Aug. 7: World PVNH Disorder Awareness Day! Wear pink/yellow to show support for affected children, adults & their families. @PVNHsupport #hererotopiadisorders
Joined August 2015
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PVNH Support & Awareness celebrates Rare Disease Day by sharing Yolaine's story, in memory of Ella, the soul behind our work.
What a day! Yolaine Dupont shared a photo and message this am, then recorded this video for #RareDiseaseDay, but it never got posted because it was too
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long. So here we go: youtu.be/oXoucb8J6f4
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#neuronalheterotopia
#PVNH #gmh #SBH
#RareEpilepsy
#periventricularnodularheterotopia
#greymatterheterotopia
#SubcorticalBandHeterotopia
#awareness
February 28, 2025
Yolaine shares her story, Ella's story and her mom's story for Rare...
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PVNHday retweeted
5 Sep 2024
Le Canada recrute ! 📅 #DestCanTourisme revient les 13, 14 et 15 novembre pour mettre en relation des travailleurs francophones qualifiés des secteurs du tourisme, de l'hôtellerie et de la restauration avec des employeurs canadiens. Plus d'info 🔗destinationcanadatourisme202…
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PVNHday retweeted
7 Aug 2024
It's here!!
@pvnhday !! Help us snap photos of illuminations, show your #pinkandyellow and share your stories!!
#PVNH #PVNHloud #worldpvnhday #pvnhday
#GMH #SBH #EpilepsyAwareness
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Happy pride! Come by booth 18-19 for a massage and a chance to win a trip for 2 to #thailand on #aircanada!
@aircanada @thailandinsidercanada @gothaibefree @vancouverpride
#flytheflag
#happypride
#vancouverpride
#canadapride2024
#VanPrideFest
// Joyeuse journée de la fierté!
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Passez au kiosque 18-19 pour un massage et la chance de gagner un voyage pour 2 en Thaïlande sur Air Canada!
#hautledrapeau #fierté
#vancouver
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Did you take photos last night of will you be snapping photos tonight? ? Share with your family and friends and tag @pvnhsupport & @PVNHday.
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PVNH Day Illuminations are starting a day early in Australia. Tag pics or videos to @pvnhsupport @pvnhday
#prequel
#PVNH #GMH #SBH #landmarks
#illuminations #awareness #brain #rarediseases #epilepsy .#rareepilepsy #malformationsofcorticaldevelopment
#MCD #neuronalheterotopia
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Congrats to Felicitys' parents and family on raising awareness for #WorldPVNHday.
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9 Aug 2022
Fliss' Day to Mark Awareness of PVNH - henleyherald.com/2022/08/09/… @PVNHsupport @PVNHday #Henley
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More illuminations tonight ahead of World PVNH Day, in Ontario and British Columbia.
#WorldPVNHday
#PVNHawareness
#CorticalMalformation
#PVNH #GMH #SBH
#PVNHloud
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Just posted a photo @ Brisbane, Queenland, Australia instagram.com/p/Cgy4OhJOxCg/…
Get your #pinkandyellow ready and stay tuned for our list of illuminations lighting up between Aug. 4 and Aug. 7 for #worldPVNHday!
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Trying to catch up on an amazingly successful and busy World PVNH Day #10!!! instagram.com/p/CSTogyiLS7D/…
Thank you @TELUS_Spark !!
7 Aug 2021
💓 💛 Spark will be lit pink and yellow in support of World PVHN Awareness Day.
@PVNHsupport @PVNHday @vangroovymom
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Just posted a photo @ Edmonton, Alberta instagram.com/p/CSGNjmvrEGE/…