RSDSA's mission is to provide support, education, and hope to everyone affected by #CRPS while we drive research to develop better treatment and a cure.
Joined August 2009
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Thank you to @WMBFNews for speaking with the Conway Riverwalk, SC team during our 7th Annual Walk for #CRPS on Saturday! 🧡 #CRPSAwareness
Dozens gather in Conway to walk for CRPS awareness wmbfnews.com/2026/06/06/doze…
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We’re have our first posts on the new RSDSA Message Board! 📷
→ onekountrygirl writes about her SCS
→ sunshinesideoflife discusses the 25th anniversary of her #CRPS diagnosis
→ cindyb asks about ketamine troches
Join the conversations by visiting messageboard.rsds.org
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Thank you to Ambros Therapeutics for serving as a Gold Sponsor of RSDSA's 7th Annual Walk for CRPS!
We can't wait to see everyone out and about on June 6th. It is not too late to register: secure.qgiv.com/event/walkfo…
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RSDSA is proud to announce a new message board community at messageboard.rsds.org!
The new tool is intended to provide a moderated and supportive environment for individuals affected by CRPS, including patients, caregivers, friends, family members, and advocates.
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Today on the RSDSA blog we hear from Mia Lane whose daughter developed #CRPS at 13 years old.
Read on as she discusses receiving an early diagnosis, her daughter's treatment protocol, and her journey to remission. ↓ rsds.org/five-minutes-that-c…
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RSDSA retweeted
Being diagnosed with Complex Regional Pain Syndrome (CRPS) often means having a lifetime of pain and disability. A woman with CRPS refused to accept that bleak diagnosis and turned herself into a triathlete. rebrand.ly/crps-patient-3d53…
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Join us tonight!
RSDSA is hosting a free livestream with #CRPS Warrior Gabi Baylor on Thursday, May 14 at 7PM Eastern on Facebook and YouTube. The livestream will focus on CRPS and all things mental health.
Reply to this tweet with your questions or send them to us via a DM.
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The April 2026 edition of RSDSA's digital newsletter, In Rare Form, is now available: bit.ly/4sRCQfE
Click through to learn about a new #CRPS trial by Ambros Therapeutics, our summer and fall events, support groups, and much more!
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.@EveryLifeOrg will provide one-time $5,000 scholarships to up to 58 rare disease recipients this year via the #RAREis Scholarship Fund. The Fund helps adults with rare diseases in a variety of educational pursuits.
Apps are open through 4/28 at 2 PM EST: scholarshipamerica.org/schol…
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"Men’s immune systems may have a better mechanism for shutting off pain, likely because of their higher testosterone levels." nbcnews.com/health/womens-he…
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The February 2026 edition of RSDSA's digital newsletter, In Rare Form, is now available!
In this packed issue we continue to focus on #CRPS research, support, and community!
Dive in today: bit.ly/4rHKI32
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Searching for the perfect holiday gift for the #CRPS Warrior in your life? Look no further than our gift guide! rsds.org/giftguide/
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The videos from our Treating The Whole Person: Optimizing Wellness Conference are now available on the RSDSA YouTube Channel: bit.ly/43QvpvJ
Please help us spread the word about this resource!
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The December 2025 edition of RSDSA's digital newsletter, In Rare Form, is now available: bit.ly/44DnT7D
In this issue we recapped our busy year, announced a bipartisan resolution on #CRPS Awareness Month, provided details on our new "Dear Abby" column, and much more!
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Boo! 🎃The October 2025 edition of RSDSA's digital newsletter, In Rare Form, is now available! bit.ly/3WxCJIs
If you are interested in sponsoring a future issue of In Rare Form, please contact us.
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