ALT Promotional graphic from Lipodystrophy United inviting community members to participate in a nutrition Q&A with Zainab Alzoubi. The graphic features the text “Curious about nutrition? Q & A with Zainab Alzoubi” and encourages viewers to comment nutrition-related questions for an upcoming presentation. A photo of Zainab Alzoubi appears on the right side of the image. Additional text notes that she holds a Master of Science in Nutrition and Dietetics from the University of Illinois. The presentation date is listed as “TBD.” Zainab has completed both her bachelor's and master's degrees in Nutrition and Dietetics, completed a dietetic internship, and worked as a research assistant in community nutrition.

ALT Graphic from Lipodystrophy United promoting the documentary CNBC Cures: Defying Rare Disease. The image features a photograph of CNBC journalist Becky Quick smiling alongside her daughter. Text explains that Becky Quick highlights how rare disease families are driving research, advocacy, and drug development when traditional systems move too slowly, while also exploring the emotional, financial, and scientific challenges they face. A red banner at the bottom reads “Link Below!” indicating where viewers can access the documentary.

ALT Flyer from Lipodystrophy United announcing a paid research opportunity for people living with generalized or partial lipodystrophy, as well as caregivers who typically administer injections. The study is evaluating a new medical device designed to support lipodystrophy drug injections and gather feedback on how clear, comfortable, and easy the injection process is. The flyer explains that interested participants should contact Lipodystrophy United, after which the study team will conduct a phone screening and schedule eligible participants. Contact information is provided, along with instructions to include a name, phone number, and preferred callback time.

ALT Flyer from Lipodystrophy United providing details about a paid lipodystrophy research study. The study involves a single session lasting up to 90 minutes with a study moderator. Participants will review study materials, provide consent, practice a simulated injection using a training pad or skin-like model, and answer questions about the device and instructions. The flyer emphasizes that participants will not inject themselves or another person and that no active medication is used. Compensation is listed as $250 for patients and $225 for caregivers. Sessions are available in the Chicago area or at a meeting location arranged near the participant's home. Contact information for Lipodystrophy United is included at the bottom.

ALT Promotional graphic for the BIO International Convention 2026. The image features a dark blue background with a pattern of green, yellow, and blue vertical bars arranged in rows. Large white text reads “Driven by Purpose.” At the bottom, the BIO International Convention logo appears alongside event details: “San Diego Convention Center” and “June 22–25, 2026.” The graphic is being shared by Lipodystrophy United to announce attendance at BIO 2026 and interest in connecting with researchers, biotechnology companies, patient advocacy organizations, and other stakeholders in the rare disease community.

ALT Promotional graphic for the Endocrine Society's ENDO 2026 conference. The image features a photograph of a scientific poster session, with researchers and attendees standing in a large conference hall discussing research posters displayed on presentation boards. Overlaid geometric blue and teal shapes frame the image. Text reads: “ENDO 2026,” “June 13–16, 2026, Chicago, IL,” and “I Am Presenting” in large white and orange lettering. The Endocrine Society logo appears in the lower right corner, and the hashtag #ENDO2026 is displayed at the bottom left.

ALT Graphic from Lipodystrophy United announcing a new article titled “Genotype-first approach reveals monogenic lipodystrophy is underdiagnosed, with health and mortality risks.” Text below says a new study reveals lipodystrophy may be more common than previously thought and is being missed. A red DNA icon appears in the lower right corner.

ALT Graphic from Lipodystrophy United explaining that researchers analyzed genetic data from nearly 500,000 people in the UK Biobank and found monogenic lipodystrophy may affect about 1 in 15,000 people. The text notes that none of the people identified in the study had a recorded diagnosis of lipodystrophy, showing that lipodystrophy is not always obvious.

ALT Graphic from Lipodystrophy United explaining that a person may have a “normal” BMI and still have lipodystrophy, with health risks including diabetes, high triglycerides, low HDL cholesterol, heart disease, or heart failure. The text says doctors should look beyond weight, appearance, and common symptoms, and consider specialist referral and genetic testing when lipodystrophy is suspected.

