Advocating for those impacted by PANDAS/PANS/AE through research, education, advocacy, and awareness programs.
Joined February 2011
- Tweets 1,401
- Following 128
- Followers 1,606
- Likes 1,326
287 Photos and videos
15 Jul 2023
Please retweet
14 Jul 2023
Hey twitter Fam…can I get a little help getting my support for bill AB 907 @GavinNewsom attention?
Very close to my heart. Helping the children of California get insurance coverage for PANDAS/PANS
My daughter is in remission, other kids need our help. 🙏🏾
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15 Jul 2023
Pandas kids need medicine
14 Jul 2023
Hey twitter Fam…can I get a little help getting my support for bill AB 907 @GavinNewsom attention?
Very close to my heart. Helping the children of California get insurance coverage for PANDAS/PANS
My daughter is in remission, other kids need our help. 🙏🏾
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9 Jul 2023
PN Awardee Dr Akcan reports findings at the IOCDF Conference this week!
6 Jul 2023
Dr. Ugur Akcan @occludens gave a nice presentation today.
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PANDAS Network - Official retweeted
6 Jul 2023
Dr. Ugur Akcan @occludens gave a nice presentation today.
6 Jul 2023
Are you attending the @IOCDF Research Symposium today? Stop by Elucidating the role of RXRA factor in myeloid cells for immune-mediated mechanisms of OCD
July 6 · 10:15am
Uğur AKCAN, PhD Columbia University
#PANS #PANS #OCDcon #OCD pandasppn.org/exhibiting/#IO…
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PANDAS Network - Official retweeted
17 Jun 2023
Please send your questions that you may have for a chance to answer them at the end of the webinar on 6/29.
16 Jun 2023
What PANS/PANDAS research question do you want Dritan Agalliu PhD to answer during the 6/29 webinar? Ask here & it might get answered.
Webinar registration: bit.ly/dragalliuwebinar
Read the research: shorturl.at/uxTX3
Hosted in partnership by @PANDASPPN & @PANDASnetwork
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6 Jun 2023
CLINICIANS & RESEARCHERS!
Join Dr. Dritan Agalliu for an in-depth scientific & medical discussion on breaking PANDAS/PANS research! The free webinar will take place on 6/29 at 6pm ET.
bit.ly/dragalliuwebinar
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PANDAS Network - Official retweeted
24 May 2023
This is an important paper to read in order to understand not only the biology of these receptors but also how autoantibodies against these receptors may trigger activation. #PANDAS #Sydenhamchorea
23 May 2023
Finally--structures of D1, D2, D3, D4 and D5-dopamine receptors!!
Congrats to folks from @RothLabUNC , Eric Xu's lab and many others.
nature.com/articles/s41422-0…
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12 May 2023
Our AE Scientific Board member, Dr Westbrook
12 May 2023
Dr Gary Westbrook, Vollum Institute, presents "What can #llamas and #mice tell us about anti-NMDA receptor #encephalitis" as an OBI May BRAINet Online Lecture. Use the link to register by Tuesday, May 16, 9am to receive the live-stream link. tinyurl.com/w4dj6cbd
cc:@OHSUBrain
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29 Apr 2023
Learn about the mechanisms & inflammatory cytokines found in PANDAS PANS. June 29th we will have a second webinar for researchers & clinicians. Sign at pandasnetwork.org/events
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PANDAS Network - Official retweeted
14 Apr 2023
Watch our latest free CME webinar: Preventing & Responding to Insurance Denials for PANS/PANDAS Treatments. pandasppn.org/cme
The presentation will discuss:
🔵Defining ‘Medical Necessity’
🟣UR-Related Laws
🟢Insurance UR/UM Systems
🟡Advocacy Strategies
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30 Mar 2023
Great images PANDAS mechanisms
29 Mar 2023
Thank you @SiegenthalerLab @LehtinenLab Benoit and Joy for organizing a great #cshlbbb meeting. I’m honored to be chosen as a keynote speaker and looking forward to today’s talks!
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29 Mar 2023
Leading basic science & PANDAS PANS researcher, Key Note speaker, Dr Agalliu, at CSHL meeting
28 Mar 2023
Looking forward to presenting this evening and meeting with colleagues.
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13 Mar 2023
READ IMPORTANT NEW WORK! OPENS DOORS FOR TREATMENT & NEW AVENUES OF ADVANCEMENT!
13 Mar 2023
BRAVO !! IMPORTANT NEW RESEARCH For PANDAS PANS, Sydenham chorea and Autoimmune encephalitic sequela ..thank you Agalliu Lab, particularly Drs Dritan Agalliu, Charlotte Wayne & Tyler Cutforth
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2 Mar 2023
A PANDAS PANS immune trigger identified! Columbia Univ. Patent! Paper to follow.
2 Mar 2023
This is our invention patent based on @charlotterwayne work to target IL-17A for treating neuroinflammation in Group A Streptococcus infection sequelae. The paper will be posted on the BioRxiv later this week. inventions.techventures.colu…
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PANDAS Network - Official retweeted
Good morning to World Encephalitis Day! #WED My research team in Oxford shows representation from 🏴 , 🏴 , 🇩🇪, 🇲🇰, 🇹🇷, 🇲🇾, 🇰🇷, 🇮🇪 , 🇨🇳 and 🇧🇷. So we really do embrace the world 🌎 today @encephalitis
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16 Feb 2023
Fantastic review of CNS and AE a Review in Nature
The figures and tables look so good in published format!👍
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PANDAS Network - Official retweeted
22 Jan 2023
Please make sure you know the symptoms of sepsis- & if doctors are struggling to identify what’s wrong just ask the question:
Could it be #sepsis ?
I was treated for pneumonia for 3 weeks but kept getting sicker.
Turns out was a kidney infection that had turned septic untreated
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PANDAS Network - Official retweeted
22 Jan 2023
So brave of you to share your traumatic journey. As you say, could’ve been so different.
22 Jan 2023
Please make sure you know the symptoms of sepsis- & if doctors are struggling to identify what’s wrong just ask the question:
Could it be #sepsis ?
I was treated for pneumonia for 3 weeks but kept getting sicker.
Turns out was a kidney infection that had turned septic untreated
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PANDAS Network - Official retweeted
3 Dec 2022
The @BBCNews coverage of #GroupAStrep is helpful: but what's really important is to educate about the associated risk of #sepsis as that's what endangers lives! Most of us have these bugs somewhere on us, it's when it becomes invasive we worry!
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17 Jan 2023
We are happy to share with you the exciting news that Congress has taken action on PANS/PANDAS! BIDEN has signed into law the 2023 omnibus appropriations bill which is another step forward towards our goal of significantly growing federal funding for NIH research
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