The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.
Joined July 2009
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The SCDAA Q2 Advocacy Update has been published! Read more about the impact of our recent Advocacy Days on Capitol Hill and get the latest updates on SCD legislation β‘οΈ buff.ly/YtvWmKS
#SickleCellMatters
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World Sickle Cell Day is one week away! Are you ready to show the world that #SickleCellMatters? Share your story to help raise awareness and get involved by joining our community at one or more of the below events.
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VIRTUAL 24-HOUR SICKLE CELL AWARENESS AND ACTION EVENT - June 19
Hosted by @globalscdorgs and @CayenneWellness, this 24-hour global broadcast highlights the voices of warriors, caregivers and medical professionals.
π buff.ly/S8sWZRB
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And/or, find an SCDAA member organization event near you β‘οΈ buff.ly/3SdAr63
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Coming up! Register to join the National Heart, Lung, and Blood Institute (NHLBI) and SCDAA at the upcoming sickle cell disease community forum Research That Heals: Partnering with Patients to Transform SCD Care. Learn more: buff.ly/2xPsd0o #SickleCellMatters
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Time is running out! β°οΈ The deadline to submit your sickle cell research to the 2026 SCDAA Abstract Competition is June 22. That's in just two weeks! Don't miss your chance to present at the Annual National Convention in October: buff.ly/2BnZs3d
#SickleCellMatters
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Have you heard about Sickle Cell 101's #OurVoice global survey yet? ποΈ Your participation can help us make the sickle cell community's voice loud and heard around the world!
Learn more and participate β‘οΈ buff.ly/ozowCUx
#SickleCellMatters
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On your mark, get set, go! π The SCDAA Warrior Walkathon is BACK this year. Mark your calendar to #MoveForSickleCell with us this summer!
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Saturday, July 18
π Lake Montebello
ποΈ Baltimore, Maryland
β°οΈ 9 a.m. - 12 p.m. ET
π buff.ly/jHV6lgL
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β°οΈ The COUNTDOWN is ON! 2οΈβ£ weeks until the SCDAA Sickletini Happy Hour!
Recognize World Sickle Cell Day with the SCDAA National Office during this free, virtual event. Register today β‘οΈ buff.ly/dRZEDcU
#WorldSickleCellDay #ShineTheLight #SickleCellMatters
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π¨ ALERT: There is less than ONE MONTH LEFT to submit your work to the SCDAA 2026 National Abstract Competition! π¨
We want to highlight your work during our Annual National Convention! Submit your research before the deadline to be considered: buff.ly/A2JvWAY
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World Sickle Cell Day is almost here β are you ready to Shine the Light? π‘ π΄
Take part in this global day of awareness β‘οΈ buff.ly/uqgKukq
#WorldSickleCellDay #ShineTheLightOnSickleCell
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π£οΈ May is #MentalHealthAwarenessMonth. SCD has obvious impacts on your physical health, but it's important to remember that it can impact your mental health as well. Explore the "I Believe in Therapy Toolkit" to learn more β‘οΈ buff.ly/nR0o1qg
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Today is #ClinicalTrialsDay π¬
Elisha is a sickle cell trailblazer who successfully completed a gene therapy trial. Hear her story and learn what the journey through a clinical trial looks like β and why it matters β‘οΈ buff.ly/jS9qGRc
#SickleCellMatters
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Want to learn more about clinical trials? Visit the SCDAA Clinical Trial Finder to find research opportunities near you β‘οΈ buff.ly/ZvxfZdp
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You're invited! The SCDAA Sickletini Happy Hour is back again this year - and we're excited to return to a virtual format! πΈοΈ
Learn more β‘οΈ buff.ly/zbTypWk
#SickleCellMatters
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β οΈ Last chance to register! SCDAA Summer CHW Training starts on Monday. Learn more and register β‘οΈ buff.ly/hph23gQ
#CommunityHealthWorker #SickleCellMatters
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SCDAA retweeted
May 13
ASH looks forward to tuning in to hear @DrAlexisThompsn, Chair of ASH's Sickle Cell Disease (SCD) Task Force, Dr. Edward Donnell Ivy, Chief Medical Officer of @SCDAAorg , and colleagues from @MinorityHealth discuss the importance of comprehensive care for sickle cell disease.
Registration Now Open!
Join our 2-part roundtable series in understanding systems of care for sickle cell disease:
May 14 & June 18, 2026
Register here: events.gcc.teams.microsoft.cβ¦
#SCD #Health #MAHA #HHS #OMH
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34 meetings on Capitol Hill. 13 SCDAA member organizations in D.C. Two days of incredible impact π«Ά Thank you to everyone who joined us last week for our 2026 Advocacy Days!
#BeASickleCellAdvocate #SickleCellMatters
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