Grateful today for the patients, families, clinicians, and the innovative companies working tirelessly to turn rare disease from a life sentence into a livable future.
On Rare Disease Day, we’re reminded that “rare” is anything but rare—hundreds of millions worldwide are affected, yet most conditions still lack an approved treatment. As we move forward and look ahead, I’m inspired by the science, advocacy, and investment accelerating new therapies, earlier diagnosis, and more equitable access to care.
Honoring the resilience of the rare disease community today and every day.
#RareDiseaseDay #ShowYourStripes #LightUpForRare