MAIN is a research and knowledge exchange network focused on mental health and wellbeing for people impacted by serious life-limiting illness.
Joined December 2023
- Tweets 37
- Following 94
- Followers 85
- Likes 48
Photos and videos
Pinned Tweet
21 Nov 2024
Next MAIN Event Webinar:
Friday 17th Jan @ 12:30 to 2pm
"Crisis Prevention not Crisis Management: the health and wellbeing of parents and children with life-limiting conditions"
With @lornafraser10 and @victoriaefisher
Register here for free:
events.teams.microsoft.com/e…
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MainEvent retweeted
26 Nov 2024
New: estimates of population-level palliative care need in the UK 2017-2021
bmcpalliatcare.biomedcentral…
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22 Aug 2024
Next MAIN webinar: 24 Sept 2024 at 12.30-2pm BST
Acceptance and Commitment Therapy (ACT) for people with Motor Neurone Disease
With Prof Rebecca Gould (UCL)
Funded by @MarieCurieEOLC
All Welcome
Register for free here:
events.teams.microsoft.com/e…
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13 Jun 2024
Still time to register to join our webinar on Monday 17th June! With Prof Gary Rodin…
29 May 2024
Next MAIN Webinar: 17.06.24 @ 1pm BST
Managing Cancer and Living Meaningfully (CALM): A Psychotherapeutic Approach to Life-Threatening and Advanced Disease.
With Prof. Gary Rodin (@gary_rodin).
Funded by @MarieCurieEOLC
All welcome.
Register here: events.teams.microsoft.com/e…
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MainEvent retweeted
6 Jun 2024
Review finds that most psychological interventions for people receiving palliative care are effective in reducing negative emotions including depression, anxiety and distress; & can improve hope, meaning and dignity.
shorturl.at/csizm
Need for implementation studies next!
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29 May 2024
Next MAIN Webinar: 17.06.24 @ 1pm BST
Managing Cancer and Living Meaningfully (CALM): A Psychotherapeutic Approach to Life-Threatening and Advanced Disease.
With Prof. Gary Rodin (@gary_rodin).
Funded by @MarieCurieEOLC
All welcome.
Register here: events.teams.microsoft.com/e…
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MainEvent retweeted
20 May 2024
@JonathanKoffman @SimonNoahEtkind
@libby_sallnow @larapivodic
@a_samuels_ planning exciting study exploring how #religion & #spirituality help people when faced with #uncertainty from long-term or life-threatening illness. Go to tiny.cc/rgu5yz to share views. Thanks!
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14 May 2024
Lancet editorial on the COMMEND trial: ACT improves quality of life in people with MND: thelancet.com/journals/lance…
And the COMMEND trial paper itself: thelancet.com/journals/lance…
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13 May 2024
This Mental Health Awareness Week, we're reflecting on the mental health needs of people living with a terminal illness and those that support them in a new blog. Our researchers talk about different therapeutic approaches, and what support is needed:
bit.ly/3UYI37R
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10 May 2024
BBC Breakfast this morning - forward to 1hr 35 - psychological support for people with MND - new research (only available for 24 hours) bbc.co.uk/iplayer/episode/m0…
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MainEvent retweeted
28 Apr 2024
This is such a great idea & central to whole person care for people with serious life-limiting illnesses
@LeonieHerx @palliativeire @_IPMCA @annedohertypsy @IrishPsychiatry @HMChochinov @IraByock @mcgillwpc @kelleher_eric @stabrennan @Stanford_PC @CarolUHS @IASW_IRL 1/
31 Jan 2024
We are delighted to launch MAIN today! Check out our network position paper to find out more about the Mental health and wellbeing in Advanced Illness Network (MAIN) and how you can be involved. @EdinUniHealth Funded by @MarieCurieEOLC
mariecurie.org.uk/globalasse…
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31 Jan 2024
We are delighted to launch MAIN today! Check out our network position paper to find out more about the Mental health and wellbeing in Advanced Illness Network (MAIN) and how you can be involved. @EdinUniHealth Funded by @MarieCurieEOLC
mariecurie.org.uk/globalasse…
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17 Apr 2024
Join us for our next MAIN event
"Family centered approaches to improving wellbeing in advanced illness and at end of life".
With @LizForbat @LissetteAvilesR & Louise Allen. Tues 14th May at 12 noon (BST). All welcome!
Hosted by @EdinUniHealth. Funded by @mariecurieuk.
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MainEvent retweeted
17 Apr 2024
Our next webinar:Family centred approaches to improving wellbeing in advanced illness and end of life will take place on 14 May. Register here for this free event: events.teams.microsoft.com/e…
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MainEvent retweeted
16 Apr 2024
Do you use the term "loved ones" as a general term?
Ever wondered what it means or how it might be understood?
@KateWoodyBath and I did: endoflifestudies.academicblo…
Tl:dr Emphasising "love" misses the diversity of reasons people care for each other
@EndofLifeStudy
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MainEvent retweeted
14 Mar 2024
As oncologists we struggle with how we can have realistic conversations about the future while preserving hope. Dr @SchenkerYael and her colleagues show that having end of life conversations with patients did not compromise hope via the CONNECT study #pallonc #supponc
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MainEvent retweeted
8 Mar 2024
@MainEvent24 webinar, 12.03.24, 12 noon GMT:
"Mental health, the social determinants of dying and trauma-informed palliative care."
With @DrNaomiRichards @DrEmmaCarduff @_RiniJones_
All welcome. Register for free here:
events.teams.microsoft.com/e…
Funded by @MarieCurieEOLC
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MainEvent retweeted
28 Feb 2024
New paper on practitioners views of Acceptance & Commitment Therapy (ACT) for bereavement support.
Led by @NikolausWilli & our excellent MSc students @EdinUniHealth. With funding from @MarieCurieEOLC
28 Feb 2024
Check out our new paper on Acceptance and Commitment Therapy (ACT) for bereavement support.
@NikolausWilli @davidgillander @MarieCurieEOLC
bmcpalliatcare.biomedcentral…
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MainEvent retweeted
19 Feb 2024
MAIN Webinar: Mental health, the social determinants of dying and trauma-informed palliative care.
All welcome to our next free webinar (presentation, case studies & discussion).
Tuesday 12th March @ 12 noon
With @DrNaomiRichards.
Register here: events.teams.microsoft.com/e…
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