Chief Operating Officer @RareBeacon 🔥 | Diet Coke Addict🥤 | West Wing Aficionado📺 | Eurovision Fanatic🎤 | Keele Grad 2014🎓 | Views Are Mine 🗣
Joined June 2016
- Tweets 2,019
- Following 253
- Followers 313
- Likes 2,202
580 Photos and videos
30 May 2024
Excited to be in #Newcastle today with the @RareBeacon team, hosting the Final Conference on behalf of MCDS Therapy!
Really interesting to hear from everyone who has been involved in delivering this project and clinical trial over the past 5 years. 💊
30 May 2024
It’s almost time for the MCDS-Therapy Final Conference!!
Lights, camera…almost action 😜
Get here safely!
#McdsTherapy
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MayRo retweeted
10 Apr 2024
Calling patient group leaders! 📢
Beacon is looking to team up with @GeneticAll_UK to design specialised training for rare disease patient groups.
With a general election coming up, would you be interested in free policy, advocacy and campaign training?
100%
Yes
0%
No
6 votes • Final results
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27 Nov 2023
Already seen over 170 turn up for todays #RareShowcase23! Our biggest in-person turnout ever!! Looking forward to what promises to be an amazing day 😁
27 Nov 2023
Our COO, Mary Rose and CEO, Rick Thompson are kicking off what’s set to be an incredible day! 🥳
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MayRo retweeted
27 Nov 2023
Our COO, Mary Rose and CEO, Rick Thompson are kicking off what’s set to be an incredible day! 🥳
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2 Nov 2023
Absolutely loved meeting Christine! 😄
2 Nov 2023
One of the best parts of this year’s #WODC has been meeting @cmutena in person! 🧡
Christine runs Rare Disorders Kenya and has been part of our Patient Group Engagement Committee for the last 2 years - so pleased we could finally meet outside of a computer screen!
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MayRo retweeted
1 Nov 2023
Say hello to our supporting partner, @rarebeacon booth 123!
#WODC
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1 Nov 2023
Come say hello to me and my team! 👋
1 Nov 2023
Come find us on stand 123 at #WODC!
We’ve been told we’ve got some of the best swag of the conference! 👀🌟
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18 Oct 2023
Heading to London bright and early for @RareBeacon’s #RareWorkshop on #DigitalFundraising! 💸
Looking forward to seeing some real life faces today!😄
#Tired #5amAlarm
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MayRo retweeted
11 Oct 2023
Heavy is the rump that wears the crown. Introducing your Fat Bear Week 2023 champion, 128 GRAZER!!
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MayRo retweeted
13 Sep 2023
If you have no experience in the charity world and want to expand your knowledge on areas that matter most to rare disease patient groups, create a FREE account on The Resources Hub! 📚
💡Discover what you can achieve today!
Sign up:
ow.ly/aOq550PJkIH
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MayRo retweeted
10 Jul 2023
@rarebeacon are looking for an experienced fundraising manager to join their team!
View the full job description here and apply or share today: buff.ly/46GfMGI
ALT An asset from Beacon: "Beacon is hiring. Join Beacon, a small and ambitious rare disease charity, as their next Fundraising Manager. Visit their website to find out more and apply by 26th July". A group picture of the Beacon team takes up the rest of the image, all smiling at the camera.
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7 Jul 2023
309 days to go
7 Jul 2023
Welcome back to Malmö! 🇸🇪
Malmö will host #Eurovision for the third time on 7, 9, and 11 May 2024 🥳
All the details here ➡️ eurovision.tv/story/malmo-wi…
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15 Jun 2023
❤️
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MayRo retweeted
15 May 2023
*innocently*
hey people who watched eurovision at the weekend, remind me what this character is called
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MayRo retweeted
15 May 2023
#DidYouKnow
Our COO @MRoseRoberts is a HUGE @Eurovision fan?
She made it to the live final AND was on TV!!
MayRo is officially famous 🤩
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15 May 2023
Only went and lived my life dream of attending a grand final of #Eurovision LIVE at the weekend didn’t I 😱😱😱
Oh, and what’s more? I WAS ON THE TV!!! 👀👀
What. A. Night.
CHA CHA CHA CHA CHA CHA CHA 💚💚💚
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11 May 2023
Australia has me LIVING 🙌🏼🙌🏼🙌🏼 100% qualifying and I CANNOT WAIT to see it live on Saturday night. That is all.
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