scientist and MD, aiming to bring novel strategies to fight kidney disease from basic research to the clinic with a focus on dietary and metabolic interventions
Joined April 2021
- Tweets 451
- Following 86
- Followers 575
- Likes 1,553
20 Photos and videos
Pinned Tweet
13 Jun 2025
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🚨 Big news from our Genes&Kidney Working Group at the @ERAkidney
We just released a consensus statement in Nephrology Dialysis Transplantation aiming to bring us closer to precision medicine in CKD. 🧬🩺
🧵 THREAD 👇
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Roman-Ulrich Müller retweeted
Jun 12
🧵 🧬 KDIGO 2025 ADPKD Guideline | Vascular manifestations
📄 Read the full article: academic.oup.com/ndt/advance…
#KDIGO2025 #ADPKD #PKDInternational
@ERAkidney
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The fact that primary hyperoxaluria is the first kidney disease for which an RNA therapeutic has become available is a milestone for the field.
How does this change the treatment landscape? 🧵
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A recent survey study performed by the @ERAkidney WG Genes&Kidney addresses this question and highlights how current recommendations are implemented in real-world care.
academic.oup.com/ckj/advance…
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Roman-Ulrich Müller retweeted
May 19
🧵🧪 STOP-PKD study | Expanding recruitment across Europe : stop-pkd.de/en
The STOP-PKD study continues to expand, marking an important step forward for ADPKD research in Europe.
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I usually think twice before posting preprints. But this time it’s different.
MEDA-PKD is the essence of our work over more than a decade — and, to me, one of the most meaningful contributions I’ve been able to make to biomedical research.
🧵
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More broadly, MEDA points toward:
➡️continuously learning health systems
➡️real-time translational research
➡️scalable precision medicine infrastructures
📄Preprint:
doi.org/10.21203/rs.3.rs-930…
🖥️ Live dashboard:
shiny.cecad.uni-koeln.de/ADP…
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Huge thanks to all collaborators, clinicians, study nurses, researchers, data scientists — and especially the patients contributing to this effort.
@UKKoeln @UniCologne @CECAD_ @PKD_Int
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First results of the growing interaction between the Nephrology Research Units at Uniklinik Köln and Universitätsklinikum Düsseldorf.
Urine Proteomics as a Source of Biological Information and Outcome Pre... sciencedirect.com/science/ar…
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Roman-Ulrich Müller retweeted
Apr 13
🧵 We are pleased to announce that the UMCG Universitair Medisch Centrum Groningen in the Netherlands is now officially accredited as a trial site for the STOP-PKD Study.
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Roman-Ulrich Müller retweeted
🧵 4/4 Help shape the future of #ADPKD research in Europe 🔬 - make your voice count!
📲 Take part now:
survey.uni-koeln.de/index.ph…
🗣️ Every response strengthens the patient voice. Thank you! 💛
@FLAVIAZH
@MuellerRom
@UKKoeln
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🚀 STOP-PKD-News!
Das zweite Prüfzentrum in Mainz ist nun offiziell freigegeben. Weitere folgen (DE, NL, ES, AT).
Kann SGLT2-Inhibition das Fortschreiten von Zystennieren positiv beeinflussen?
Infos und Kontakte: stop-pkd.de/
#STOPPKD #ADPKD
@PKD_Int
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Inflammation is a driver of disease progression in ADPKD and a potential therapeutic target. In this systematic review, we summarise current knowledge on the role of immune cells.
The Role of Immune Cells as Modulators of Progression in... : Kidney360 journals.lww.com/kidney360/a…
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The important pediatric perspective on CKDx. Moving nephrology towards precision medicine is an effort spanning all age groups.
@ERAkidney
Improving precision diagnosis in unexplained CKD academic.oup.com/ckj/article…
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Roman-Ulrich Müller retweeted
21 Dec 2025
@MuellerRom
#ISNCON2025
CKDx… embracing uncertainty
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