so does Disability Pride Month but let’s be clear: Disability Pride doesn’t stop here. 💪 Disabilities can be visible or invisible, and it is important to remember that the challenges that come with invisible disabilities are real.
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80 patients have joined the KDM5C data program. Have you? Help us turn your story into science, and reach our 2025 goal of 100 patients enrolled! Enroll today at rare-x.org/kdm5c 💜 #KDM5C #RareDisease #PatientData #HopeThroughResearch
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In 2024, more than 25 small businesses stepped up to sponsor the KARES 5K—contributing between $250-$5,000 to support our mission. 🙌 We need all hands and hearts on deck! 💜💜💜 Sponsor or donate today: 🔗 runsignup.com/kares
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Save the Date!!🗓️ June 26-28 2026🌟 We are SO excited for our second Family and Science Conference!! This global gathering will be held in Ann Arbor, Michigan this year! We look forward to seeing you for a weekend of unforgettable education and community building.💜
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Let’s talk consent—because how your data is used is YOUR decision When you join the KDM5C data program through RARE-X, you control your information IF you want researchers to be able to access your data, revisit your consent form & check “General Research” not just “Biomedical”
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Registration and sponsorships are now OPEN for the KARES 5K Sept 27-28, 2025! This year’s theme is MY RACE, MY PACE. You can move ➡️in any way 🏃🏽🚴🏻‍♀️🧑🏼‍🦽 ➡️at any pace 🐌🚀 ➡️from anywhere! 🌎 Register today to celebrate KDM5C Awareness Day! runsignup.com/kares
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✨Meet Sheldon - this month’s Family Spotlight! ✨ Learn about his favorite hobbies to the ways KDM5C has shaped his journey, Sheldon’s story is inspiring. 💜💚 You can also read it at: kares.foundation/family-spot…
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