REGISTRATION NOW OPEN: MPN Voice Virtual Forum! Get the latest updates from the EHA 2026 Congress delivered directly to you. We are thrilled to invite you to our upcoming virtual forum, featuring expert insights from Prof. Claire Harrison (Guy’s & St Thomas’ Hospital) and a panel of leading UK MPN Specialists. This is your opportunity to hear about the latest advancements in the diagnosis, management, and treatment of MPNs discussed at the European Haematology Association (EHA) Congress. 🗓️ Event Details •Format: Virtual/Online (Zoom) •Registration: Essential; therefore, please register via the link below to receive your joining instructions. •linktr.ee/Mpnvoice 💬 Live Panel Q&A Have a question for our specialists? We are hosting a live Q&A session! •Submit in advance: Use the registration form or email us at info@mpnvoice.org.uk. •Submit on the day: Use the 'chat' facility during the live session. Note: To ensure a productive session, please focus your questions on general topics. Our medical team cannot provide specific advice on individual cases or review test results, so please continue to consult your own consultant or GP for personal medical guidance. 🎥 Can’t make it live? Don’t worry! An on-demand video of the full event will be available after the forum on the MPN Voice YouTube channel. We look forward to seeing you there! #EssentialThrombocythemia #Myelofibrosis #BloodCancerAwareness #PolycythemiaVera

Just Diagnosed with an MPN? Take a Deep Breath. Finding out you have a rare chronic blood cancer like #PolycythemiaVera (PV), #EssentialThrombocythemia (ET), or #Myelofibrosis (MF) is a massive shock. In a single afternoon, your vocabulary is forced to include complex medical terms, and it is completely normal to feel overwhelmed or isolated. Before you go down the rabbit hole of Google, hold onto these vital facts: ⚖️ You can live a full, active life: With modern medical management, targeted therapies, and routine care, many MPN patients have a normal or near-normal lifespan. 🛠️ This is a manageable journey: Think of it as a long-term project. Your clinical team isn't treating a sudden crisis; they are working with you to balance cell production and protect your blood flow. 🚫 You didn't cause this: MPNs are caused by acquired genetic changes (like JAK2, CALR, or MPL) that happen spontaneously over a lifetime. Your Action Plan for the first few weeks: 1.Stop General Googling: Outdated stats or out-of-context articles on forum posts cause unnecessary stress. Stick to verified, patient-led spaces like MPN Voice. 2.Write Down Your Questions: Track your symptoms, energy patterns, and queries so you don't have to memorize everything for your next haematology appointment. The Power of Connection: The most powerful medicine is talking to someone who truly gets it. Our Buddy Programme matches you one-on-one with a volunteer patient who has the exact same diagnosis and has lived well with it for years. 🔗 Visit the MPN Voice website to learn more - mpnvoice.org.uk/about-mpns 👇 If you've been living with an MPN, what is the ONE piece of advice you wish you’d been told in your first week? Drop it in the comments below to help someone newly diagnosed today! #MPNVoice #NewlyDiagnosed #BloodCancerAwareness #ChronicIllnessWarrior #PatientSupport #YouAreNotAlone

