Rare" Doesn't Mean Harmless. It Means Overlooked.
Most people have never heard of Focal Segmental Glomerulosclerosis (FSGS). That is exactly the problem.
FSGS is an aggressive, often genetic, rare kidney disease that stands as a leading cause of kidney failure. Because it strikes without routine screenings, most patients don't even know they have it until they are already on the path to dialysis or a transplant.
Even worse? In some communities, FSGS is anything but rare:
- Nearly 60% of all FSGS cases are among Black Americans.
- Black Americans are 4 times more likely to experience kidney failure.
- While making up 14% of the http://U.S. population, African Americans account for more than 35% of dialysis patients.
This isn't just a medical footnote—it’s a crisis. But the story of FSGS is being rewritten. Earlier detection, diagnosis, and new treatment advancements can slow or even stop disease progression.
What we need now is awareness, advocacy, and action.
🗓️ Join Us Live!
Come hear from an incredible panel looking upstream to ask the question that matters most: What is driving people to kidney failure in the first place, and how do we stop it?
- When: June 12th at 12 PM ET
- Host: National Minority Quality Forum (NMQF)
🎙️ Featured Speakers:
- Moderator: Britt Weinstock, PhD, MA (Senior Director, State and Federal Policy, Center for Public Policy, NMQF)
- Panelist: Dr. Gentzon Hall, MD, PhD (Assistant Professor of Medicine, Duke University School of Medicine)
- Panelist: Destyn Fuller-Hope (Director, Screenwriter, & Storytelling Advocate)
- Panelist: Matthew Johnson (Director, Government Relations & Advocacy, NephCure)
🔗 How to Register
Be a part of the conversation and help us fight back. 👉 Register now at:
hubs.la/Q04l53TS0 (
hubs.la/Q04l592q0)
#FSGSAwareness #RareKidneyDisease #HealthEquity #NMQF #KidneyHealth #AnatomyOfACrisis