ALT Graphic from Lipodystrophy United explaining that earlier diagnosis can lead to better care, monitoring, and treatment. The text also says earlier diagnosis can bring more recognition, research, resources, and support for the lipodystrophy community, ending with the statement: “Lipodystrophy is rare — but it may not be as rare as we once believed.”

ALT Lipodystrophy United graphic showing a laptop with a YouTube-style video on the screen. The video thumbnail shows Mallory in a lab setting with the title “Final Exams and a Tour of a Lipodystrophy Lab.” A red starburst says “Check it out!” Text at the bottom reads: “Watch Mallory’s tour of the LEADABC lab @malloryvideoproductions on YouTube!”

ALT Lipodystrophy United branded graphic with a red and white design. Large text reads: “Press Release. Polyendocrine Metabolic Ovarian Syndrome: New name to improve diagnosis and care of condition affecting 170 million women worldwide.” Smaller text reads: “Global effort changes the name of a significant women’s health condition that was misunderstood to be all about ovarian cysts.” The image includes medical-themed graphics of a uterus model and stethoscope.

ALT Lipodystrophy United branded graphic with text explaining that the renaming of PCOS to PMOS, Polyendocrine Metabolic Ovarian Syndrome, is more than a terminology update. The text says it represents a shift in understanding complex endocrine and metabolic disease and notes that the old name focused attention on cysts and ovaries, even though the condition can involve hormones, insulin resistance, weight, skin, mental health, fertility, and long-term metabolic risk.

ALT Lipodystrophy United branded graphic with text explaining that lipodystrophy is a rare disorder of abnormal or absent fat tissue that can cause severe insulin resistance, diabetes, high triglycerides, fatty liver disease, and reproductive or endocrine symptoms that may look like PCOS or PMOS. The text states that when clinicians focus only on ovaries or reproductive symptoms, the underlying metabolic disorder can be missed, and that a better name helps widen the lens.

ALT Lipodystrophy United branded graphic with text reading: “It reminds us to ask: Is this only a reproductive condition — or is there a broader endocrine and metabolic story?” Additional text explains that for people with lipodystrophy, this question can be life-changing, and that earlier recognition can lead to more accurate diagnosis, better metabolic care, appropriate specialist referral, and more research into the overlap between rare fat disorders, insulin resistance, and reproductive health.

ALT Four people sit together in a bright living room, appearing to have a conversation. The Lipodystrophy United logo appears in the top left corner. Text on the image reads: “Want to be in our next photo campaign? Join us in Chicago, Saturday, June 13th, for our next photoshoot. Link below!” A small illustrated camera graphic appears near the bottom right.

ALT Lipodystrophy United graphic featuring Becky, a woman with long curly hair, smiling while holding a potted plant indoors. She is wearing a light purple sleeveless top and a glucose monitor on her upper arm. The Lipodystrophy United logo appears in the top left corner.

ALT A Lipodystrophy United graphic for the “Voices of LU: Acquired Types Cohort.” The background photo shows a woman walking a black-and-white dog on a sunny sidewalk in a neighborhood. Text on the image reads: “Voices of LU: Acquired Types Cohort. First session next Tuesday! May 12, 2026 6 PM EST. Link in bio.”

ALT Lipodystrophy United graphic featuring the “LMNA Cardiac Diseases Network” logo (a heart with a DNA strand) and text describing virtual community events to foster connection and support. It lists upcoming dates: May 31, 2026; July 26, 2026; September 27, 2026; and November 29, 2026. Time is listed as 12:00 PM ET / 1:30 PM ET, location is Google Meet, and attendees include patients with LMNA-related conditions and their family members/caregivers.

ALT Lipodystrophy United infographic titled “ICD-10-CM Diagnosis Codes” listing lipodystrophy-related codes: E88.10 (Lipodystrophy, unspecified), E88.11 (Partial lipodystrophy), E88.12 (Generalized lipodystrophy), E88.13 (Localized lipodystrophy), E88.14 (HIV-associated lipodystrophy), and E88.19 (Other lipodystrophy, not elsewhere classified). A note at the bottom explains that diagnosis codes help providers identify patients needing disease management and support standardized data sharing.