📢 Registration Now Open: MPN Young Patients’ Forum (40 & Under) Are you aged 40 or under and living with an MPN? We are delighted to invite you to our Young Patients’ Forum, a dedicated space designed specifically for you. Building on the success of last year's inaugural event and our ongoing digital network, this forum is your opportunity to connect with others who truly understand your journey. Event Details •📍 Venue: R & D Department, 16th Floor, Guy’s Hospital, Great Maze Pond, London, SE1 9RT •👥 Who: MPN patients aged 40 and under (you are welcome to bring one guest—partner, family member, or friend). •☕ Refreshments: Complimentary coffee, tea, and light refreshments provided. Why This Forum Matters Living with a chronic illness at a younger age brings unique challenges. This forum provides a space to share stories, swap tips, and receive clinical information tailored specifically to your stage of life. The programme will feature: •Expert Insights: Presentations from specialist clinicians and nurses, led by Prof. Claire Harrison. •Relevant Topics: Discussions on MPN symptoms, treatments and side effects, and lifestyle tips covering education, careers, family planning, fertility, and pregnancy. •Support & Wellbeing: Guidance on managing the psychological impact of a chronic diagnosis. •Patient Voices: Hear from other young patients sharing their personal paths to diagnosis. •Connection: Participate in panel Q&As and breakout groups tailored by condition (ET, MF, PV) and a dedicated space for partners/family/friends. Secure Your Place Places are strictly limited to ensure an intimate and supportive environment. Please book your spot as soon as possible to avoid disappointment. 👉 Click Here (or in the IG bio) to Register for the Young Patients' Forum - linktr.ee/Mpnvoice Don’t miss this chance to build your support network and gain valuable knowledge alongside your peers. We look forward to seeing you in London! #mpnvoice #youngpatients #mpncommunity #myeloproliferativeneoplasm #chronicillness #youngandlivingwithMPN #bloodcancer #patientempowerment

MPN Voice Patients’ Forum – Nottingham 2026! We are delighted to invite you to our upcoming in-person MPN Voice Patients’ Forum in Nottingham! A dedicated space for patients, families, and clinicians to connect, share experiences, and learn about the latest developments in MPN care. Whether you are a patient, a family member, or a friend, we would love to see you there. Event Details •📅 Date: Tuesday, 18th August 2026 •⏰ Time: 1:00 PM – 5:00 PM •📍 Location: Nottingham (Venue details to be confirmed) •🎟 Cost: Free to attend (includes complimentary buffet lunch and refreshments) •🚗 Parking: Free parking available at the venue Why Attend? This forum is open to everyone, regardless of where you live or which hospital you attend. It is a fantastic opportunity to: •Hear from Experts: Learn from the specialist haematology team at Nottingham City Hospital, including Dr. Fran Wadelin and MPN CNS Angela Thompson. •Connect with Others: Meet fellow members of the MPN community, share your journey, and support one another. •Get Your Questions Answered: Participate in our panel Q&A session. •Join Dedicated Breakout Groups: We will have specific sessions for ET, MF, and PV patients to swap tips, as well as a dedicated group for partners, family, and friends. Registration Now Open! We are currently finalizing the full programme, but you can secure your spot today. Don't miss out on this chance to gain insights and build connections in a supportive, welcoming environment. 👉Register here or via our bio [linktr.ee/Mpnvoice Further details on our guest speakers and the full agenda will be shared very soon! #myeloproliferativeneoplasm #polycythemiavera #essentialthrombocythemia #myelofibrosis #mpnvoice #bloodcancerawareness #rarecancer #chronicillness #chronicallyawesome #NottinghamEvents

Catch Up: Nurse-Led Care & Support To wrap up our Galway Patients' Forum series, we are sharing an essential talk on the dedicated, nurse-led support available to our community. Now Available to Watch: ANP MPN Service & Support: Sarah Connolly, Advanced Nurse Practitioner, explains the crucial role of the nurse-led clinic in Galway. Sarah outlines how the service is structured to provide personalized, patient-centered care, ranging from symptom management and health education to ongoing support and coordination of care. This session is a must-watch to understand how you can work effectively with your clinical team to manage your condition. Catch up on the Full Galway Forum Series: 1.Intro to MPN Voice (Nona Baker) 2.Polycythaemia Vera (PV) Overview (Dr. Teresa Lopez) 3.Patient Talk – PV 4.MPN App/Digital Health (Dr. Patrick Harrington) 5.Essential Thrombocythemia (ET) Overview (Dr. Tracy Murphy) 6.Patient Talk – ET 7.Managing Symptoms (Claire Woodley) 8.Panel Q&A 9.Myelofibrosis (MF) Overview (Dr. Chris Armstrong) 10.MPN Service in the West/North West (Dr. Mark Gurney) 11.ANP MPN Service & Support (Sarah Connolly) Where to watch: Head over to the MPN Voice linktree to view this final release and catch up on the entire series: 👉 linktr.ee/Mpnvoice Thank you for joining us on this journey through the Galway Patients' Forum. We hope these resources provide you with valuable knowledge and support. #MyeloproliferativeNeoplasms #BloodCancerAwareness #MPNVoice #PatientSupport #LivingWithMPN #NurseLedCare

