Every day we drive research into motor neurone disease — from understanding causes to finding treatments. Because every day matters.
Joined June 2024
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May 11
MND EnCouRage UK is back and the whole MND community is invited!
— Hear about the latest MND research
— Engage with researchers
— Take part in discussions about research
Spaces are limited!
Register your interest by 8th June ⬇
mndassociation.org/research/…
#MNDEnCouRageUK
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Jun 12
Are you an early career researcher working in MND in the UK?
Why not apply for the @mndassoc Rob Burrow Early Career Researcher Prize?
Find out more and apply⬇️
mndassociation.org/research/…
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Jun 11
Call for nominations!
Nominate an outstanding team of researchers who have made a significant impact to ALS/MND therapy development for the Sean M. Healey International Prize for Innovation in ALS. 🔬
📆Deadline: 9 July
More info: massgeneral.org/neurology/al…
#MND #ALS #alsmndsymp
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Jun 9
Only 1 month left to submit your abstract!
If you want to share your research with the global ALS/MND research community, make sure you submit your abstract by 9 July!
More info: symposium.mndassociation.org…
#alsmndsymp #MND #ALS
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MND Research retweeted
Jun 8
We’re proud to be one of 89 charities awarded a share of @NIHRresearch's £37m investment, supporting 800 early-career researchers.
This funding will help our researchers at a crucial stage of their careers, empowering them to drive future breakthroughs that save and improve lives.
Find out more below. bit.ly/4aft801
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Jun 6
Registration for MND EnCouRage UK closes in two days!
— Hear about the latest MND research in an understandable way
— Engage with researchers
— Take part in discussions about research
Register today ⬇
mndassociation.org/research/…
#MNDEnCouRageUK
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Jun 5
It’s Volunteers’ Week!
Did you know that you can volunteer to take part in MND research?
On our website you can volunteer for research studies which are:
— testing new potential treatments
— aiming to improve diagnosis and care
— trying to understand the causes of MND
More info: mndassociation.org/research/…
#MND #VolunteersWeek
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MND Research retweeted
💙 The ALS/MND Patient Fellows Program gives people living with ALS/MND, caregivers, and ALS/MND gene carriers the opportunity to participate directly in global scientific discussions.
📅 Application deadline: Friday, July 3, 2026
Learn more and apply: als-mnd.org/events-programs/…
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MND Research retweeted
Jun 3
Today, the Longitude Prize announced the launch of a Patient Advocacy Group to help bridge the gap between the research work and the daily realities of MND/ALS. Its wonderful to see people with MND helping to guide this important work.
As principle funder, we are proud to back innovative researchers looking to discover new treatments by harnessing AI as we strive to achieve a world free from MND.
Read more: als.longitudeprize.org/news-…
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MND Research retweeted
Project Manager role with the MND Association leading research system delivery, procurement, supplier management and change support for grant funding processes. Closing date: 15th June
dementiaresearcher.nihr.ac.u…
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Jun 3
The Patient Fellows Program aims to bridge the gap between people with MND, carers, gene carriers and researchers.
If you are interested in research, the Program can help you attend the International Symposium on ALS/MND, the largest international conference dedicated to ALS/MND research 🌍
Learn more: als-mnd.org/events-programs/…
#MND #ALS #alsmndsymp
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MND Research retweeted
🚨 Calling all researchers! There's only 1 week left to submit your application for our Advancing Treatments Award. We want to fund projects that will further the early-stage development of new treatments to slow, stop or reverse MND progression
Details: myname5doddie.co.uk/for-rese…
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Jun 1
It’s Volunteers’ Week!
A huge thank you to everyone who volunteers for MND research.
Your commitment is helping to drive better care and bringing us closer to effective treatments for everyone with MND.
We couldn’t do this without you 🧡
#MND #VolunteersWeek
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May 28
Poster sessions at the International Symposium on ALS/MND are the perfect way to showcase your research to the wider community!
Submit your abstract to have the opportunity to present at the poster sessions in Amsterdam in December.
Deadline: 9 July
More: symposium.mndassociation.org…
#alsmndsymp
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May 26
Are you an early career researcher working in MND in the UK?
Why not apply for the @mndassoc Rob Burrow Early Career Researcher Prize?
Find out more and apply⬇️
mndassociation.org/research/…
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MND Research retweeted
📢 Last Call for Abstracts: April 28 – June 1. Time is running out to share your work with the global ALS/MND community in Amsterdam - submissions for the Allied Professionals Forum, Alliance Meeting, and Poster Hall.
📅 Deadline: June 1, 2026.
➡️ site.pheedloop.com/event/All…
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May 25
Why is MND EnCouRage UK important?
It brings together the MND community, opening up new conversations and collaborations.
It provides an opportunity for people affected by MND to learn more about research minus all the scientific jargon!
Register your interest to attend ⬇️
mndassociation.org/research/…
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May 22
Some people with MND also develop frontotemporal dementia (FTD).
Dr Alex Thompson @MNDOxford is looking at toxic protein clumps found in MND and FTD to understand how these spread through brain cells and contribute to disease progression.
Find out more: mndassociation.org/research/…
#DementiaActionWeek #FTD #MND
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MND Research retweeted
May 21
We are pleased to be able to offer this support to people with SOD1 MND in Scotland in partnership with the Foundation.
Read more below.
We're helping improve access to tofersen for people living with SOD1-MND in Scotland. Too many are being prevented from accessing this treatment, and that must change.
We’re partnering with @mndassoc to support people who are having to travel out their area to receive tofersen.
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MND Research retweeted
May 20
MND EnCouRage UK is a unique event where people with MND, families and carers can hear the latest research.
You’ll meet early career researchers, join small‑group discussions, and share your lived experience to help shape future MND research. Community registration is now open for the 15 July event in Loughborough.
🔗mndassociation.org/research/…
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May 20
Looking to find out more about MND clinical trials?
Head over to our website to find out:
— where they are recruiting
— what the drug is thought to do in the body
— latest updates from the trial
Find out more today: mndassociation.org/research/…
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