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Pain In The ALS - Fundraising for MND Families @PainInTheALS

Keeping Mike's Legacy going.. A brave & determined 5 yr fight with MND. Read Mikes blogs: painintheals.co.uk

Joined April 2017
  • Tweets 937
  • Following 247
  • Followers 597
224 Photos and videos
Huge thanks to everyone involved in making our 8th Annual Pain in the ALS Golf Day a success! Held @Brickhamptongc and raising much needed funds and awareness for @mndassoc we raised £11, 250.12 #forcrispy #painintheals #Charity #mndawareness
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The Pain in the ALS 7th Golf Day was epic last Friday..raising over £16k for @mndassoc and @PainInTheALS .. The BIGGEST thanks to all who played, donated, contributed. #forcrispy Thanks to our hosts @Brickhamptongc
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Keep going Tim! You're a machine! Lush to see you and we urge anyone for this final week to go out and support where you can. thegreatruggerrun.org/ A million metres for MND! #MND

Home - The Great Rugger Run

An annual running challenge, created and completed by Tim Tunnicliff - host of The Amateur Rugby Podcast. It combines his love of rugby, running, travel and

thegreatruggerrun.org
The Great Rugger Run@RuggerRun
27 Aug 2023
Replying to @Deacs3 @LonglevensRugby @HalbroSports
A brief stop @OldRichians was followed by a surprise meeting at @CHFPRFC where I met Becki and Freddie Crisp for the first time. Such a joyful moment. Thanks so much for coming out and watch out for those tigers in the grass, Freddie! @PainInTheALS
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The Great Rugger Run@RuggerRun
10 Aug 2023
Day 2 on The Great Rugger Run @MilfordHavenRFC (08:30) > @PembrokeDHRFC (10:30) > @PembrokeRFC (11:45) > @TenbyUTDRFC (14:30) > @Narberth_RFC (17:00) Come and join me or give me a wave! #fordoddie #4ED #freddiecrisp #MND #myname5doddiefoundation #rugbyunited
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Huge good luck to the amazing @RuggerRun. His epic challenge has begun in West Wales. Tim will total a million metres in 25-days whilst visiting 170 rugby clubs all of @mndoddie5 @4edfundraising @mndassoc & a little nod to #FreddieCrisp at the end finishing at CheltRFC 💙
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Egg Chasers@EggChasersXV
9 Aug 2023
This is what awaits @RuggerRun on the last day….
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The Great Rugger Run@RuggerRun
26 Jul 2023
On August 24th I'm due to visit three clubs in the #forestofdean - does anyone know anybody @CaldicotRFC @CRFCWomensRugby @CHEPSTOWRFC @ChepstowRFC_MJ and especially @lydney_rfc (@lydney_rfcU16s) - where I played many times in the '90s representing @GRFUrugby Please RT or tag
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MummywithMND@MummywithM
27 Jul 2023
Strong, determined, positive...just like Doddie 🩵. Thank you @MNDoddie5 . #MND Community please retweet. We must be relentless in our pursuit of this effective treatment.
My Name'5 Doddie Foundation@MNDoddie5
27 Jul 2023
We believe that the 8 month delay in gaining sight of the data from the MIROCALS trial involving Proleukin is unfortunate and unacceptable. We call on leaders of the consortium to release the data so research experts can assess it further. Full statement myname5doddie.co.uk/whats-on…
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Just amazing..
BBC Breakfast
@BBCBreakfast
1 Dec 2022
Former Leeds Rhinos player Rob Burrow is to read a CBeebies Bedtime Story using ground-breaking technology, the first time a bedtime story has been read this way. bbc.com/mediacentre/2022/rug…
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HUGE thanks to everyone involved in our 5th Annual Golf Day..an amazing £10,000 was raised for Pain in the ALS and @mndassoc (glos). @Brickhamptongc were perfect hosts once again. #forcrispy #legendliveson
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The 5th Pain in the ALS Golf Day in full swing @Brickhamptongc
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Preparations under way for our 5th Annual Golf Day for Pain in the ALS and MND Glos @Brickhamptongc tomorrow. #forCrispy #norainplease
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Egg Chasers@EggChasersXV
27 Jul 2022
Next Game News as we pitch up to @CSRFCtweets Free league weekend for many so be great to see your support. Monies raised direct to @PainInTheALS @mndassoc #weareeggchasers #forcrispy
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Andy Jarrett@AndyJarrett3
31 May 2022
Got an absolute blast sorted for both game and dinner… If anyone fancies a seat/table please do get in touch 🤙
Egg Chasers@EggChasersXV
31 May 2022
Still a few seats left for our spectacular charity dinner following the game v Cherry Pickers. Get in touch to book yours
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Excited to share that #mikesbench has arrived! Beautifully restored and pride of place on The Promenade, Cheltenham. Huge thanks to those who donated and made this happen. A great place to chat, stop for coffee or a snooze.. #mikesbench #alwayssmiling #loveyoucrispy
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Words can’t convey our sadness, our wonderful Mike’s admirable fight with MND came to an end this morning. He showed such determination to live a full life with us these last 5 years. Gone but not forgotten #legend #MND #painintheALS #alwayssmiling
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Keep up to date with our 4th Pain in the ALS charity golf day through the live @vpargolf scoring system club.sms.vpar.com/public/tou… @VenatourTravel take an early lead as always.. Keen to be first to the bar!

ALT Findlaymarks Golf GIF
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Today was the memorial of a man who helped shape mine and so many others time playing rugby. Woody you were taken far too early and your are missed by many. It was important to me to show my face but absolutely exhausting saying hello to everyone. #MND
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Please get behind this incredible achievement.
John Clark@john_clark86
14 Aug 2021
41 marathons in 41 days to raise money to end childhood poverty. 7 days and counties left…. £26,000 raised so far. We keep moving forwards. JustGiving.com/campaign/4848… #Miles4Meals @MarcusRashford
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