Catch Up: MPN Services in the West/North West Ireland We are concluding our session releases from the Galway Patients' Forum by focusing on how clinical services are delivered across our region. Now Available to Watch: MPN Services in the West/North West Region: Dr. Mark Gurney provides a comprehensive look at how hematology care is organized across the region. He discusses the integration of local outreach clinics with the centralized service in Galway, the vital role of regional Multi-Disciplinary Team (MDT) meetings in consensus-based care, and our future priorities for improving infrastructure and increasing access to clinical trials. Catch up on the Full Galway Forum Series: 1.Intro to MPN Voice (Nona Baker) 2.Polycythaemia Vera (PV) Overview (Dr. Teresa Lopez) 3.Patient Talk – PV 4.MPN App/Digital Health (Dr. Patrick Harrington) 5.Essential Thrombocythemia (ET) Overview (Dr. Tracy Murphy) 6.Patient Talk – ET 7.Managing Symptoms (Claire Woodley) 8.Panel Q&A 9.Myelofibrosis (MF) Overview (Dr. Chris Armstrong) 10.MPN Service in the West/North West (Dr. Mark Gurney) 11.ANP MPN Service & Support (Sarah Connolly) Where to watch: Head over to the MPN Voice linktree to view this release and catch up on the entire series: 👉 linktr.ee/Mpnvoice #MyeloproliferativeNeoplasms #BloodCancerAwareness #MPNVoice #PatientSupport #LivingWithMPN #HealthcareServices

Catch Up: Understanding Myelofibrosis (MF) We are pleased to continue our series of session releases from the Galway Patients' Forum by focusing on Myelofibrosis (MF). In this session, Dr. Chris Armstrong provides a comprehensive overview of this rare MPN. Now Available to Watch: Myelofibrosis (MF) Overview: Dr. Chris Armstrong, Consultant Haematologist at St. James's Hospital, Dublin, guides us through what Myelofibrosis is, how it is diagnosed, and how it is managed. This insightful talk covers everything from the role of genetics and risk stratification to the importance of symptom tracking and the various treatment pathways including when stem cell transplantation might be considered as an option. Catch up on the Galway Forum Series: We have been releasing these recordings section by section to help our community digest this wealth of information. Here is the full lineup of sessions from the day: 1.Welcome and Introduction to MPN Voice (Nona Baker) 2.Polycythaemia Vera (PV) Overview (Dr. Teresa Lopez) 3.Patient Talk – PV 4.MPN App/Digital Health & Cardiovascular Risks (Dr. Patrick Harrington) 5.Essential Thrombocythemia (ET) Overview (Dr. Tracy Murphy) 6.Patient Talk – ET 7.Managing Symptoms (Claire Woodley) 8.Panel Q&A (Chaired by Dr. Tracy Murphy) 9.Myelofibrosis (MF) Overview (Dr. Chris Armstrong) 10.MPN Service in the West/North West Region (Dr. Mark Gurney) 11.ANP MPN Service & Support (Sarah Connolly) Where to watch: Head over to the MPN Voice linktree to view this latest release and catch up on all previous sessions: 👉 linktr.ee/Mpnvoice Stay informed and supported with the latest insights from our clinical experts. Keep an eye on our YouTube channel as we roll out the remaining talks! What is one topic you have found most helpful to learn more about since your diagnosis? Let us know in the comments. #MyeloproliferativeNeoplasms #BloodCancerAwareness #Myelofibrosis #PatientSupport #MPNVoice #LivingWithMPN #Hematology

