Leigh Network brings together families affected by mitochondrial illnesses at meetings, fundraisers and events! We also support research into Mito Disease.
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ALT Image: Leigh network butterfly in top right corner, top of picture is purple with white writing that reads help us win a Β£100 donation with give as you live online- a great way to raise free funds with your online shopping. White bottom with logos of various businesses including eBay, John Lewis and boots.
ALT Image: Faye wearing a Leigh network T-shirt with arms spread wide showing the stall with lots of different items on sale.
ALT Image: blue background, top left corner Mental Health Foundation, text reads Mental Health Awareness Week 13-19 May 2024, centre of image a swirling image with text in white that reads Find your moments for movement.
ALT Leigh Network is supporting Deaf Awareness Week. Thank you to Kate for sharing her tips π #deafAwarenessWeekUk2024 #HearingLoss #Mito #MitoSupport #MitochondrialDisease #CommunicationTips Text reads: So as a lip reader, my top tips are: Make sure you are in a well lit place, facing the person and not obstructing your mouth. Speak as you normally would, don't over-pronounce words or exaggerate your mouth movements. Be patient, repeat as many times as necessary, use written words or even gestures to reinforce what you are saying. Please never say "oh it doesn't matter!". Always ASK the person how best to communicate with them. They may be a lip reader, use hearing aids such as a BAHA or CI, they may prefer someone to provide BSL. They will guide you! Never talk over other people, we can only follow one person at once.
ALT Image: grey background, in pink reads Iβm supporting and then in blue reads World Autism Acceptance Week text reads 2-8th April 2024
ALT Image: Tracey smiling with the finish line behind her, Tracey is wearing a pink T-shirt, a bright yellow top tied around her waist, running trousers and has a fab medal around her neck.
ALT Yellow wristbands with purple writing Leigh network Mito support
ALT Faye and Sarah at the sale table, lots of items, pottery, picture frames, jewellery, books, clothing.
ALT Hands holding up a yellow sign with flowers at the edges, white text reads Thank you!
ALT Itβs Rare Disease Day! Although mitochondrial diseases, as a collective, are not thought to be rare, affecting 1 in 200 babies born in the Uk, the individual diseases that come under the umbrella of mitochondrial disease are. Have you heard of Leigh Syndrome, Kearns- Sayres Syndrome, MELAS, Leber Hereditary Optic Neuropathy (LHON), POLG? If not, go and read up on them - there are many others too! Even within the different specific diseases, there are variations. For instance, did you know that there are 80 types of Leigh Syndrome? Each of us is unique, with our own mountains to climb. Please share to show you care about someone with a rare disease! www.LeighNetwork.org.uk Image: white background, colourful patterns in borders, text reads I support rare disease day 29 Feb 2024 #mito #MitochondrialDisease #LeighSyndrome #RareAware #FindACure #ResearchIsKey #RareDiseaseDay2024 #POLG #LHON #KearnsSayresSyndrome
ALT Can you help our marvellous Mandy achieve her goal? As part of her special birthday fundraiser in support of Leigh Network, we want to raise Β£60. Every donation is so much appreciated and will help our fantastic families who are affected by mitochondrial disease. Thank you β€π #BirthdayFundraiser #SpecialBirthday #PerfectGift #mitochondrialDisease #mito #MitoSupport #LeighNetwork www.LeighNetwork.org.uk https://gofund.me/7c192dd7 Image: Mandy and a Faye together smiling.
ALT Image Description: background flooded with blurred out small hearts in various shades of red, some look like they are glinting. In the centre there is a green heart and below reads in black plain text, I love someone with Mito, underneath is another green heart.
ALT Image: white background with text reading We are Proud to be supporting tinnitus week 5-11th February 2024. Bottom right corner reads Tinnitus U.K. support, research, prevent.