Joined June 2009
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47 Photos and videos
24 Oct 2025
LAM Actions 2025 Christmas cards are available. To order them go to lamaction.org/events/2025-ch…
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26 May 2024
Good luck and keep pedalling to Jo Pisani, who is has just completed 50 miles of her 100 mile Ride London cycle to raise funds for LAM Action. If you'd like to add to Jo's total go to: justgiving.com/page/jo-pisan…
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19 May 2024
On May 21st David Howie Scott, along with his son Louis and dear friends Ali Fraser, Angus Forbes, and James Marchant-Wink, will embark on an extraordinary adventure in the Scottish Highlands. To find out more go to justgiving.com/page/thebigfi…
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16 May 2024
The annual meeting is getting closer.
The day is a great opportunity to meet other ladies with LAM and their families, and to meet Simon, Hollie and Ali away from the LAM Centre. There will also be a raffle and a cake stall. To register email: info@office.lamaction.org
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1 May 2024
LAM Action hails a new £9.4 million research centre involving researchers from the University of Nottingham. A UK hub will connect people affected by rare respiratory diseases with clinical experts, researchers, investors, and industry leaders. bbc.co.uk/news/uk-england-no…
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19 Mar 2024
LAM Action's 2024 meeting on Saturday 8th June is at the Macdonald Burlington Hotel, Birmingham
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11 Oct 2023
LAM Action has places for Ride London 2024 - the 100 mile cycle that starts on the Embankment and heads out through the lanes of Essex before finishing on Tower Bridge. It's on Sunday 26 May and if you or your family fancy a challenge contact david.mercer@office.lamaction.org
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30 Aug 2023
Ride London 2024 - the Ballot is open. On Sunday 26th May this 100 mile cycle heads through the lanes of Essex before finishing on Tower Bridge. To raise money for LAM Action: ridelondon.co.uk/enter/how-t… or contact: david.mercer@office.lamaction.org
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24 Aug 2023
Deborah Kamis-Murphy has LAM and lives in
Hull. On Thursday 31st August Deborah has
a stall at local fete to sell items made by her knitting
and crochet group to raise money for LAM Action.
It's at The Christopher Pickering Lodge, Hessle Road,
Hull HU4 6RS between 11am and 3pm.
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4 Aug 2023
Good luck and thank you to Lucy Edmunds and her sister Sandra who will be tackling the gruelling 30-mile Mendip Way on August 9-10thto raise funds for two charities very close to their hearts.justgiving.com/crowdfunding/…
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22 Jun 2023
LAM Action's Virtual Patients' Meeting is now available to view online. Go to: lamaction.org/meetings/watch…
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2 Jun 2023
June has been designated Worldwide LAM Awareness Month. WWLAM brings together the global community in a collaborative effort to educate the world about the symptoms of LAM, support women living with LAM, and fund research into the condition.
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29 Apr 2023
Good luck to Mary-Clare Blacklaw who is taking part in the Glasgow Kiltwalk tomorrow, Sunday 30th April. Mary-Clare has a friend with LAM and is walking over 14 mile to raise funds for LAM Action.
justgiving.com/fundraising/m…
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2 Apr 2023
Sunday 23rd April is London Marathon Day. LAM Action has 8 runners taking part and they'd welcome any support we can give.
Here's the course tcslondonmarathon.com/the-ev…
So if you fancy a day out for the family put that date in your diary.
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24 Feb 2023
3.5 million people in the UK are affected by a rare condition – that’s 1 in every 17. LAM is one of the rarest conditions with only around 400 women in the UK currently diagnosed with it. lamaction.org/donate/
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19 Oct 2022
The new LAM Action Christmas cards are available. To have a look go to: lamaction.org/lampost-archiv…
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