Catch Up: Galway Patients' Forum – Panel Q&A We are continuing our series of session releases from the Galway Patients' Forum! Today, we are sharing one of the most anticipated parts of any forum: the opportunity to get answers directly from our panel of experts. Now Available to Watch: •Panel Q&A: Chaired by Dr. Tracy Murphy, this session features a panel of our speakers answering key questions from the audience. This is a fantastic chance to hear expert perspectives on a wide range of concerns relevant to our community. Catch up on the Galway Forum Series: We have been releasing these recordings section by section to help our community digest this wealth of information. Here is the full lineup of sessions from the day: 1.Welcome and Introduction to MPN Voice (Nona Baker) 2.Polycythaemia Vera (PV) Overview (Dr. Teresa Lopez) 3.Patient Talk – PV 4.MPN App/Digital Health & Cardiovascular Risks (Dr. Patrick Harrington) 5.Essential Thrombocythemia (ET) Overview (Dr. Tracy Murphy) 6.Patient Talk – ET 7.Managing Symptoms (Claire Woodley) 8.Panel Q&A (Chaired by Dr. Tracy Murphy) 9.Myelofibrosis (MF) Overview (Dr. Chris Armstrong) 10.MPN Service in the West/North West Region (Dr. Mark Gurney) 11.ANP MPN Service & Support (Sarah Connolly) Where to watch: Head over to the MPN Voice linktree to view the latest release and catch up on all previous sessions: 👉 linktr.ee/Mpnvoice Keep an eye on our YouTube channel as we roll out the remaining talks. We hope these resources provide you with the information and support you need! #MyeloproliferativeNeoplasms #BloodCancerAwareness #MPNVoice #PatientSupport #LivingWithMPN #AskTheExperts

Catch Up: Practical Strategies for Symptom Management We are continuing our series of session releases from the Galway Patients' Forum! Today, we are focusing on a vital aspect of daily life for many in our community: managing symptoms. Now Available to Watch: •Managing Symptoms: In this practical session, Claire Woodley, ANP at Guy’s & St Thomas’ Hospital, shares her expertise on strategies for effectively monitoring and managing the symptoms associated with MPNs. This is a must-watch for those looking for actionable advice to help improve their quality of life. Galway Forum Series: We have been releasing these recordings section by section to help our community digest this wealth of information. Here is the full lineup of sessions from the day: 1.Welcome and Introduction to MPN Voice (Nona Baker) 2.Polycythaemia Vera (PV) Overview (Dr. Teresa Lopez) 3.Patient Talk – PV 4.MPN App/Digital Health & Cardiovascular Risks (Dr. Patrick Harrington) 5.Essential Thrombocythemia (ET) Overview (Dr. Tracy Murphy) 6.Patient Talk – ET 7.Managing Symptoms (Claire Woodley) 8.Panel Q&A (Chaired by Dr. Tracy Murphy) 9.Myelofibrosis (MF) Overview (Dr. Chris Armstrong) 10.MPN Service in the West/North West Region (Dr. Mark Gurney) 11.ANP MPN Service & Support (Sarah Connolly) Where to watch: Head over to the MPN Voice linktree to view the latest release and catch up on all previous sessions: 👉 linktr.ee/Mpnvoice Keep an eye on our YouTube channel as we roll out the remaining talks in the coming weeks. We hope these resources provide you with the information and support you need. #MyeloproliferativeNeoplasms #BloodCancerAwareness #SymptomManagement #PatientSupport #MPNVoice #LivingWithMPN

Catch Up: Everything Essential Thrombocythemia (ET) We are pleased to continue our series of session releases from the Galway Patients' Forum by diving deep into Essential Thrombocythemia (ET). This release brings you a complete perspective, combining expert clinical guidance with the powerful, lived experience of our community. Now Available to Watch: • Essential Thrombocythemia (ET) Overview: Dr. Tracy Murphy, Consultant Haematologist, provides an expert clinical breakdown of ET, covering the condition, its management, and what it means for your health journey. • Patient Talk – ET: In this moving and insightful session, Sharon shares her personal journey of living with ET. A nurse herself, Sharon speaks candidly about her diagnosis at 58, the process of adapting her active lifestyle, managing the condition while relocating, and the vital importance of finding a supportive community like MPN Voice early on. This combined release is a must-watch for anyone seeking both medical clarity and the reassurance that, while an MPN diagnosis is a major life event, it is manageable with the right support, mindset, and care team. Where to watch: Head over to the MPN Voice linktree to view these latest releases and catch up on all available sessions from the Galway Forum: 👉 linktr.ee/Mpnvoice Stay informed and supported with the latest insights from our clinical experts and community members. Keep an eye on our YouTube channel as we continue to roll out the remaining sessions! We’d love to hear from you: What is one question you always wish you could ask a specialist about ET? What is one piece of advice you would give to someone who has just received an MPN diagnosis? Let us know in the comments below! #MyeloproliferativeNeoplasms #BloodCancerAwareness #EssentialThrombocythemia #PatientSupport #MPNVoice #LivingWithMPN #Hematology

