We are the nonprofit advocating for Lambert-Eaton Myasthenic Syndrome (LEMS) patients, family, and caregivers. We're fostering Research - Advocacy - Family!
Joined September 2022
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29 Photos and videos
Our thanks go out to Desiree, Director of Patient Advocacy for the nonprofit, attending Rare Disease Day On the Hill events and representing the interests of LEMS patients everywhere!
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Thanks to Team LEMS for volunteering to get the word out at the MDA Clinical & Science Conference in Dallas this week. L to R, Grace, Lori, Tracy, and June. Thank you all!
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Team LEMS Today at the MDA Clinical & Science Conference in Dallas. Meeting everyone and talking about LEMS! L to R Grace, Lori, June, Tracy, Price.
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We were incredibly excited to have our name and logo appear in Times Square along with all these other wonderful organizations on Rare Disease Day. It's all about spreading the word!
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We're continuing to work in Washington, DC for Rare Disease Day! Desiree is working two additional days to advocate for LEMS patients.
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Packing bags and getting ready to travel to Times Square in NYC for Rare Disease Day. We will be there representing LEMS and all rare diseases at the NASDAQ stock exchange closing bell ceremony, recognizing Rare Disease Day on Tuesday.
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We had a great first Town Hall last night. If you would like, it's available to watch at our webpage, lemsfamily.org
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Now we're headed to Manhattan and the NASCAC Exchange to represent LEMS and rare diseases~
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We're sending Desiree, our Director of Patient Advocacy to Washington to represent LEMS patients and caregivers!
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