Raising awareness for #LichenSclerosus #vulvalcancer with @Vulvalcanceruk so more people can get the diagnosis they need sooner
Joined April 2018
- Tweets 3,162
- Following 2,096
- Followers 1,995
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703 Photos and videos
Pinned Tweet
20 Jun 2023
Fantastic work from Sophie and everyone involved, please watch and share to help raise awareness
19 Jun 2023
The full film is here! tinyurl.com/LS-film
This short film was created based on the real words of people with vulval lichen sclerosus (LS), interviewed as part of the 'Living with vulval LS' study at the Universities of Bristol and Warwick
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9 May 2024
Diane has always been a great supporter of ours through the years and has given both of us amazing support going through perimenopause/menopause. We were proud to be asked to contribute and review Diane’s book recently.
Well done Diane ❤️❤️❤️
Clare & Emma
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4 May 2024
NICE Guidelines...Shared decision making. Please read and print off if you are one of the many struggling to be heard by a medical professional.
nice.org.uk/about/what-we-do…
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10 Aug 2023
lsvcukawareness.co.uk/guest-…
Men are often forgotten about when it comes to LS, but they suffer too! Read one man's story of living with Penile Lichen Sclerosus
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19 Jul 2023
Great article, well done @caitsith675 and @positivepauseuk for helping to raise awareness of this condition. The petition link is in the article. Please sign and share as we only have until August to gain the 10k signatures needed ♥️
19 Jul 2023
Most common in peri/menopause, painful lichen sclerosus estimated to impact 1/70 women. Lack of awareness means under-reported/untreated. One woman’s calling for more research - sign her petition click below for 🔗
@LSclerosus @eveappeal positivepause.co.uk/menopaus…
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Lichen Sclerosus UK Awareness retweeted
19 Jul 2023
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18 Jul 2023
Just a reminder we are still selling Lichen Sclerosus and Vulval cancer wristbands if anyone would like to purchase any.
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12 Jul 2023
A short video about #LichenSclerosus #Vulva #vagina #treatments #Causes #Symptoms #steroids #moisturizer our #website and how to #contact us. I know it's a bit fast in places with the images but slowing it down didn't quite come out as hoped 🤦🏻♀️ You should be able to pause it ♥️
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Lichen Sclerosus UK Awareness retweeted
8 Jul 2023
We need the answers
We need research
We need awareness
petition.parliament.uk/petit…
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6 Jul 2023
Says a lot when we aren't allowed to use anatomically correct words for our genitalia
6 Jul 2023
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Lichen Sclerosus UK Awareness retweeted
14 Jun 2023
From Diane Danzebrink from Menopause Support
Booklet
menopausesupport.co.uk/wp-co…
Petition
change.org/p/make-menopause-…
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13 Jun 2023
Great work Sophie, can't wait to see the finished video
13 Jun 2023
I'm so delighted to share this teaser clip of a short film based on my research findings.
Full film coming next week - watch this space!
@sarahhillman26 @FinneganSusanne @warwickmed @BrsTrialsCentre @ESRC @bssvd_org @LSclerosus @VulvalCancerUK
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Lichen Sclerosus UK Awareness retweeted
24 May 2023
May 2023 the #lichensclerosus community lost a beautiful soul and fierce LS advocate. Ellen Swanborn-De Lange was the head of the LS Association in the Netherlands. Honor Ellen's memory by sharing this and reading my post on her life at lostlabia.com/ellen
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24 May 2023
Please sign and share this petition to help us reach 10,000 signatures. Thank you ♥️♥️
petition.parliament.uk/petit…
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9 May 2023
Excited 😁 the wristbands arrived today and the first lot of orders has been sent.
Ordering is via paypal.me/EmmaNorman8254 £3 each or 5 for £12
We can only ship to the UK at this time but are looking into pricing for sending to other countries.
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Lichen Sclerosus UK Awareness retweeted
7 May 2023
DVIN
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Lichen Sclerosus UK Awareness retweeted
28 Apr 2023
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Lichen Sclerosus UK Awareness retweeted
24 Apr 2023
So important for #nurses to get a great understanding of genital health for all of their clients, and sometimes even advocate for them. Being able to talk - proactively - about #SexualHealth & #Wellbeing matters can be life enhancing & life-saving!
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Lichen Sclerosus UK Awareness retweeted
24 Apr 2023
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17 Apr 2023
"I'm Fine"
How many times do we say this because it's easier then telling the truth and having to explain how much we are suffering?
There are people you can talk to. Mental health charities, GPs, counsellors and us ♥️
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