Catch Up: Digital Health & MPN Management Continuing our series of session releases from the Galway Patients' Forum, we are delighted to share a forward-thinking talk on how technology is revolutionizing patient care. Now Available to Watch: • Digital Health & Cardiovascular Risks: Dr. Patrick Harrington explores the development and impact of the myMPN voice smartphone app. In this insightful session, Dr. Harrington discusses how this tool empowers patients to track their own symptoms and biometric data, the importance of symptom monitoring in MPNs, and how real-world data and machine learning are being used to better understand the patient experience and guide future management. Where to watch: Head over to the MPN Voice linktree to view this latest release and catch up on previous sessions from the Galway Forum: 👉 linktr.ee/Mpnvoice As we continue to roll out the remaining sessions, keep an eye on our YouTube channel for updates! What aspect of digital health technology are you most interested in seeing more of for MPN care? #MyeloproliferativeNeoplasms #BloodCancerAwareness #DigitalHealth #PatientEmpowerment #MPNVoice #HealthTech

Catch Up: Expert Insights on Polycythaemia Vera (PV) Following our successful MPN Voice Patients' Forum in Galway, we are excited to continue releasing the session recordings! Today, we are diving deep into Polycythaemia Vera (PV). Whether you are living with a diagnosis or supporting a loved one, these two sessions provide a blend of clinical expertise and the invaluable perspective of lived experience. Now Available to Watch: •Polycythaemia Vera (PV) – An Overview: Dr. Teresa Lopez, Consultant Haematologist at University Hospital Galway, provides an expert clinical breakdown of the condition, its management, and the latest guidance. •Patient Talk – PV: A candid and powerful perspective from Brian, sharing his personal journey of living with PV. Where to watch: Head over to the MPN Voice linktree to view these new releases and catch up on previous sessions: 👉 linktr.ee/Mpnvoice Stay informed and supported with the latest insights from our clinical experts and community members. As we continue to roll out the remaining sessions from the Galway Forum, keep an eye on our YouTube channel for updates! Which of these topics are you most looking forward to hearing about? #MyeloproliferativeNeoplasms #BloodCancerAwareness #ChronicIllnessSupport #PolycythaemiaVera #PatientSupport #MPNVoice

Real change starts with real experiences. Have you been affected by a rare and less common cancer – all cancers except breast, bowel, lung or prostate – either as a patient or a carer? Please take this anonymous online survey run by registered charity Cancer52 to share honest feedback about your experiences, what worked, what didn’t, and where is the opportunity for change. Take survey: surveymonkey.com/r/c52patien… The survey will run from Monday 1st June – Friday 10th July 2026 #bloodcancerawareness

New Episode Alert: MPN Voice in Conversation with Nona! We are thrilled to share the latest episode of MPN Voice in Conversation with Nona, featuring a special recap and deep dive following the incredibly successful MPN Voice Galway Patients Day held on May 23rd, 2026. In this episode, Nona sits down with the dedicated clinical team who made the Galway event possible. It’s a wonderful opportunity to hear directly from the experts about the vital care, support, and services available to MPN patients, both in Galway and across Ireland. Meet Our Guests: Join Nona as she speaks with: •Dr. Chris Armstrong •Dr. Teresa Lopez •Dr. Tracy Murphy •Dr. Mark Gurney •ANP Sarah Connolly The team discusses the collaborative efforts within the clinical community, the specialized services offered to patients, and how these resources are making a meaningful impact on the MPN patient journey throughout Ireland. How to Listen You can catch this insightful conversation right now via the link. Whether you attended the event in Galway or are looking for information on clinical services in Ireland, this episode is a must-listen. 👉 linktr.ee/Mpnvoice Stay connected, stay informed, and join the conversation. Did you attend the Galway Patients Day, or are you interested in learning more about the specific clinical pathways discussed in this episode? The full Galway recording will be out shortly...

