Baseline data on ear disease from #EPICPCD is out in @JAMAOto. This study involves a huge amount of people working in each centre and so many PCD support groups supporting us. Couldn´t be prouder to see results coming out jamanetwork.com/journals/jam…@YinTing_Lam@beatpcd
The German/Swiss PCD support group has a new website and it looks really fantastic! pcd-ks.info/ Our team loved the new logo so much we had to order ourselves some shirts, mugs and tote bags to spread awareness pcd-ks.myspreadshop.de/
The incidence of bronchiolitis among infants dropped dramatically during the first COVID-19 winter, but can we learn from this for preventing bronchiolitis in the future? @EPedersenISPM and @ClaudiaKuehni discuss this in the latest issue of the ERJ erj.ersjournals.com/content/…
Mihaela Alexandru from the ENT centre at Bicetre in Paris talked about #EPICPCD at the PCD patient conference today! We hope the study helps understanding better the upper airways disease in people with PCD @beatpcd@mgoutaki@YinTing_Lam
We are really happy to read so many attended and enjoyed Day 1 of conference! Here is yesterday's thread if you would like to catch up! You can find all presentation slides at the @beatpcd website beat-pcd.squarespace.com/
The thread of the first day of our PCD patients conference 2022 @EuropeanLung including all the authors name and some helpful links can be read here if easier: threadreaderapp.com/thread/1…
We are co-organising a patient conference together with @EuropeanLung and PCD support groups all over Europe. For more information and to register please go to beatpcdpatientconference.eve…. We are looking forward to seeing you many of you there @beatpcd
Very honoured to receive the award for the ERS best abstract of Assembly 7 at the Assembly meeting today. EPIC-PCD is a collaborative study on upper airway disease in PCD involving 13 centres in 10 countries with a large team of collaborators. #primaryciliarydyskinesia@beatpcd
We started the @EuroRespSoc Congress tweeting already today will updates from the @beatpcd ERS CRC and @ErnLung meeting and training school! So many great discussions on #primaryciliarydyskinesia! Very excited for the conference sessions from tomorrow!