Platelet Disorder Support Association ~ the premier source for information, treatments, and support for people with ITP (immune thrombocytopenia).
Joined April 2011
- Tweets 3,309
- Following 49
- Followers 1,774
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1,645 Photos and videos
Jun 10
Navigating ITP treatments starts with trusted resources. đź“š
PDSA’s ITP Treatment Tables are designed to help you better understand and compare treatment options. Available for both adults and children with ITP at pdsa.org/treatments/conventi…👆
#ITP #ITPTreatmentTables
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Meet the speakers at the upcoming 26th Annual PDSA ITP Conference in Salt Lake City!
Join us to hear from leading ITP experts while connecting with patients and caregivers who truly understand your journey. Learn more and register at pdsa.org/conferences.
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It’s okay to slow down or change plans when your body needs care. If you’re seeking a community that truly gets it, PDSA’s support groups are here at pdsa.org/find-itp-support. #ITP #ITPsupport
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May 28
Living with ITP can take a lot out of you from planning, worrying, tracking symptoms, and managing the unknown. If your brain is asking for a break, drop a 🧠to show our ITP community that none of us are carrying this alone. #ITP #LivingWithITP #StrongerTogether #PDSA
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May 12
Lupus Awareness Month is a reminder that many in our ITP community carry more than one diagnosis. Whether lupus came first or presented at a later date, we see the challenges you navigate and the resilience you show every day. #ITP #Lupus #SLE #LupusAwarenessMonth
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May 10
Honoring every kind of motherhood in our ITP community today. Whether you’re celebrating, remembering, or navigating a tender path, you’re part of a community that holds you close today and every day. #HappyMothersDay #ITPcommunity
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Apr 22
Primary Immune Deficiency Week reminds us that patients with a primary immunodeficiency not only struggle to fight infections, their immune system may mistakenly target their own cells like platelets which can lead to ITP. Learn more at pdsa.org/other-causes-low-pl…. #ITP #WorldPIWeek
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Apr 20
🌧️Spring weather can change fast—so can life with ITP. Be ready to transition when you need to with a PDSA raincoat!
Visit The Platelet Store at pdsa.org for ITP accessories and awareness items that support you every season. #ITPAwareness #ThePlateletStore
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Apr 18
More than a conference! Join us in Salt Lake City, UT July 24-26th for PDSA's Annual ITP Conference featuring world-renowned ITP experts, a Teen Track, Kids Kamp, and much more! Visit pdsa.org/conferences to register today! #ITP #ITPconference
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Apr 15
Your experience matters. Your voice matters. And someone out there needs to hear your story.
✨ Share your ITP journey for a chance to be featured! Visit pdsa.org for more information and to submit your story! #ITP #ITPWarriorWednesday #ITPWarriorStory
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Apr 14
Pediatric ITP treatment is evolving and collaboration is leading the way. Join Barbara and Dr. Kristin Shimano on how ICON is reshaping research, improving care, and focusing on quality of life for families.
Listen on Apple, Spotify and pdsa.org/s2e31
#PediatricITP
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Mar 17
🍀Just like a clover, every ITP journey is unique. Every story unfolds differently, yet each one reflects remarkable resilience. Leave a 🍀 in the comments if you’re cheering on others in the ITP community — or giving yourself a little extra encouragement today! #ITP
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Mar 11
Expand your ITP expertise with education designed for clinical practice. This no‑cost CME reviews chronic ITP’s impact, current emerging treatments, and practical tools for real‑world care. HCPs can earn 1.0 CME/CE credit at pdsa.org/itp-cme.
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ITP is one of many platelet‑related bleeding disorders. While most cases aren’t life‑threatening, severe untreated cases can lead to very serious complications. Awareness leads to earlier recognition and better support for those living with these often invisible conditions. #ITP
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FACT: We can’t see the full picture of ITP without patient data. Your data helps strengthen research and drives progress. Enroll in the PDSA ITP Natural History Study Registry. #ITP #ITPresearch
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Feb 28
Today is Rare Disease Day! We stand with the millions of people affected by rare conditions—including those living with Immune Thrombocytopenia (ITP).
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Feb 27
Tomorrow is Rare Disease Day. As we prepare to recognize the 300 million people living with rare conditions worldwide, we invite you to hear Michael's empowering journey with ITP and Evan's Syndrome now on Apple, Spotify and pdsa.org/podcast. #ITP #RareDiseaseDay
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Feb 26
Rare Disease Day is coming up this Saturday. To get ready, check out our podcast episode with the CEO of NORD, where we talk about the importance of visibility and support for the rare disease community: pdsa.org/s1e12 #ITP #ITPpodcast #RareDiseaseDay
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Feb 12
Send a valentine to your #ITPwarrior! These little notes are a simple way to remind someone they’re seen, supported, and never facing ITP alone. #ITP #ITPcommunity
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