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Patient Power @PatientPower

Connect to the knowledge of a community of cancer experts, patient advocates, and cancer patients. #PatientPower

Joined March 2009
  • Tweets 19,509
  • Following 1,784
  • Followers 5,275
3,814 Photos and videos
TOMORROW: Join us for a discussion on the importance of disease risk assessment in Multiple Myeloma. patientpower.info/events/ans…
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Why do we need red blood cells (#RBCs) and what is their function in the body? When I have a #bloodtest that looks at RBCs, what do all the various terms mean? Find out. patientpower.info/navigating…

What is the Function of Red Blood Cells?

RBCs deliver a continuous stream of oxygen to every cell of your body, and pick up about 75% of the excess carbon dioxide taking it to the lungs to be exhaled.

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Jennifer Saullo, MD, PharmD, an infectious disease specialist at @DukeU Hospital spoke with Patient Power about why #revaccination and infectious disease control is important for some #cancer patients. patientpower.info/navigating…

When Do Cancer Patients Need to Get Revaccinated?

Following intensive treatments like stem cell transplant or cellular therapy, it can be key for patients to redo vaccinations.

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We saw this article from the NY Times and wondered if patients with #cancer can relate. Does your cancer fatigue prevent you from taking care of your surroundings? nytimes.com/2023/01/10/well/…

‘Depression Rooms’ and ‘Doom Piles’: Why Clearing the Clutter Can Feel Impossible (Published 2023)

The link between messiness and mental health is real. These low-lift tips for keeping a clean-enough home will help.

nytimes.com
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COMING UP! Join us for a new live #CLL event happening Weds, Jan 25th. CLL patient advocate @MicheleNadeemB & expert @AdamKittai from the @OSUCCC_James will discuss how to navigate the often-confusing state of “watch and wait.” See more & sign up: bit.ly/Jan25CLL

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What Is Prior Authorization? Prior authorization, simply put, is a process used by insurance companies to review a proposed treatment recommended by your doctor prior to you receiving the treatment and determine whether they will cover it. bit.ly/3GKRroj #leusm #mmsm

What is Prior Authorization?

If your health insurance company makes a request for “prior authorization,” know what the implications are for your cancer care.

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What Do #Leukemia Bruises and Rashes Look Like? Understanding more about leukemia bruises and other common symptoms can also help you understand more about the disease process, what to look for, and when to consult your physician. bit.ly/3XciuOX #leusm #aml #cll
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"After five rounds of chemo and a stem cell transplant, making it through that, I felt like I had been given a second chance, so I wanted to find a way to give back." Patient Advocate Don Armstrong: How an #AML Survivor Gives Back: bit.ly/3CrGLbT #leusm

Patient Advocate Don Armstrong: How an AML Survivor Gives Back

Meet patient advocate Don Armstrong as he shares his AML diagnosis story and ways he gives back to the cancer community after feeling like he’s been given a second chance at life.

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NEW: Research found that people who participated in a combination of a physical activity program and psychological therapy reported better #mentalhealth, #physicalhealth, and quality of life than patients who received standard care. More: bit.ly/3YQk36v #leusm #ny2023

Benefits of Addressing Physical and Mental Health in Tandem

Are you a patient with cancer whose New Year’s resolution is to move more? Data suggest benefits of addressing mental and physical health in tandem.

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You asked, we answered! Recently, a Patient Power user asked, “Could tingling, numbness, then sharp pain in my toes be anything to do with my chronic lymphocytic leukemia (#CLL)?" We took this question to expert, @NitinJainMD : bit.ly/3CnnA2y #leusm

Can CLL Be Linked to Neuropathy?

A patient asked whether her neuropathy could be linked to her chronic lymphocytic leukemia (CLL) diagnosis, and an expert offered advice. Learn more.

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Most people know that smoking is the number one risk factor for lung cancer, but fewer are aware that smoking is also the most important risk factor for the development of #bladdercancer. bit.ly/3QbZHkv #smokingrisk #quitsmoking
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Breast Dimpling: Can This Be a Sign of #BreastCancer? Dimpling, puckering, or pitting that looks similar to an orange peel – sometimes called peau d’orange – is often a specific sign of breast cancer and should be seen by a doctor right away. bit.ly/3Im0QUA
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"Grief may feel like a solitary reality, but the truth is: You are not alone." See here for 7 ways to navigate grief’s ups & downs from Michael McDonald, who was diagnosed with acute myeloid leukemia & lost his wife, Phyllis, to cancer: bit.ly/3XpKcsb #leusm #caregiver

Emotional Stages of Cancer: What to Expect & How to Cope

Learn about the emotional stages of cancer, from diagnosis to treatment, and find coping strategies for patients and loved ones.

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A new year is a good time to review how secure your medical records are & what to do if there is a breach. We go over the ways your information could be stolen & what to do: bit.ly/3SVeUpG #newyear #healthcare
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NEW: Our expert walks through treatment decision-making for multiple myeloma patients. patientpower.info/multiple-m… #mmsm #myeloma

Which Factors Affect How R/R Myeloma Patients are Treated?

An expert walks through treatment decision-making for R/R myeloma patients. One key part of the equation is sequencing.

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Happy New Year! We hope 2023 brings you comfort & joy. 💙
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Going into the new year, you may be looking to incorporate more #exercise. But if you're undergoing #cancertreatment, how can you do this safely? See here for top tips: bit.ly/3rMoDUi #NewYear23 #NY2023 #leusm #mmsm #mpnsm #bcsm #lcsm
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How Does #MultipleMyeloma Affect Kidneys? Our expert xplains that monitoring kidney function can tell a medical team a great deal about bone marrow without having to go to the marrow and can be used to judge overall toxicity. More: bit.ly/3i63jIc #mmsm
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ICYMI: "This recipe is tailor made for crockpots, perfect for winter. With a motherlode of essential antioxidants contained in the following ingredients, it really does promote power to the patient." See this nutrient powered recipe from @ChemoCookery: bit.ly/3VlcMsB
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When Christy Vaal, MSW, LCSW, was diagnosed with #CLL in 2017, she was shocked. Despite having training on how to help others, suddenly she had to learn how to support herself. She shares her top tips on how to cope with cancer over the #holidays. More: bit.ly/3Xb2IV5
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