UK-based Charity raising money for research into treatments for MEF2C Gene related disorders.
Joined June 2023
- Tweets 35
- Following 11
- Followers 19
- Likes 23
14 Photos and videos
4 Mar 2025
gofund.me/8df58dad🌟🌟🌟Fundraising event alert 🌟🌟🌟
Hey everyone! 🎉 Our amazing trustee, and mefty mum, is taking on the Leeds half marathon to raise funds for our pre-clinical readiness project that is developing a natural history for MEF2C Haploinsufficiency Syndrome.
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4 Mar 2025
Please support this GoFundMe by donating or sharing – every bit of help makes a difference. gofund.me/19ad6b00
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28 Feb 2025
🌟 It is Rare Disease Day 2025! 🌟
Today, we celebrate our beloved MEF2C warriors and raise awareness about MEF2C Haploinsufficiency.
Happy #RareDiseaseDay2025 💙
#MEF2C #Awareness #Support #Hope #MCHS #RareDiseaseDay2025 @muscmind @ChristophWCowan @RareRevolution
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🌟 Exciting Research at the Cowan Lab! 🌟
Dr. Cowan and his lab are leading groundbreaking research on innovative RNA-based treatment strategies to increase the amount of MEF2C in the brain.
💡 Use the Telehealth link to get connected: tr.ee/CTeiPrzFkx
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MEF2C Foundation retweeted
3 Nov 2024
It’s Sellebrity Soccer Charity Matchday at Chertsey Town!
Come down this afternoon and see a host of celebrities and a number of Curfews legends take to the hallowed turf of Alwyns Lane whilst raising money for the @Mef2cFoundation
Tickets: eventbrite.co.uk/e/celebrity…
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MEF2C Foundation retweeted
1 Nov 2024
Ok #rivals fans, Fred Fred himself (aka #dannydyer ) has a message for you regarding Sunday’s @Sellebrity_UK
charity match at Alwyns Lane. Doors 1pm, KO 3pm. Book now at: eventbrite.co.uk/e/celebrity…
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MEF2C Foundation retweeted
1 Nov 2024
📆 THIS SUNDAY 3RD NOVEMBER 2024
📍CHERTSEY TOWN FOOTBALL CLUB
⚽️ 3PM KO - Doors open 1PM
Danny Dyer is ready for our huge celebrity charity match at @TheCurfews raising funds for @Mef2cFoundation
Tickets on sale now & full info here at sellebritysoccer.org.uk 🎫
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MEF2C Foundation retweeted
31 Oct 2024
Come on down and join us this Sunday as we welcome Sellebrity Soccer and a host of Curfews legends raising money for a fantastic cause in the shape of the @Mef2cFoundation
Gates open 1pm, KO 3pm. Grab your ticket and see you there!
31 Oct 2024
📆 THIS SUNDAY 3RD NOVEMBER 2024
📍CHERTSEY TOWN FOOTBALL CLUB
⚽️ 3PM KO - Doors open 1PM
Come down to our huge celebrity charity match at @TheCurfews raising funds for @Mef2cFoundation
Tickets on sale now & full info here at sellebritysoccer.org.uk 🎫
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MEF2C Foundation retweeted
31 Oct 2024
📆 THIS SUNDAY 3RD NOVEMBER 2024
📍CHERTSEY TOWN FOOTBALL CLUB
⚽️ 3PM KO - Doors open 1PM
Come down to our huge celebrity charity match at @TheCurfews raising funds for @Mef2cFoundation
Tickets on sale now & full info here at sellebritysoccer.org.uk 🎫
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MEF2C Foundation retweeted
30 Oct 2024
We are delighted to welcome Jake Baxter back to Alwyns Lane for the @Sellebrity_UK Charity match!
Jake played 158 times for the Curfews, scoring 111 goals, including one in the FA Vase final. Let’s see if ‘Baxter is still on fire’ and can add to his Alwyns Lane goal tally!
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MEF2C Foundation retweeted
30 Oct 2024
Internet sensation @CalTheDragon confirmed for this Sunday’s Sellebrity Soccer Charity match at Alwyns Lane in aid of the @MEF2Cfoundation. Book your tickets at: eventbrite.co.uk/e/celebrity…
13 Oct 2024
📆 SUNDAY 3RD NOVEMBER 2024
📍CHERTSEY TOWN FOOTBALL CLUB
⚽️ 3PM KO
@CalTheDragon is ready for our huge celebrity charity match at @TheCurfews raising funds for @mef2cfoundation
Tickets on sale now sellebritysoccer.org.uk 🎫
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MEF2C Foundation retweeted
28 Oct 2024
Danny Dyer added to the line up for this Sunday’s Celebrity Charity match at Alwyn’s Lane! Come along and support his great cause. Gates 1PM, Kicknoff 3PM. See you there
28 Oct 2024
📆 SUNDAY 3RD NOVEMBER 2024
📍CHERTSEY TOWN FOOTBALL CLUB
⚽️ 3PM KO - Doors open 1PM
We are pleased to announce Danny Dyer has confirmed for our huge celebrity charity match at @TheCurfews raising funds for @Mef2cFoundation
Tickets on sale now sellebritysoccer.org.uk 🎫
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MEF2C Foundation retweeted
28 Oct 2024
📆 SUNDAY 3RD NOVEMBER 2024
📍CHERTSEY TOWN FOOTBALL CLUB
⚽️ 3PM KO - Doors open 1PM
We are pleased to announce Danny Dyer has confirmed for our huge celebrity charity match at @TheCurfews raising funds for @Mef2cFoundation
Tickets on sale now sellebritysoccer.org.uk 🎫
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MEF2C Foundation retweeted
13 Oct 2024
📆 SUNDAY 3RD NOVEMBER 2024
📍CHERTSEY TOWN FOOTBALL CLUB
⚽️ 3PM KO
@CalTheDragon is ready for our huge celebrity charity match at @TheCurfews raising funds for @mef2cfoundation
Tickets on sale now sellebritysoccer.org.uk 🎫
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MEF2C Foundation retweeted
13 Oct 2024
📆 SUNDAY 3RD NOVEMBER 2024
📍CHERTSEY TOWN FOOTBALL CLUB
⚽️ 3PM KO
Book your tickets for our huge celebrity charity match at @TheCurfews raising funds for @mef2cfoundation
Tickets on sale now sellebritysoccer.org.uk 🎫
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