Catch Up on the Galway Patients' Forum: Following our successful MPN Voice Patients' Forum in Galway on May 23rd, 2026, we are delighted to begin releasing the recordings from the day! We know how much value our community gains from these sessions, whether you attended in person or are joining us online. To make it easier to digest this wealth of information, we have broken the event recordings down into individual, accessible sections. Available Now: •Welcome and Introduction to MPN Voice: An opening look at who we are and what we do with Nona Baker, Co-Chair of MPN Voice. Coming Soon! This is just the beginning. We have a full series of sessions to share with you over the coming weeks, covering vital topics including: •Polycythaemia Vera (PV) Overview: Dr. Teresa Lopez, Consultant Haematologist, provides an expert breakdown of PV. •Essential Thrombocythemia (ET) Overview with Dr. Tracy Murphy. •Myelofibrosis (MF) Overview with Dr. Chris Armstrong. •MPN Services & Support: Insights from Dr. Mark Gurney and ANP Sarah Connolly on the services available in the West/North West region. •Symptom Management & Digital Health: Practical talks from experts including Claire Woodley and Dr. Patrick Harrington. Where to watch: Head over to the MPN Voice linktree to view the first releases and keep an eye on our YouTube channel as we roll out the remaining sessions. 👉 linktr.ee/Mpnvoice Stay informed and supported with the latest insights from our clinical experts. Which of these topics are you most looking forward to hearing about? #MyeloproliferativeNeoplasms #Bloodcancerawarenes #ChronicIllnessSupport #Polycythemiavera #Essentialthrombocythemia

Meet the Medical Director: Professor Claire Harrison Professor Claire Harrison is one of the world’s leading experts in myeloproliferative neoplasms (MPNs) and the driving force behind MPN Voice. A graduate of Oxford University Medical School, Claire became a consultant at Guy’s and St Thomas’ Hospital in 2001, where she now serves as Deputy Chief Medical Officer. Her clinical focus is MPNs, and her work has shaped the global landscape of treatment and research. Claire’s leadership in clinical trials and translational research has contributed to the approval of several groundbreaking therapies, including ruxolitinib, fedratinib, momelotinib, and pacritinib. Over the past decade, she has published more than 300 academic papers, earning national and international recognition for her contribution to the field. But Claire’s impact extends far beyond the clinic. She founded MPN Voice (MPD Support as it was) alongside a group of volunteer patients who shared her vision to ensure that everyone living with an MPN has access to accurate information, compassionate support, and a strong community. Outside of her professional achievements, Claire is a proud mum to Henry and Edward, and she’s passionate about food, family walks, and time spent outdoors. Her warmth and energy reflect the same values that drive MPN Voice connection, care, and community. Her work continues to inspire both patients and professionals, reminding us that progress in medicine is most powerful when it’s rooted in partnership.

