TOFS is a registered UK charity supporting those born with #OesophagealAtresia, #TracheoOesophagealFistula and associated conditions #OA #TOF #TEF #EA #VACTERL
Joined March 2013
- Tweets 1,241
- Following 970
- Followers 998
- Likes 481
705 Photos and videos
Apr 26
It’s the #LondonMarathon so please join us in cheering on our runners.
Good luck to Ian, Ollie, Yasmin and Yvonne as they take on the 26.2miles in support of TOFS.
Find out how you can support the team at:
tofs.org.uk/2026/03/meet-you…
1
137
Feb 23
It’s OA/TOF Awareness Week.
Did you know a baby is born with Oesophageal Atresia and Tracheo-Oesophageal Fistula (OA/TOF) in the UK roughly every other day? That’s around 180 babies a year, facing a condition with lifelong implications. 1/2
1
11
9
545
1 Dec 2025
The TOFS Christmas Cards are back & every card you send helps us support those impacted by OA/TOF.
For 1 donation, you can share your card with up to 100 people via email, WhatsApp, or Messenger.
Support TOFS and send a card today: dontsendmeacard.com/ecards/c…
1
1
76
23 Oct 2025
Corey, who was born with OA/TOF, led @wwfcofficial out at their recent match. To mark the occasion, Corey’s parents held a raffle with prizes donated by the club and raised just under £3000 to support those born unable to swallow.
An amazing achievement! Thank you all😍
2
4,530
26 Sep 2025
In a change to our advertised speaker, we are happy to announce that we will now be joined by the TOF Cough Prof himself, Professor Alyn Morice. Prof. Morice will be on hand to answer your questions on respiratory issues, in adults born with OA/TOF. us02web.zoom.us/webinar/regi…
203
25 Jun 2025
Make double the difference this week! Can you help us support those born with OA/TOF?
Donate before 12pm Monday (30th June) and your gift will be doubled - at no extra cost to you - thanks to Global’s Make Some Noise.
go to: donate.biggive.org/campaign/…
1
2
158
20 Jun 2025
It’s almost time! From noon on Monday till noon on the 30th June any donations made to TOFS will be doubled thanks to Global Radio’s Make Some Noise and the Big Give!
Can you help us hit the £10,000 target?
So get ready to double your donation!
tofs.org.uk/double/
1
104
3 Jun 2025
This week is National Volunteers’ Week, where we highlight the amazing work our volunteers do. Join us throughout the week as we celebrate the time and hard work our volunteers give at TOFS to help support our #OA / #TOF community.
#VolunteersWeek
1
1
124
28 May 2025
Don't miss next week's virtual meet-up for adults born with OA/TOF on Thursday, 5th June @ 8pm (UK)
Register at: us02web.zoom.us/meeting/regi…
95
23 May 2025
The latest video from our Bristol Seminar is now live! Watch Clare Skerritt, Paediatric Surgeon and Emma Griffiths explore the early years of OA/TOF care, share real-life surgical insights, and give an update on Surgical-PEARL project tofs.org.uk/oa-tof-informati…
1
2
116
16 May 2025
Exciting News! We've been selected for The Big Give’s match funding campaign!
Supported by Global Radio, the campaign is taking place during #SmallCharitiesWeek (23rd - 30th June)
During the campaign donations will be doubled for free!
Find out more at: tofs.org.uk/double/
2
4
96
8 Apr 2025
TOFS Annual General Meeting
Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. on the 24th April, 2025 by Zoom at 7:00 pm.
Invited to attend: Council of Management, TOFS office staff, all Members and Associates
tofs.org.uk/event/tofs-annua…
72
28 Mar 2025
We’re hiring!
Role: Communication and project support officer (UK)
We are looking for a skilled communicator with experience in health-related content creation.
tofs.org.uk/2025/03/vacancy-…
Please share this message with your contacts.
2
3
335
24 Mar 2025
Calling all adults born with #OA/#TOF.
You’re invited for a virtual cuppa and chat with other adults born with OA/TOF on 3rd April
us02web.zoom.us/meeting/regi…
This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share
2
3
112
4 Mar 2025
Don't miss this week's virtual meet-up for adults born with OA/TOF.
6th March, 2025 , 8:00pm
Sign-up:
us02web.zoom.us/meeting/regi…
This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories/experiences
1
2
92
1 Mar 2025
A huge thank you to everyone who bought a ticket in our Winter Raffle. Together you have raised an incredible £2100 for TOFS.
Are you a winner? Check the website to see.
tofs.org.uk/2025/03/tofs-win…
1
67
28 Feb 2025
Today is international #RareDiseaseDay. Join in the Global Chain of Lights and Share Your Colours tonight at 7pm & decorate your home with the Rare Disease Day colours. Find the video at: tofs.org.uk/event/rare-disea…
Please tag us and use #rarediseaseday #tofs #lightupforrare
3
5
398
27 Feb 2025
Did you know that we have a dedicated library of resources available for health professionals (inc. FREE digital copies of The TOF Book & The Soft Food Recipe Book)?
If your health care team have questions on #OA / #TOF, share the QR or direct them to tofs.org.uk/library
1
82