SUTP works to improve quality of life for people living with postural orthostatic tachycardia syndrome (POTS) through research, advocacy, and support.
Joined December 2014
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1,728 Photos and videos
If you are struggling right now, remember that #POTS isn't your whole story. You are so much more.
#motivationalmonday #potsawareness #chronicillness
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Your friendly reminder to grab those electrolytes! Staying hydrated with #POTS can be a challenge. What's your go-to way to keep your water (and sodium!) levels up?
#hydration #dysautonomia #potsawareness #chronicillness
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A not-to-miss episode if you or your patients need new treatment alternatives for MCAS and related conditions. ThePOTScast.org
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One of the hardest parts of chronic illness is that many of the most exhausting things look “normal” from the outside. What everyday task would you add to the list?
#POTS #potsawareness #motivationalmonday #chronicfatigue
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Betsy Harmon, RN, CRNI, CPUI, VA-BC has been an infusion nurse for over 20 years and runs an infusion center, where she oversees and administers all types of infusions to a wide variety of patients. Listen on your favorite platform or thePOTScast.org
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Whether you’re navigating life with a chronic illness like #POTS or simply supporting someone who is, the desire to be seen and understood is universal.
Take a moment today to truly listen to someone’s story. It makes all the difference.
#awareness #chronicillness #invisible
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Amy is a mom & equestrian who has spent over half her life with POTS. She shares how she finished high school (early), has enjoyed horses throughout periods of being both able and unable to ride, her favorite POTSy activities, and much more. ThePOTScast.org
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Not all illnesses are visible. Conditions like #POTS affect the autonomic nervous system, impacting heart rate, blood flow, and daily functioning in ways you can’t always see.
Symptoms don’t have to be visible to be real.
#dysautonomia #potsawareness #invisible
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“Spoon theory” is a way people with chronic illness describe their daily energy. Each task costs a “spoon,” and there are only so many to use. What cost you the most spoons today? 🥄
#spoonie #invisible #dysautonomia #potsawareness
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Elli from episode 65 is back to share what she wishes she’d known sooner after her 2-year ordeal that eventually resulted in several new diagnoses and surgery for MALS (median arcuate ligament syndrome). Listen on your favorite platform or ThePOTScast.org
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A powerful way to describe the invisible grief of chronic illness: the gap between what you long to do and what your body allows. Does that resonate with you?
#POTS #invisibleillness #motivationalmonday #awareness #chronicillness
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Living with #POTS means pushing through challenges that aren’t always visible. Just because someone appears to be managing doesn’t mean their struggle isn’t real.
#motivationalmonday #potsawareness #invisibleillness #dysautonomia
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Aryn was a serious college athlete when POTS developed. Despite having world class cardiology care, her diagnosis would have been missed if it hadn’t been for another POTS patient recognizing her symptoms and Aryn’s asking for a tilt table test. ThePOTScast.org
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Living with chronic illness is a deeply personal journey. There’s no single “right” way to do it. What matters most is finding what works for you, at your own pace.
#POTS #motivationalmonday #potsawareness #chronicillness #support
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Krysti helps families apply for children’s disability benefits. In this episode she describes the available programs, application process, challenges, deadlines and she shares how listeners can get free consultations and other resources from her law firm. ThePOTScast.org.
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Living with #POTS can be challenging enough without having to hear these common, but hurtful, comments. What would you add to the list?
#motivationalmonday #potsawareness #whatnottosaytoapotsie #potssupport
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Dr. Melanie Stein, ND is a leader in Cell Membrane Therapy for the treatment of complex chronic illness. she and Dr. Dempsey discuss why cell membrane health is relevant to MCAS, testing and treatment approaches, their favorite treatments, and much more. ThePOTScast.org
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