Providing education and support for those suffering from Primary Biliary Cholangitis and other autoimmune liver diseases.
Joined May 2014
- Tweets 3,239
- Following 196
- Followers 1,037
- Likes 3,129
Photos and videos
Here's a quick sneak peek at our event and sessions whova.com/portal/registratio…
vimeo.com/1188657644/dcb8404…
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Mar 12
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PBCers Organization retweeted
February marks Rare Liver Disease Month, an important moment to reflect on the patients and families who inspire our work every day.
This month is a time to elevate awareness, deepen understanding, and stand alongside the global rare liver disease community. For us at Mirum, this work isn’t limited to a single day or month. It defines who we are and why we exist.
#RareLiverDiseaseMonth #RareDiseaseCommunity
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PBCers Organization retweeted
Feb 3
It’s Rare Disease Month 💜 Awareness matters. Support patients with rare liver diseases such as PBC and PSC—and help drive research toward effective treatments and a cure. #RareDisease #PBC #PSC
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1 Dec 2025
PBCers Speciality Pharmacy Webinar invprtnership with Orsini - Have you been prescribed a 2nd line treatment for PBC and need to understand how a Specialty Pharmacy works? Watch this video.
youtu.be/jBjK95Orw1Y?si=5uvv… via @YouTube #pbcers
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PBCers Organization retweeted
#RareDiseaseDay unites the global #RareDisease community each February to raise awareness and support.
Join #NORD on Nov. 20 at 12 p.m. ET for the official 2026 RDD kickoff webinar, where you'll learn how to take part in the celebration! Register today: bit.ly/43O47G6
ALT Promotional poster for a webinar titled 'Countdown to Rare Disease Day 2026' scheduled for November 20 at 12 PM ET, featuring the logo of NORD (National Organization for Rare Disorders). The image includes four smiling individuals holding signs related to rare disease awareness, set against a vibrant background with a blend of pink and blue colors.
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PBCers Organization retweeted
24 Oct 2025
👏 The nominees for the Patient Voice Award are: @CCAlliance, @PBCers, @ibdgirls, @GutlessGlamour, @CrohnsColitisFn, @PeggyFund
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16 Oct 2025
PBC Research Foundation and PBCers Form the PBC North American Alliance to Advance Advocacy, and Research in PBC einpresswire.com/article/858… via @ein_news
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13 Oct 2025
Reminder join us this Wednesday at 7 PM ET
30 Sep 2025
The PBCers have partnered with Northeast Liver Alliance on 10/15 at 7 PM to present a webinar for patients dealing with the loss of Ocaliva. #ocawithdrawal #intercept #PBCers #pbcawareness #Ocaliva #NortheastOhioLiverAlliance #NEOLA app.etapestry.com/onlineform…
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PBCers Organization retweeted
9 Oct 2025
👩⚕️👨⚕️ Your patients may be dealing with unexplained fatigue, itching, or brain fog.
Have they heard of PBC?
Share this webisode featuring real patients sharing the signs they missed.
📺 cmeo.me/PE-015
@pbcfoundation @pbcers @draliyamd @monicatincopa @alysonr1224
#LiverDisease #PBC #AutoimmuneDisease #PatientEducation
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30 Sep 2025
Today is the last day of PBC Awareness month. We have shared a patient quote each day of the month. Here is the collection of all of them. Remember to share to increase awareness! facebook.com/share/v/1CyKgFZ…
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30 Sep 2025
Help spread PBC awareness. Share this post with friends and family. Enter our September PBC Awareness Month contest using this link: pbc-society.ca/pbcmonth2025
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30 Sep 2025
The PBCers have partnered with Northeast Liver Alliance on 10/15 at 7 PM to present a webinar for patients dealing with the loss of Ocaliva. #ocawithdrawal #intercept #PBCers #pbcawareness #Ocaliva #NortheastOhioLiverAlliance #NEOLA app.etapestry.com/onlineform…
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29 Sep 2025
Help spread PBC awareness. Share this post with friends and family. Enter our September PBC Awareness Month contest using this link: pbc-society.ca/pbcmonth2025
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28 Sep 2025
Help spread PBC awareness. Share this post with friends and family. Enter our September PBC Awareness Month contest using this link: pbc-society.ca/pbcmonth2025
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27 Sep 2025
Help spread PBC awareness. Share this post with friends and family. Enter our September PBC Awareness Month contest using this link: pbc-society.ca/pbcmonth2025
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