Cure NF2 Foundation is a patient-led nonprofit dedicated to funding research and supporting those affected by NF2-related schwannomatosis
Joined August 2018
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Living with NF2 brings unique challenges, but new strategies can help. Discover how psychological approaches and neuroscience-based tools empower individuals to manage stress and find meaning.
Watch our latest webinar and read the full one-pager: buff.ly/Z4w9izb
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NF2 impacts entire families, and for Lizzie and Alanna, the journey has included surgeries, scans, specialist visits, and constant resilience.
Behind every appointment and every procedure are real people fighting to hold onto their health and their futures.
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Join us in moving research forward.
Donate today:
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Every NF2 diagnosis involves a child facing extraordinary challenges. A.J. was diagnosed at 6 and continues to manage multiple tumors and ongoing monitoring, but his strength shines through daily.
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Donate today:
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#CureNF2 #NFAwarenessMonth #NF2Day
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Lyren passed away in 2019, but her courage, strength, and spirit continue to inspire our community and our mission to find a cure for NF2.
Her story is a reminder that behind every diagnosis is a person deeply loved by family and friends, and why this fight matters so much.
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In honor of Lyren and every family affected by NF2, help us continue funding research and moving closer to better treatments:
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Behind every diagnosis is a person. A family. A fight.
NF2 is not just a condition: it’s a daily reality for children, parents, and loved ones navigating uncertainty, treatment, and hope.
Their stories are why we exist.
Their strength is why we keep going.
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Donate today:
US: buff.ly/jmoqb59
Facebook: buff.ly/AYASXrP
PayPal: buff.ly/iEGJtHY
UK: buff.ly/2uWyPkd
Canada: buff.ly/tFQgRyT
Europe: buff.ly/t1wqsN4
Mail: Cure NF2 Foundation, P.O. Box 859, West Chester, PA 19381
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Behind every NF2 diagnosis is a story, and a child, a family, a future.
Tucker’s journey began with small changes that led to a life-changing diagnosis. Stories like his remind us why this fight matters so much.
Help us turn stories like Tucker’s into hope.
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Donate today:
US: buff.ly/jmoqb59
Facebook: buff.ly/AYASXrP
PayPal: buff.ly/iEGJtHY
UK: buff.ly/2uWyPkd
Canada: buff.ly/tFQgRyT
Europe: buff.ly/t1wqsN4
Or mail a check:
Cure NF2 Foundation
P.O. Box 859
West Chester, PA 19381
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NF2 is rare, but it affects real people in every community.
Most are diagnosed young. There is still no approved treatment.
But there is hope.
Gene therapy research is advancing and with your support, we can help move these breakthroughs closer to real treatments for patients.
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Donate today:
US: buff.ly/jmoqb59
Facebook: (buff.ly/AYASXrP
PayPal: buff.ly/iEGJtHY
UK: buff.ly/2uWyPkd
Canada: buff.ly/tFQgRyT
Europe: buff.ly/t1wqsN4
Mail: Cure NF2 Foundation, P.O. Box 859, West Chester, PA 19381
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Before a therapy can be tested in people, it must first be shown to be safe, high-quality, and ready. That’s the work happening now, and it’s what your support makes possible.
Closer to clinical trials.
Closer to a cure.
Donate today and be part of this progress:
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US: buff.ly/jmoqb59
Facebook: buff.ly/AYASXrP
PayPal: buff.ly/iEGJtHY
UK: buff.ly/2uWyPkd
Canada: buff.ly/tFQgRyT
Europe: buff.ly/t1wqsN4
Mail: Cure NF2 Foundation, P.O. Box 859, West Chester, PA 19381
#CureNF2 #NFAwarenessMonth
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Today is NF2 Awareness Day. NF2 is a rare genetic condition that can cause tumors to grow along the nervous system, impacting hearing, balance, vision, and more. But behind every diagnosis is a person, a story, and a community that refuses to give up.
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Donate today: buff.ly/7nEgMFb
Read Laurel's story: buff.ly/AcoB6WJ
#CureNF2 #NFAwarenessMonth #NF2Day
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Living with NF2-SWN comes with real, everyday challenges, especially when it comes to mental health.
We want to hear from you: what has helped you cope? Share your experience or tips in the comments.
Register for our upcoming webinar: buff.ly/qRGkudY
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Living with NF2 can bring more than physical challenges.
Join our webinar to explore tools and strategies to support your mental health, whether you’re managing appointments, scans, or uncertainty.
Friday, May 22 at 11:00 AM ET / 4:00 PM BST
Register here: buff.ly/NJxiJxq
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As NF Awareness Month begins, we want to share an important milestone. NF2 BioSolutions is now also known as Cure NF2 Foundation.
This new name reflects our continued commitment to advancing research and progressing toward better treatments and ultimately a cure for NF2.
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