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Know CF @KnowCF

A place to connect with those who are impacted by cystic fibrosis.

Joined January 2010
  • Tweets 15,958
  • Following 2,278
  • Followers 4,753
310 Photos and videos
Know CF@KnowCF
16 Nov 2024
We encourage you to continue engaging with us here, where we can still share resources, stories, and updates. Thank you for being a part of the cysticfibrosis . com community! Wishing you all the best in health and happiness, From all of us at cysticfibrosis . com
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Know CF@KnowCF
16 Nov 2024
In good news, as of now, this isn’t the end of our community! Our social media pages will remain open as a space for connection, support, and sharing among individuals impacted by cystic fibrosis.
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Know CF@KnowCF
16 Nov 2024
While it’s bittersweet to say goodbye to the forums that brought us together, we are thankful for the connections, support, and shared experiences along the way.
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Know CF@KnowCF
16 Nov 2024
Important Update: Website and Forum Closure To our valued community, We wanted to let you know that cysticfibrosis.com is no longer active & has been closed.
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Know CF@KnowCF
11 Nov 2024
Thank you for your service
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Know CF@KnowCF
5 Nov 2024
Dr. Bonnie W. Ramsey, Professor and Senior Advisor to the CFF Therapeutics Development Network, receives the prestigious 2025 American Pediatric Society John Howland Award! To read more, click here: bit.ly/3NTThpJ
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Know CF@KnowCF
3 Oct 2024
Watch the recording here: youtube.com/@CysticFibrosisF… #CureCF #CF #cysticfibrosis #65Roses #Health #Educate #Spoonie #NACFC
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Know CF@KnowCF
18 Aug 2024
From the archives of the 1990's - Oh how far we've come! Do you have interesting articles to share?! Let us know! . . . #CureCF #cysticfibrosis #65Roses #CF #Support #Educate #Hope #Fromthearchives
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Know CF@KnowCF
17 Jun 2024
Happy Father's Day to all the amazing Dads out there! #HappyFathersDay!
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Know CF@KnowCF
27 May 2024
In addition to oral food and supplements, sometimes extra help is needed by tube feedings . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Know CF@KnowCF
27 May 2024
People with CF can get a unique type of #diabetes, cystic fibrosis related diabetes or #CFRD . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Know CF@KnowCF
27 May 2024
Vitamins, minerals, and supplements are important . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Know CF@KnowCF
27 May 2024
Caring for bone health . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope #boneHealth
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Know CF@KnowCF
27 May 2024
Food is fuel! . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Know CF@KnowCF
27 May 2024
Supplemental oxygen may be necessary as CF progresses. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Know CF@KnowCF
27 May 2024
Sometimes it is necessary for someone with CF to get a lung transplant. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope #Transplant #LungTransplant #DonateLife #OrganDonation
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Know CF@KnowCF
27 May 2024
Chronic illness takes its toll. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Know CF@KnowCF
27 May 2024
Hospitals are associated with getting healthy, but sometimes an infection can actually come from the others at the hospital! . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Know CF@KnowCF
27 May 2024
CF does not impact only one system. There are several comorbidities associated with it. . . . #CureCF #CF #cysticfibrosis #sixtyfiveroses #65roses #comorbidities #Support #Educate #Hope
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Know CF@KnowCF
27 May 2024
We remember and honor those who gave the ultimate sacrifice today and every day. #MemorialDay
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