"It costs so much to do a disease trial today that it's just not economically viable to look into those rare diseases. As sad as it may sound."
- Faizan Shaharyar
In this episode of
#ByteSight, Dr. Manasi A-Ratnaparkhe speaks with Faizan Shaharyar, founder and CEO of Leg&airy, about the uncomfortable reality behind the term "
#raredisease".
With an estimated 300 million people globally living with a rare condition, are these diseases actually rare, or just chronically under-researched, underfunded, and misunderstood? Faizan brings both personal experience and entrepreneurial insight to a conversation about why translation, not technology, is the missing link; why AI cannot fix what incomplete data created; and what it will take to build a healthcare system that finally sees these patients.
Tune in for an honest, thought-provoking conversation about the next frontier of medicine and who will pioneer it.
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