Lupus Foundation of America is the only national force devoted to solving the mystery of lupus while giving support to those who suffer from its brutal impact.
Joined February 2009
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- Following 1,169
- Followers 44,033
- Likes 8,124
3,318 Photos and videos
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#MakeLupusVisible this May for #LupusAwarenessMonth! ๐ While many symptoms of #lupus aren't visible, the impact is real. Join us all month long as we raise awareness for the millions living with this cruel disease.
Learn more: buff.ly/3OCV73t
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What is your life with #lupus like? ๐ We're looking for photos that show the experiences of people with lupus โ the ups, the downs and everything in between. From doctor visits to butterfly rashes, we want to honor your journey.
๐ท Submit your photos: buff.ly/Ir3jyUn
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๐ Meet Yousselyn. Diagnosed with #lupus at 8 years old, she shares the reality of life with lupus โ the hard days in the infusion chair and the moments of joy with family in between.
Share your life with lupus: buff.ly/Ir3jyUn
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If you live with #lupus, your family could make a difference in preventing lupus for future generations. CARE Lupus is a research study focused on women (18โ49) who have a parent, sibling, or child with lupus but do not have lupus themselves.
Learn more: buff.ly/nHZ7N3w
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#FactFriday ๐ DYK #lupus can affect your oral health?
People with lupus are more likely to experience dry mouth, gum disease, and mouth sores. Regular dental visits and reporting oral symptoms to your doctor are key.
Learn more: buff.ly/Xj4JfIf
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Can achieving and maintaining remission protect kidney health in #lupus nephritis? A new study finds it can. Read the study: buff.ly/XejqArl
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Ever wonder why you have #lupus or why there arenโt treatments specific to your lupus symptoms? Help answer these questions for yourself & the entire lupus community by joining our patient registry RAY (Research Accelerated by You).
Learn more: buff.ly/Hv6Lhf3
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Update: #EULAR2026 late-breaking results from the Phase 1 study of CLN-978 show clinical benefit after a single target dose in people with refractory systemic #lupus erythematosus. Read the announcement: buff.ly/cykItIS
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Late yesterday, the U.S. House Appropriations Committee voted to increase Fiscal Year 2027 funding for #lupus programs at the HHS, providing a total of $19 million for lupus programs at CDC and OMH.
Read more about this victory in our advocacy update: buff.ly/z4NQ5sH
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Lupus Foundation of America retweeted
Our Lupus campaign to support @LupusOrg is just over halfway to goalโa grant we hope to issue this month!
Please help us fully fund this incredibly important Pediatric Lupus Research today and give from the heart:
whitefeatherfoundation.com/cโฆ
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The sun is out โ but for people with #lupus that comes with extra precautions. UV exposure can trigger flares and worsen symptoms.
Our Health Education Specialists are here to help for free connecting you with non-medical resources.
Reach out today: buff.ly/jx2Fe7v
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๐ Something feels off, but you can't quite explain it. Fatigue. Joint pain. A rash that comes and goes. If you've been wondering whether it could be #lupus, you're not alone โ and answers are out there.
Learn what to look for and next steps: buff.ly/ELekZiY
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Update: New analysis of dapirolizumab pegol (DZP) shows the drug improves disease activity in people with #lupus along with standard of care. Read the announcement: buff.ly/s0gA5dH
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This #NationalBestFriendsDay, we're celebrating the people who show up for the #lupus community every single day. A strong support system makes all the difference.
๐ Read what lupus warriors have to say about the village that keeps them going: buff.ly/FL2aGUo
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Today on #NationalCancerSurvivorsDay, we celebrate cancer survivors everywhere.
Did you know people with #lupus may face an increased risk of certain cancers? In an Expert Series episode, Dr. Bernatsky breaks down her research.
๐ง Listen now: buff.ly/YlfgNwZ
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DYK men with #lupus face unique challenges? From longer paths to diagnosis to the impact lupus can have on work, relationships, & identity.
This #MensHealthMonth, learn more about lupus in men: buff.ly/DYgjkn0
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Heading to college with #lupus? ๐ From finding a new rheumatologist to managing medications and knowing your triggers, there's a lot to prepare for. We put together 10 action items to help you head into your first year feeling ready.
Read more: buff.ly/CzlTqgk
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Research suggests key #lupus symptoms may be more noticeable in men than women. This #MensHealthMonth, hear Dr. Niewold of NYU's Colton Center for Autoimmunity answer questions about diagnosing lupus in men, hair loss, & more.
๐ง Listen to the podcast: buff.ly/OpGSguq
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What an incredible month of May with the 2026 #GameOnToEndLupus stream team! ๐ฎ
Thanks to 215 amazing content creators and their incredible communities, we raised over $230K to support the fight against #lupus and spread awareness.
Are you ready for #GOTEL2027?
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#FactFriday ๐ #Lupus can impact relationships and intimacy. Many people with lupus can still have a satisfying sex life with the right support and communication.
From practical tips to talking with your partner and navigating birth control, learn more: buff.ly/8lpDy2b
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50 athletes are Racing to End Lupus this fall & you can join them at any distance & in any event: marathon, half marathon, ultra, 10K, bike ride, or triathlon.
Registered for a race? Join Choose Your Own Race to raise funds & rep purple on race day: buff.ly/VWFnypS
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