Meet the Leadership Team: Nona & Jon (And yes, they are patients, too.) When you’re diagnosed with a rare blood cancer, it can feel like you’re the only person on earth who understands. That’s why MPN Voice started - to make sure no patient ever feels that isolation again. What makes MPN Voice unique is that it isn’t run by an impersonal organisation. It’s led by patients who live the same reality, face the same challenges, and share the same determination to make life with an MPN manageable and meaningful. Nona’s Story Diagnosed with essential thrombocythaemia (ET) in 1991, which later transformed into polycythaemia vera (PV) in 2004, Nona faced a time when information about these rare blood disorders (now known as myeloproliferative neoplasms (MPNs)) was scarce. That gap sparked her lifelong commitment to learn, connect, and empower others. Soon after Professor Claire Harrison and the team at St Thomas’s Hospital founded "MPD Support", Nona joined and became deeply involved. Today, as Co‑Chair of MPN Voice, she helps shape the charity’s work by delivering Patient Forums across the UK and Ireland, creating her hugely popular vlogs and providing global engagement as a respected patient expert. Outside her advocacy, Nona enjoys time with her husband, two dogs, and eight grandchildren often finding peace on long countryside walks. Jon’s Story Diagnosed with ET in 1998, Jon has become a passionate advocate for patients, ensuring that our collective voice is heard on the international research stage. His work champions patient representation in shaping the future of MPN care and understanding. When he’s not advocating, Jon can be found tinkering in his garage or spending time with his grandchildren. Their stories remind us that an MPN doesn’t define who you are as you can lead, create, and stay present for the people and passions that matter most. Together, Nona and Jon embody what MPN Voice stands for: knowledge, connection, and hope. They prove that leadership and lived experience can go hand in hand and that patients can drive change for patients. #BloodCancerAwareness #PolycythaemiaVera #EssentialThrombocythaemia #Myelofibrosis

WE WANT TO HEAR FROM YOU! | Follow-Up Q&A Session Did you catch our latest vlog on the Global Interferon Shortage? The insights from the 520 patients who shared their experiences have been invaluable, but we know you might still have questions about what this means for your personal treatment journey. We are heading back into the studio at the end of May! 🎙️ Nona Baker will be sitting down again with our panel of experts: Dr. Alicia Kahn, Llewellyn Cadman-Davies, and Dr. Priya Sriskandarajah to ask the questions that matter most to you. What’s on your mind? • Are you concerned about the transition back to Pegasus? • Do you have questions about the clinical differences between formulations? • Want more details on those "speeding train" new drug trials and vaccines? • Are you curious about how the survey data is being used to talk to NHS England? Whatever it is, no question is too small. How to Submit Your Questions: 📩 Email: info@mpnvoice.org.uk 📌 Subject Line: "Global Interferon Shortage Question" 🗓️ Deadline: Friday, 15th May 2026 Don’t miss out! If you haven't watched the original vlog yet, catch up now via the link in our bio or at linktr.ee/Mpnvoice. Your voice helped us understand the shortage so now let us help you understand the path forward. 🔴⚪ #MPNVoice #MPN #Interferon #PatientVoice #MyeloproliferativeNeoplasms #BloodCancerSupport #AskTheExperts

Meet One of Our Latest MPN Voice Heros: Chris! We are absolutely thrilled to spotlight Chris, who has just kicked off an inspiring fundraising challenge for MPN Voice. Last year, Chris was diagnosed with Polycythaemia Vera (PV), a rare blood cancer. Dealing with a diagnosis like this is incredibly daunting, but Chris is turning his journey into a mission to help others. The Challenge: Reaching New Heights One of the most debilitating symptoms of MPNs is profound fatigue. Understanding his limits but fueled by determination, Chris has set himself a "mountainous" goal: The Mission: To climb the equivalent height of Ben Nevis (1,345 metres) on his mountain bike. The Method: Tackling the elevation over a series of weekends, balancing his recovery with his passion for cycling. The Why: To give back to the community and the MPN team at Nottingham City Hospital who supported him during his toughest moments. "I know that this might not seem like much, but it’s the current equivalent of a marathon for me." - Chris Why Your Support Matters MPN Voice is a small, volunteer-led charity. Every penny raised goes directly toward providing vital information and support to those living with Myeloproliferative Neoplasms. In the world of rare diseases, community support isn't just helpful, it's a lifeline. 📣 How You Can Help Let's show Chris the power of the MPN community! Whether it’s the price of a coffee or just a share to spread the word, every bit of momentum helps him get up that "mountain." 👉 justgiving.com/page/chris-mp… Good luck, Chris! We are all behind you one pedal stroke at a time! 🏆 #MPNVoice #PolycythaemiaVera #FundraisingHero #BloodCancerAwareness #MountainBikeChallenge #BenNevisClimb