MSU, patient-led, all-volunteer nonprofit empowering the #Myositis community. Patient support, education, financial assistance, research. #RareDisease
Joined January 2014
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Join us TODAY for #MyositisReads, a book club for the Myositis Community on Clubhouse! Today at 3 PM ET on Clubhouse. Myositis patients and care partners are welcome. Reading is where we can escape, relax, and learn. 👉 For details, visit: understandingmyositis.org/ev… #MyositisReads
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From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at: understandingmyositis.org/ev… #myositissupport #MSU
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#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/ev… #MyositisMovement #myositis #inflammatorymyopathy
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🎬 Join Couch Critics, our virtual Myositis Community movie club! We meet bi-weekly on the 2nd Wed at 7 PM EST. Relax, connect, and enjoy movies together! understandingmyositis.org/ev…
🍿 #MSU #Myositis #CouchCritics
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Breathe Easy, dedicated specifically to myositis patients who are experiencing lung issues. Join us for our monthly meeting on Zoom. register here: understandingmyositis.org/ev…
#MSU #MyositisSupport # #MyositisAwareness #LungHealth #BreatheEasy
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🌟TODAY! MSU Young Adult Collective Power Hour! Ages 18–40 w/Myositis? Join our private, supportive Zoom session, no pressure to talk or be on camera. Connect, share, or just listen. Register now: understandingmyositis.org/ev…
#MSU #YACollective #MyositisSupport
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From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at: understandingmyositis.org/ev… #myositissupport #MSU
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#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/ev… #MyositisMovement #myositis #inflammatorymyopathy
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If you are living with #myositis, no matter which type, join us on Zoom for our Monthly Wednesday Evening Zoom support session! Come as you are! New Time! Starts at 7 PM ET/ 6 PM CT/ 5 PM MT/ 4 PM PST. For details and to register: understandingmyositis.org/ev…
#myositissupport #MSU
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Women with Myositis! Join us on Zoom for a supportive group session to share challenges, hopes, and experiences. First Monday of Every Month 7 PM ET Register here: understandingmyositis.org/ev…
Private, never recorded, and you can choose to listen or share. We can’t wait to connect!
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From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at: understandingmyositis.org/ev… #myositissupport #MSU
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TODAY, Sat., starting @ 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT! Anyone living with IMNM/NAM is welcome and encouraged to attend for loving, understanding Zoom support. Register at understandingmyositis.org/ev… #myositissupport #MSU #necrotizingmyopathy
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đź’«TODAY! Finding Our Balance: Navigating Myositis & Dysautonomia Together. Are you living with Myositis and have also been diagnosed with some form of Dysautonomia or suspect you may have it? You're not alone! RSVP below and reserve your spot!
understandingmyositis.org/ev…
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TODAY @ 5 PM ET / 4 CT / 3 MT / 2 PT - Inclusion Body Myositis Patient Zoom support session, last Friday of the month! For anyone living with #inclusionbodymyositis (IBM). Invite your caregiver, care partner, or spouse if you wish understandingmyositis.org/ev… #nonprofit
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#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/ev… #MyositisMovement #myositis #inflammatorymyopathy
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🎬 Join Couch Critics, our virtual Myositis Community movie club! We meet bi-weekly on the 2nd Wed at 7 PM EST. Relax, connect, and enjoy movies together! understandingmyositis.org/ev…
🍿 #MSU #Myositis #CouchCritics
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From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at: understandingmyositis.org/ev… #myositissupport #MSU
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#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/ev… #MyositisMovement #myositis #inflammatorymyopathy
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3rd Wednesday of the Month 7 PM/ET/ 6 PM CT/5 PM MT/4 PM PT Weight Management Weight loss and weight gain are critical to our physical and emotional wellbeing on our myositis journey and there is power in sharing our stories in a safe, no judgement support group.
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Join us TODAY for #MyositisReads, a book club for the Myositis Community on Clubhouse! Today at 3 PM ET on Clubhouse. Myositis patients and care partners are welcome. Reading is where we can escape, relax, and learn. 👉 For details, visit: understandingmyositis.org/ev… #MyositisReads
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