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Sickle Cell Disease Foundation @SCDFoundation

Providing education and life-enhancing programs to individuals with sickle cell disease.

Joined November 2011
  • Tweets 1,771
  • Following 562
  • Followers 2,027
722 Photos and videos
Californians with #SickleCellDisease will be #NeglectedNoMore. Watch more here: bit.ly/3zlMJYf

Networking California for Sickle Cell Care (Promo Video)

California makes history with first and only statewide network of c...

youtube.com
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Sickle Cell Disease Foundation retweeted
Loma Linda U. Health@LLUHealth
28 Mar 2025
It brings us joy to celebrate our physicians this March 30, National Doctors' Day. Watch as our team reads heartfelt messages from patients. 💌 Watch now on Youtube: bit.ly/4hIJsY3 #NationalDoctorsDay
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Sickle Cell Disease Foundation retweeted
Networking California for Sickle Cell Care@TheNCSCC
21 Mar 2025
Women living with SCD have historically faced higher pregnancy risks with limited support. It’s time to address this gap & ensure they receive care they need & deserve. Learn more in @EricBoodman's investigative series, Coercive Care. bit.ly/4kQkKrv #WomensHistoryMonth

Coercive Care: Investigating sickle cell, pregnancy, and sterilization

A yearlong STAT investigation about people with sickle cell disease who felt pressured into unwanted sterilizations.

statnews.com
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Sickle Cell Disease Foundation retweeted
Networking California for Sickle Cell Care@TheNCSCC
6 Mar 2025
Thank you, @asmakilahweber, for meeting with us & the @UCSanDiego Health Sickle Cell Clinic team! On behalf of those we serve, we appreciate your ongoing support in ensuring that adults living with sickle cell disease in California are #NeglectedNoMore.❤️
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#SickleCellWarriors in Southern California are facing mental health challenges due to the ongoing LA wildfires. The trauma, whether director or indirect, is affecting many. If you or someone you know needs support, reach out. Read more via @UCLAHealth tinyurl.com/2s56d8ec #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors

Experts warn of the psychological fallout from the deadly, destructive LA wildfires

uclahealth.org
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We acknowledge that many in our SCDF family have been impacted by the devastating LA fires. If you are interested in helping those affected, we’ve compiled a list of GoFundMe Campaigns for your fellows in need. Every contribution helps! linktr.ee/SCDFoundation
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Happy #NationalWomensPhysiciansDay! Today we honor the incredible female physicians, especially @TheNCSCC providers who work tirelessly to improve care for those living with sickle cell disease in California. Drop a 🩺 and thank your doctor in the comments below #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors
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A new study shows that individuals living with sickle cell disease exhibit brain aging 14 years earlier than their actual age, even without stroke history, and socioeconomic factors also contribute. Read more here. tinyurl.com/3uhfjw7d #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors

Brains of people with sickle cell disease appear older | WashU Medicine

Study also finds socioeconomic status linked to brain health in adults

medicine.washu.edu
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February is #BlackHistoryMonth – a time to honor Black communities’ strength, resilience, and legacy. Join us as we continue to raise awareness about sickle cell disease, a condition disproportionately affecting Black lives. Honoring Black History, Empowering Sickle Cell Lives #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors
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Vertex Pharmaceuticals and Orna Therapeutics have partnered to develop "in vivo" gene therapies for sickle cell disease and beta thalassemia. The collaboration aims to improve CRISPR therapies, bypassing toxic preconditioning and lengthy processes. Read more here. tinyurl.com/9kftcb2y #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors

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tinyurl.com/9kftcb2y Vertex Pharmaceuticals y Orna Therapeutics se han asociado para desarrollar terapias genéticas “in vivo” para la enfermedad de células falciformes y la beta talasemia. La colaboración tiene el objetivo de mejorar las terapias CRISPR, evitando el preacondicionamiento tóxico y los procesos prolongados. Lee más aquí. tinyurl.com/9kftcb2y #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors
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Tees, greens, and a chance to change sickle cell lives! Don’t forget to join us on March 10, 2025, for our 23rd Annual Charity Golf Classic for a day of golf, fun, and awareness. There is still time to register for the early bird price! Register here. tinyurl.com/4zc8e587 #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors
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¡Tee, el green y una oportunidad a cambiar la vida de personas viviendo con enfermedad de células falciformes! No olvides acompañarnos el 10 de marzo de 2025 para nuestro 23.o Torneo Anual de Golf Benéfico, un día lleno de golf, diversión y concienciación. Aun estas a tiempo a registrase con el precio de inscripción anticipada. Regístrese aquí. tinyurl.com/4zc8e587 #NeglectedNoMore #SickleCellDiseaseAwareness #SickleCellStrong #SaveSickleCellLives #SickleCellWarriors
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Sickle cell disease is often misunderstood because of its complexity and strong association with a specific ethnic group. Columnist Oluwatosin Adesoye shares things that everyone should know and understand about sickle cell disease. Read more here. tinyurl.com/t48ta64v

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La enfermedad de células falciformes a veces no se puede entender por su complejidad y fuerte asociación con grupo étnico específicamente. Columnista Oluwatosin Adesoye comparte sobre lo que todos deben saber y entender sobre la enfermedad de células falciformes. Lee más aquí. tinyurl.com/t48ta64v

Important things you should know about sickle cell disease

Columnist Oluwatosin Adesoye shares a list of things that everyone should know and understand about sickle cell disease.

sicklecellanemianews.com
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To our SCDF Family affected by the Southern California fires, Wildfire pollution can affect everyone’s health, but #SickleCellWarriors are especially vulnerable. Protect your health with these tips from UCLA Health and stay safe.🩶 tinyurl.com/2wzp8n5n
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Para nuestra familia de SCDF afectada por los incendios en el sur de California, La contaminación de los incendios forestales puede afectar la salud de todos, especialmente los #GuererrosDeCelulasFalciformes. Protege su salud con estos consejos de UCLA Health y mantente seguro.🤍 tinyurl.com/2wzp8n5n

Wildfires are creating unhealthy air across Los Angeles County

uclahealth.org
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A recent study found that vitamin D deficiency is a significant independent risk for avascular necrosis, a devastating complication, in individuals living with sickle cell disease. Read more here. tinyurl.com/2kjsj7tb

Vitamin D Deficiency Linked to Avascular Necrosis in SCD

Researchers determined vitamin D deficiency was a significant independent predictor of avascular necrosis in a patients with SCD.

hematologyadvisor.com
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Un estudio reciente encontró que la deficiencia de Vitamina D es un factor de riesgo independiente significativo para la necrosis avascular, una complicación devastadora, en personas que viven con la enfermedad de células falciformes. Lee más aquí. tinyurl.com/2kjsj7tb

Vitamin D Deficiency Linked to Avascular Necrosis in SCD

Researchers determined vitamin D deficiency was a significant independent predictor of avascular necrosis in a patients with SCD.

hematologyadvisor.com
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California’s wildfires have strained access to essential resources, including blood. This #NationalBloodDonorMonth, give the gift of life. In just 45 minutes, your blood donation can make a lasting impact.🩸 Find a Red Cross location to donate here. tinyurl.com/y5jcdrwh
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Los incendios forestales en California han afectado el acceso a recursos esenciales, incluida la sangre. Este #MesNacionalDelDonateDeSangre, da el regalo de la vida. En solo 45 minutos, su donación puede tener un impacto duradero. Encuentra un centro de donación de la Red Cruza Roja aquí. tinyurl.com/336z6ftj
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