Had an absolute blast at the @NFincNE Coast to the Cure ride in Gloucester! More than 100 cyclists took to the road to raise money for neurofibromatosis research!

Join us for a virtual webinar on mental health challenges and resources for children with RASopathies. August 26th at 10AM PT / 12PM CT / 1PM ET. This FREE event will be held on Zoom. Register now: forms.gle/uxJEk1Yqgcx676KU8

Join @EmilyMaherTV on Saturday, September 9th for the @NFincNE 12th Annual Coast to the Cure cycling fundraiser and ride to support patients and families affected by neurofibromatosis (NF) and its allied disorders. For more information go to wcvb.com/community

This is my friend Reggie Bibbs. Reggie is the kindest and most loving person I have ever met. His face is disfigured from a rare genetic condition called ‘Neurofibromatosis.’ After many years of never leaving his bedroom, out of shame and embarrassment, Reggie finally summoned enough courage to face his fears and raise awareness of this disorder. He has incurred tremendous challenges over the past years, including the loss of his mother and the foreclosure of their family home. Despite these hardships, Reggie has maintained an extraordinary spirit and has always believed that something better was coming. My humble request is for you to open your heart and consider supporting Reggie in raising funds through a GoFundMe account. These funds would be to cover his monthly rent, utilities, and essential expenses for the next five years. Any contribution, no matter how small, will make such a meaningful difference in Reggie's life and help him reach his $133,000.00 goal.. Thank you so much. gofund.me/672e6308