Helping understand the health & wealth in kids with chronic kidney disease
Joined December 2016
- Tweets 27
- Following 54
- Followers 71
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Listening to the experiences and needs of families experiencing CKD has been central to developing the NAVKIDS2 study.
Find out more: navkids2.com.au/uncategorize…
#kidneyhealth #ckd #kidswithckd @CKRRenal @BEAT_CKD @KidneyHealth
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Throwback to Dr Kerry Chen highlighting the importance of understanding the impact of CKD on children and their families. We hope that our patient navigators at NAVKIDS2 will provide much needed support to kids with CKD!
navkids2.com.au
@CKRRenal #kidneyhealth #ckdkids
28 Feb 2018
A childhood diagnosis of chronic kidney disease is the start of a difficult journey. Sadly the problems don't stop there with new research today revealing additional impacts on the brain. There are ways to help. @AngieAsimus @CKRRenal @Syd_Health @Sydney_Uni @westmeadkids #7News
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Good news! The NAVKIDS2 study will start at the end of June at the Childrens Hospital at Westmead
navkids2.com.au/uncategorize…
#kidneyhealthaustralia #kidneyresearch #patientnavigators @germjacq @Kidney_Trials @CKRRenal @BEAT_CKD @allisontong1
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The official NAVKIDS2 website is now live! Head over to navkids2.com.au to discover more about this exciting new study
#kidneyhealthinitiative #kidneyhealthaustralia #kidswithCKD #kidneyresearch #patientnavigators #navkids2 @BEAT_CKD @CKRRenal @Kidney_Trials @KidneyHealth
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Want to make research relevant and meaningful to patients and families? If you are living with CKD or if you are a caregiver we invite you to apply to join the BEAT-CKD Advisory Board - your experience and expertise are needed! beatckd.org/consumeradvisory… (closes 30th Apr)
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Kids with CKD retweeted
6 Mar 2018
1 in 3 people in Australia is at increased risk of developing kidney disease and 90% of kidney function can be lost without any symptoms. Don’t be blind by waiting until you feel sick; find out if you’re at risk by taking the test: goo.gl/NiVrzp #KHW18 #KidneyRiskTest
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6 Mar 2018
Well done team! Our researcher Dr Kerry Chen emphasising the importance of understanding the consequences of CKD on children and their families. x.com/7NewsSydney/status/968…
28 Feb 2018
A childhood diagnosis of chronic kidney disease is the start of a difficult journey. Sadly the problems don't stop there with new research today revealing additional impacts on the brain. There are ways to help. @AngieAsimus @CKRRenal @Syd_Health @Sydney_Uni @westmeadkids #7News
Kids with CKD retweeted
8 Sep 2017
Kidney disease affects 1.7 mil Australians. You
can help. Take part in @KidneyHealth’s
#BigRedKidneyWalk on 10 Sept!
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Kids with CKD retweeted
5 Sep 2017
KCAD. Maddy Didsbury. Socioeconomic impact on health perhaps greater in early stage CKD. #ANZSNASM
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5 Sep 2017
Kerry Chen presenting our teams work - kids with CKD may be performing poorer academically #anzsnasm
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Kids with CKD retweeted
5 Sep 2017
M Didsbury #anzsnasm the complex pic of socioeconomic status & health @KidsWithCKD @germjacq @JonathanCCraig
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Kids with CKD retweeted
5 Sep 2017
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Kids with CKD retweeted
5 Sep 2017
Social inequalities in health status for kids with chronic kidney disease - so much work to be done! @KidsWithCKD @CKRRenal #anzsnasm
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Kids with CKD retweeted
4 Sep 2017
QOL in children with CKD - pain, emotion, cognition impacted @ANZSNasm #anzsnasm
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Kids with CKD retweeted
4 Sep 2017
Interventions are desperately needed to improve QoL for kids on dialysis @KidsWithCKD #anzsnasm
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@camilla_hanson most frequently reported outcome in trials in kids with CKD - blood pressure. QoL only in 1% #anzsnasm
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Kids with CKD retweeted
4 Sep 2017
Interesting differences in ranking of top 10 outcomes between children with CKD and their parents @camilla_hanson #anzsnasm @ANZSN
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