Project Lyme’s mission is to eradicate the epidemic of tick-borne diseases through awareness and education, support of cutting-edge science, and advocacy.
Joined March 2016
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🧵1/3 At 17 years old, Lillyana's life changed after a tick bite. What began with a 104-degree fever and a trip to the emergency room became years of chronic pain, neurological symptoms, brain fog, physical limitations, and emotional isolation.
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2/3 7 months passed before she was diagnosed with Lyme disease. Even then, the challenges were far from over. Today, at 22, Lillyana continues to search for answers while navigating the lasting effects of Lyme disease and related health conditions. She is also writing a memoir.
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3/3 By sharing her story, Lillyana hopes others living with Lyme disease will know they are not alone.
Do you have a story to share? Connect with us at projectlyme.org/share-your-s…
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Jun 12
🧵1/2 When chronic Lyme disease enters a relationship, it doesn't just affect the person who is sick. Both partners wind up facing challenges they never expected.
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Jun 12
2/2 On a recent episode of the Love, Hope, Lyme Podcast, Lyme survivor and author Sarah Krivos shared how years of fatigue, pain, brain fog, and uncertainty nearly cost her marriage.
Learn more by @Lymenews lymedisease.org/lyme-puts-ma…
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Jun 12
🧵1/3 A newly published CDC report identified the first known case of Borrelia mayonii—a less common bacteria that can cause Lyme disease—in a New York resident who had not traveled outside the state.
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Jun 12
2/3 After the patient became ill in 2025, investigators tested ticks collected from the person’s property and found multiple ticks carrying B. mayonii, confirming that the bacteria is now being transmitted locally in NY. B. mayonii had previously only been observed in WI & MN.
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Jun 12
3/3 While most Lyme disease cases in the U.S. are caused by Borrelia burgdorferi, this discovery highlights how the landscape of tick-borne diseases continues to evolve.
Read more from @CDCgov cdc.gov/mmwr/volumes/75/wr/m…
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Jun 10
🧵1/3 ✨ Project Lyme is proud to announce our 10th Anniversary Gala host — Krista Williams, best-selling author and co-host of Almost30.
On Monday, Sept. 14, 2026, we will gather in Manhattan, NYC, for a milestone evening celebrating a decade of research, education, & advocacy.
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Jun 10
2/3 We are honored to have Krista — a powerful voice in wellness, health, and personal growth — lead this meaningful night alongside leaders across healthcare, philanthropy, media, and the patient community.
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Jun 10
3/3 The evening will also feature a special recognition of Phyllis and Scott Bedford for their extraordinary contributions to the Lyme and tick-borne disease community through their @LymeLightFNDN
Tickets are now available: projectlyme.org/10th-anniver…
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Jun 9
🧵1/5 From Amy Kurtz: Four years ago, I was sitting in the exam room of my 36th doctor. I was waiting for test results, bracing myself for another round of heartbreak and disappointment.
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Jun 9
4/5 That is why I decided to write my second book, ‘But You Look Fine.’ It is my mission to help people with invisible illnesses feel less alone and to break the silence on this crucial, painful, and pervasive part of healing out of the shadows and into the light.
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Jun 9
5/5 Learn more about Amy’s new book: amykurtz.com/but-you-look-fi…
Amy is coming to NY and invites you to join her at 2 amazing bookstores:
Barnes & Noble UWS, Wednesday, June 10, at 7 p.m.: stores.barnesandnoble.com/ev…
WORD bookstore, June 11 at 7 p.m.: withfriends.co/event/2813060…
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Jun 8
Are you a man whose life has been affected by Lyme disease or another tick-borne illness? We invite you to check out our next free online men's meet-up, hosted by Lyme advocate David Butler. Join us on Thursday, June 11th, at 7 p.m. EST. RSVP today: projectlyme.org/event/mensup…
ALT Join Us For Our Next Online Men's Meet-Up on Thursday, June 11th, at 7 p.m. ET
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Jun 7
You've probably heard that Lyme disease is spread by a tick bite. It can also be passed from mom to baby in utero, often without the mom realizing she has it. Watch this video from Project Lyme and @MomsAgainstLyme and learn more: projectlyme.org/resource/con…
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Jun 6
1/ NJ attorney Marty Novar wasn't feeling well, so he skipped a Thanksgiving trip with family. The next day, when his partner called, he couldn't finish a sentence. He didn't recognize familiar details of his own life. His brain was inflamed — and it was caused by Powassan virus.
ALT A Tick Bite Took Marty's Memories
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