One More Thing Parent group advocates for change in systems to minimize the One More Thing that parents of children with disabilities navigate every single day!
Joined March 2016
- Tweets 742
- Following 123
- Followers 235
- Likes 716
54 Photos and videos
4 Sep 2022
A memorial bench in honour of @GrandmaKim has been installed at Brittania beach. She loved to walk there. Loved the water. And loved people. Please visit and sit a minute.
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3 Sep 2022
It has been one full year since we lost OMT co-founder @GrandmaKim. We miss her so much. She was a mother, grandmother, sister, friend, fighter and advocate. She was simply amazing. đ
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23 Mar 2022
We are so happy to see CHEO recognize and honour our co-founder @GrandmaKim! Kim would be thrilled to know that funds have been dedicated to accessibility in her honour.
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22 Feb 2022
Itâs been a long time since we used this account! Canât think of a better time to re-engage than by announcing this fundraiser. gofund.me/29b106ff
5 Jul 2021
This!
5 Jul 2021
You are not lazy, unmotivated or stuck.
After years of living your life in survival mode, you are exhausted.
There is a difference.
By Nakiea Homer
#medicalMom #bereaved #healthcaresystem. #survivor
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OMT Parent Voices retweeted
7 Mar 2021
For parents of kids with complex needs, COVID-19 school disruptions mean losing a lifeline of key supports dlvr.it/Rv7lWC
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28 May 2021
If you are a parent of a child with a physical disability and you are looking for people who âget itâ then please join our Facebook group
Our mission is to offer each other compassionate space to share and be heard #community #parent #Disability
Facebook.com/groups/1MoreThiâŚ
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18 May 2021
#enough is good for now
17 May 2021
Itâs been a struggle to comment on life of the #MedicalMom today But found this on IG from Rebel Pebble đđ˝âĽď¸ to mamas out there #enough for now
3 May 2021
The Feeling are Normal responses to extraordinary circumstances. #empathy
3 May 2021
It should be expected that the paediatric parent /#MedicalMom will be ...
Frustrated
Angry
Crying
Withdrawn.
These are natural human reactions to impossible situations of which few professionals know or see the full picture.
#compassion #education #empathy
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19 Apr 2021
â ď¸trigger warning â ď¸
Being âthat parentâ is a hurdle we all face.
#patient #person #communication #thatparent
19 Apr 2021
The hashtag #thatparent is sometimes used by #parents who find themselves labelled "difficult" because of their #advocacy in the #healthcare system.
Why do we make them feel uncomfortable for trying to be the best parents they can be?
By @sblemay
healthydebate.ca/opinions/thâŚ
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OMT Parent Voices retweeted
5 Apr 2021
Thank you for this. Peads moms/caregiving are hanging by a thread. Saving Heath systems up front - clearly not long term @fordnation @celliottability cite CHEO Thrive report Pg 50
@AlexMunter âŹď¸ #kidscomefirst wonât work if caregivers are ill or dying
@OneMoreThing2Do
2 Apr 2021
Some new work published today on parental caregiver mortality led by Dr. Anne Fuller @SickKidsNews in collaboration with colleagues at @dceaarhus (including @toftsorensen & @ehrensteinvera) & @UnityHealthTO.
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OMT Parent Voices retweeted
13 Apr 2021
Did anyone else know thereâs a rare disease podcast!
Awesome
cc @raredisorders @MitoCanada @rarediseasefdn @sickboypodcast @NightShiftMD @williamslaura @HeatherPina44 @alungstory @StartWithHills @CareForRare @OneMoreThing2Do
25 Mar 2021
Listen to the newest episode of #NORDpod: The #VoiceOfRareDisease to join @MatthewZachary as he speaks with @yann_eurordis to reflect on Rare Disease Day & about progress in #raredisease research: nordpod.org
What did you do for #RareDiseaseDay this year? đŚ
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5 Apr 2021
2 Apr 2021
Some new work published today on parental caregiver mortality led by Dr. Anne Fuller @SickKidsNews in collaboration with colleagues at @dceaarhus (including @toftsorensen & @ehrensteinvera) & @UnityHealthTO.
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OMT Parent Voices retweeted
9 Mar 2021
This is the reality of disability. It's a system that dehumanizes a person at any age. It's a system where one word, like "mild", may mean you don't get the help you need. It's a system of manufactured scarcity. It's a system that breaks you.
Wonderful piece by @Lollardfish.
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9 Mar 2021
Quick Poll on Who Can I Talk To? From our parent group.
Little surprise for us was having the question added by a member ..15% replied âI really donât have anyone to talk toâ #specialneeds #families
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2 Mar 2021
Any parent who advocates struggles with the emotional management pre, during and post advocacy. #parenteducation #advocacytraining
1 Mar 2021
Upcoming Workshop for newer parents beginning their advocacy journeys.
Building foundations of confidence for sitting at the table seeking services and supports
bit.ly/3uLG4Vl
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24 Feb 2021
OMT families!! We have a great friend speaking this Saturday. We encourage you to join her!
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9 Feb 2021
Important to all families!! Have questions? Ask! Here is the event for that! Thursday Feb 11!!
9 Feb 2021
You're invited to ask our experts your questions about youth #mentalhealth and addictions! On Feb 11 join the #KidsComeFirst partners (including @CHEO and @OCYI_Ottawa) for a virtual town hall. Learn more, sign up and pre-submit your questions: ow.ly/Fn1p50DladR
OMT Parent Voices retweeted
5 Feb 2021
Pause and ask how are they really doing
Be willing to be uncomfortable w/ circumstances
Be willing to not understand everything about their struggle
Remember, Look, say Hello and Pause and Listen
We all need to be seen
We all need connection
#buildcommunity
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OMT Parent Voices retweeted
5 Feb 2021
What you can do to change the life of a child. A few humble insights from a foster mom of 12
Look at kids and say Hi or wave and smile
Say Hi regularly to their parent
Offer a listening ear to both
Pitch up and take on a task -being neighbourly
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#buildcommunity
30 Jan 2021
Unsurprisingly, there are clear signs the upheaval in children's lives due to the pandemic is having a quantifiable impact on their physical amd mental health. Same story across the pond here in đ¨đŚ - but is anyone listening? bbc.com/news/health-55863841
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