This right here sends me into a deep state of hopelessness.
The last week I have been searching for educational options for Charlie. And let me tell you, they are already bleak. The system is already telling me it’s time to give up on my 7 year old. He’s 7, this is cruel!!!
NEW: The White House has pulled the expected Thursday signing of the executive order to dismantle the Department of Education, sources told ABC News. abcnews.link/gGDDGWm
.@repcleaver@senhawleypress@SenEricSchmitt Medicaid is a lifeline! People with disabilities rely on Medicaid services to support them in their daily lives. But about 711k people are waiting for Medicaid services. We need MORE funding, not less. #ProtectMedicaid and save lives!
Charlie was just 4 mo old when we knew something was wrong. It took a 1.5 yrs to finally get answers on what was wrong w/ our little boy.
Today is 5 years from receiving
Charlie’s diagnosis of #SLC6A1.
I didn’t come this far to only come this far.
#rare#cure#kids
#TurningLemonsIntoLemonade
1. Post a video of yourself sucking on a lemon slice trying not to make a funny face, if you make a face, you donate $10.
2. Donate here: classy.org/team/584853
3. Challenge: Tag 2 friends in your post
@LNEagleVB you’re up!!!
Don’t forgot today and tomorrow anyone who shops online at @KendraScott & uses this code will benefit #acureforcharlie. SLC6A1 Connect gets 20% back.
We are also hosting an in person event tonight at the KC plaza store from 5-7.
Please join us - KendraScott.com
Two things at once?!? @tkelce
Now you can finish that shopping list and help us out.
Come in to the @KendraScott location on the plaza in #KC this Thursday or shop online Thursday & Friday and 20% of sales will be donated back to #ACureforCharlie and #SLC6A1 research.
Our auction trips this year are incredible, truly some of the most gorgeous places on earth.
m.charityauctionstoday.com/m…
Trips are sold through charity booster, they have amazing reviews and give back to nonprofits like ours. #ACureforCharlie#Iphone15#Travel
A Cure for Charlie Pickleball Tournament 2023 Auction is live. Lots of trips, #KC staycations, gift certificates and more available here.
app.charityauctionstoday.com…