We're a resource for engaging, informative content and rare patient news, well done.
Joined April 2015
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31 Jul 2022
At Patient Worthy, we aim to publish the realities of #RareDisease. Your voice is integral to achieving that goal.
Would you like to contribute and share your story? You can submit here - patientworthy.com/contribute… - OR let us know if you'd like to work with a writer.
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We're honored and thrilled to bring you this article by Dr. Avishek Kumar, discussing breaking news on how pancreatic cancer treatment has potentially been changed forever. Read here:
bit.ly/4x5u2pX
#PatientWorthy #Cancer #PancreaticCancer #ShareYourStory
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May 29
Caplyta Gains FDA Approval for Schizophrenia Relapse Prevention with Significant Clinical Benefit bit.ly/4wIdd3V Read now at PatientWorthy.com
#PatientWorthy #Schizophrenia #Caplyta
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May 28
Votoplam Advances to Phase 3: Novartis and PTC Chart Measured Path for Huntington's Disease Treatment bit.ly/4nFdZKZ Read now at PatientWorthy.com
#PatientWorthy #Votoplam #Novartis #PTC #Huntington'sDisease
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May 27
Attruby Emerges as a Compelling Alternative to Vyndamax in Cardiac Amyloidosis Treatment bit.ly/3Rn5RmA Read now at PatientWorthy.com
#PatientWorthy #VYNDAMAX #ATTR-COM #CardiacAmyloidosis #Attruby
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May 26
RNA-Targeting CRISPR: A Breakthrough Approach to Inhibiting Hepatitis E Virus bit.ly/3PRqkzk Read now at PatientWorthy.com
#CRISPR #PatientWorthy #HepatitisE
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May 25
Breaking Through: UniQure's Huntington's Gene Therapy Pursues UK Approval After US Setback bit.ly/4f1KjWo Read now at PatientWorthy.com
#PatientWorthy #UniQure #Huntington'sDisease
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May 22
Merck and Exelixis Team Up to Transform Treatment for High-Risk Colorectal Cancer Patients bit.ly/4dBbqVQ Read now at PatientWorthy.com
#PatientWorthy #ColorectalCancer #Keytruda
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May 21
Breakthrough Recognition: Atossa's (Z)-Endoxifen Earns FDA Rare Pediatric Disease Designation for McCune-Albright Syndrome bit.ly/3ROjdrT Read now at PatientWorthy.com
#PatientWorthy #(Z)-Endoxifen #McCune-AlbrightSyndrome
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May 20
Expanding Hope for Rare Skin Disease: CHOP Becomes Sixth Treatment Center for Revolutionary ZEVASKYN Gene Therapy bit.ly/3R8jHJr Read now at PatientWorthy.com
#PatientWorthy #CHOP #EB #ZEVASKYN #GeneTherapy #RDEB
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May 19
When Breakthrough Drugs Need a New Home: Inside the Arvinas-Rigel Partnership bit.ly/4nw4r59 Read now at PatientWorthy.com
#PatientWorthy
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May 18
Breaking Through Resistance: New Cancer Combo Shows Promise as Biotech Pipeline Advances bit.ly/4wuaMC4 Read now at PatientWorthy.com
#PatientWorthy
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May 15
The Quiet Revolution: When Hospitals Stop Being Your Second Home bit.ly/4u0TOtx Read now at PatientWorthy.com
#PatientWorthy #SLE #SystemicLupusErythematosus
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May 14
Solving Cell Therapy's Dirty Secret: How One Partnership Could Unlock Consistent Treatments bit.ly/3Rqa0pw Read now at PatientWorthy.com
#PatientWorthy #EB #EpidermolysisBullosa #INmune Bio #Anthony Nolan
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May 13
We're honored to share the story of Wojciech Biesaga, a patient from Poland who is fighting against severe Crohn's disease, as well as several other diagnoses and complications. Read here:
bit.ly/4u7IJGS
#PatientWorthy #ShareYourStory #Crohns #CrohnsDisease
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May 13
Pre-Surgery Immunotherapy Rewrites Colorectal Cancer Survival: Zero Recurrence at Three Years bit.ly/4ddxmGm Read now at PatientWorhty.com
#PatientWorthy #ColorectalCancer
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May 12
Breaking Ground: New Targeted Lupus Treatment Enters Critical Phase 3 Testing bit.ly/4u41E5I Read now at PatientWorthy.com
#PatientWorthy #Lupus #ClinicalTrials #Enpatoran
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May 11
Ireland Embraces Hope: Revolutionary EB Gel Treatment Now Available Through HSE bit.ly/3P47iWc Read now at PatientWorthy.com
#PatientWorthy #EB #EpidermolysisBullosa #Filsuvez
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“I encountered a significant challenge when I was diagnosed with male breast cancer."
If you are interested in sharing your healthcare journey, click the link: bit.ly/4dV7gru
#malebreastcancer #shareyourstory #patientworthy #whatnext
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Labcorp Brings Breakthrough Diagnostic to Identify Platinum-Resistant Ovarian Cancer Patients bit.ly/4dalCW8. Read now at PatientWorthy.com
#PatientWorthy #Lapbcorp #OvarianCancer
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FDA Priority Review Accelerates Path for IMAAVY as First Treatment for Warm Autoimmune Hemolytic Anemia bit.ly/4tNiRzS. Read now at PatientWorthy.com
#PatientWorthy #IMAAVY #WarmAutoimmuneHemolyticAnemia #wAIHA
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