A network providing strategic leadership, oversight, & clinical decision-making for haemoglobinopathy patients. Chair: Prof. Baba Inusa @PdbInusa
Joined October 2020
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Our website now includes a page which will contain guidance and information related to the COVID-19 vaccine for patients with haemoglobinopathies. We'll keep it updated in line with new developments. nationalhaempanel-nhs.net/co… #COVID19Vaccination #COVIDVaccine #teamhaem
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Big day tomorrow for all our excellent clinicians and experts in haematology and #SickleCell and of course their patients. Awareness and advocacy are vital. #SickleCellAwarenessDay
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...and as the NHP's very own Deputy Chair, Prof. Porter provides invaluable expertise for our monthly complex patient MDTs.
16 May 2021
Third to present is Prof John Porter, Consultant Haematologist at University College London Hospital and lead for the joint red cell service with the @WhitHealth @HCC_UCLH on clinical trials
Prof Porter is also the Vice Chair of the @PanelNational for #thalassaemia!
#uktsconf
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Well done and congratulations @gpadmore1
12 May 2021
Incredibly proud of Giselle Padmore-Payne ,Senior CNS who dedicates her all to improve the lives of those with #thalassaemia & #SCD
HRH "Whenever I have the great pleasure of meeting Roald Dahl Specialist Nurses,I'm always struck by kindness, resourcefulness & boundless energy"
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Important research on #COVIDVaccination in cancer patients from @KingsCollegeLon
15 Mar 2021
Cancer patients may need their second dose of COVID-19 vaccine in three weeks, not 12 weeks, British researchers reported last week. bit.ly/3cNsCIr
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Our friends at West London HCC have produced an informative FAQs guidance sheet on the #CovidVaccine. Find it along with other guidance on COVID-19 vaccines in haemoglobinopathy patients on our website. Thanks @docesr and colleagues. nationalhaempanel-nhs.net/co…
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Interested in learning more about 'transfusion challenges in haemoglobinopathy'? You can view the video of this event hosted by @STSTNetwork & the papers given by @redcellsara & Dr Stella T. Chou of the Children's Hospital of Philadelphia via our website: nationalhaempanel-nhs.net/ed…
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The Sickle Cell Disease Association of America Medical and Research Advisory Committee (MARAC) has issued a statement regarding the temporary suspension of bluebird clinical trials of LentiGlobin Gene Therapy for Sickle Cell Disease. Read via our website: nationalhaempanel-nhs.net/ne…
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We have recently published information on COVID-19 in haemoglobinopathy & rare anaemia patients, dealing with case numbers, hospitalisations & clinical outcomes. It can be found with other resources on COVID-19 on our website nationalhaempanel-nhs.net/co…
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Our NHP clinicians are at the forefront of treating patients with rare anaemias and helping them to live healthy and fulfilling lives. Long may it continue. #RareDiseaseDay2021
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24 Feb 2021
Asking twice can make all the difference.
Here are some tips on how to start conversations about mental health with your friends, family or colleagues.
#TimeToChange #MentalHealth ⬇️
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UK National Haemoglobinopathy Panel retweeted
24 Feb 2021
Asking twice can make all the difference.
Here are some tips on how to start conversations about mental health with your friends, family or colleagues.
#TimeToChange #MentalHealth ⬇️
24 Feb 2021
If you think a friend might be struggling with their mental health, asking twice can make all the difference.
For more advice on how to get conversations around mental health started, check out these tips by @TimetoChange ➡️ time-to-change.org.uk/blog/5…
ALT An illustration of a text message conversation is pictured. The messages from the sender and receiver read, "are you okay?", "Yeah I'm okay", "Are you sure you're okay, mate?", "Well actually"...
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Thanks to all those who attended yesterday's monthly MDT for February, some excellent and thought-provoking discussions on pregnancy in #sicklecell patients, management of extramedullary haematopoiesis, and other issues.
Next MDT is Monday 29th March.
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NHP clinicians! One for the calendar. #sicklecelldisease #thalassaemia
22 Feb 2021
Really interesting sequence of talks with experts in genomics and blood transfusion. A must for people interested in blood transfusion #sicklecelldisease #thalassaemia @PanelNational
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Hello NHP clinicians - who's interested? Please pass on to all who may be interested in this opportunity. #haemteam #clinicalscience
18 Feb 2021
BSH is looking for a clinical scientist to represent haematology at the ACS. The BSH representative is nominated as an ACS Director/Trustee and is considered the lead for the haematology within the ACS. To apply go to our website. bit.ly/3jZEj1H
Rebecca Sekyere, a Haemoglobinopathy CNS in Leicester, talks about her experience of getting the #COVID19Vaccine
14 Feb 2021
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Please circulate among South London-based patients, families, and clinicians, and encourage them to take part in this important initiative. It's a brief survey, will only take 5 minutes to complete. #sicklecell
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Another important piece of work from clinicians involved with the NHP. Kudos!
16 Feb 2021
If you are interested in our plans to improve transfusion for people with sickle cell you may find this interesting #SickleCell @SickleCellUK @RedCellsrus @PanelNational @NHSBT_RD
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"HCC is looking forward to the new Grafton Way Building, with our fantastic art installation, by Dryden Goodwin, giving us an amazing presence and featuring some of HCC’s heroes."
Stephen Rowley
HCC Chair
Senior Matron Haematology @uclh
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UK National Haemoglobinopathy Panel retweeted
16 Feb 2021
If you are interested in our plans to improve transfusion for people with sickle cell you may find this interesting #SickleCell @SickleCellUK @RedCellsrus @PanelNational @NHSBT_RD
Great news! If you missed @SimonStanworth @redcellsara @WilliamAstle's superb talk about extended blood type matching for red cell transfusion to improve outcomes for patients w/ sickle cell disease, you can watch it here anytime: tinyurl.com/ns5a26ut @NHSBT_RD @DrRachelKesse
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